Experiences with

Non-tuberculous mycobacterium

I wanted to see if I was eligible for a free Covid test, just out of curiosity, not because I have it. It's quite a mission to find out the criteria but I finally tracked it down on the NICE website. It doesn't make for good reading, you'll have to be seriously ill before you don't have to pay for

Hello, I'm Josaphat from Madagascar. My first symptom for Behçet disease appeared in Mars 2020. I had sores in my mouth. After that It started to appear my genital. I consulted doctor for many times and they always suggested me to use either antibiotics or aciclovir. With time, my situation became worse

Back again with an old problem. Had my cryoablation 15 months ago and went through the usual recovery with the help of all you nice folks. So I need some more help. The past 3 weeks my flutters have been returning. I've been stressed lately and I'm sure that helped to start them. So I went on Klor-con

Hello this is my first time posting so be kind. I have MS and have been prescribed Klor-Con M20 potassium as a result of diarrhea. Now I am having Trigeminal Neuralgia (TN) events sometimes 3-times per day and as you know if you have had them they hurt. I read somewhere that a person said to avoid bananas

Somebody on FB had a link to a Noni Juice Cures PD page (they were selling Noni Juice) so I figured I would look for some science behind it. I will probably add this to my diet. Morinda citrifolia mitigates rotenone-induced striatal neuronal loss in male Sprague-Dawley rats by preventing mitochondrial

Managing Panic and Anxiety while having end stage COPD Severe Bronchiectasis. Good afternoon everyone, I do hope you are all having a pleasant day. While I was in hospital recently with a flare up I noticed my Anxiety levels were going through the roof every time I had difficulty breathing which at

Hello everyone, My dad has been on a ventilator due to covid for nearly 7 weeks now, the last week they have been weaning him off the ventilator and sedation, he has done so well with his breathing they have put him on a high flow oxygen (via his trachy) so a form of non invasive ventilation and been

So I went to get blood work done today because I started 25mg Synthroid (brand name) two weeks ago but because I have been experiencing runs of NSVT (not SVT) and slower than normal heart rate (in the 50s) they wanted to repeat it. They also had me stop the Synthroid yesterday until we figure it out

Well I haven’t seen family since lockdown and haven’t been out of the house since January but the last two days everyone has been. My husband collapsed and there was no way I can manage him on my own so my family as well as sorting out the medical side of it came and did all the practical things.

I have severe RLS. It has mostly been under control for awhile after years of different meds. All of a sudden, for about 2 months now it’s like I don’t even take any medicine. It’s been a nightmare. And I haven’t been able to understand why? Last night out of desperation I was looking at all my meds,

10 years ago I created a Facebook group for patients at Lane Fox Unit at St Thomas’s hospital. There aren’t many members so I’ve renamed it and opened it up to anyone who uses a ventilator or CPAP. The aim is to connect people to share information and experiences. It’s open to those who have non invasive

Has anyone here had the non-tuberculous mycobacterium infection? I’m just hoping you might share your experience on treatments, side effects of long term antibiotics or how you manage the problems and treatments? Many thanks.

A month ago I posted regarding my husband's pneumonia and pseudomonas diagnosis and that he now has bronchiectasis too, according to the consultant, which was shown on an earlier CT scan but no one mentioned it!!! Well he became very ill on Feb 1 and was blue lighted to hospital, put on iv antibiotics

Hi everyone my name is Linda, I have been a member of the BLF for a few years but have not blogged for a while although I read the post most day of the week. I have severe COPD and have had it for about 10 years, my consultant at the hospital has loaned me a NIV machine ( non invasive ventilation machine

I have just got out of hospital after 23 days I went in with viral pneumonia and exasperation of asthma I ended up in itu ventilated for 12 hours then I went to hdu then to the ward I was on iv antibiotics iv steroids then they soon went to oral steroids and it all went wrong when they put antibiotics

Hi my MPN friend, lot happening from my last 3-4 month. I have Et for 26 years only on aspirin and platets was 400-500, but after holidej (long flight) my hct go up to 48 and put me on venosection for8 month , was bad and put me on interferon weakly (only 5 weaks) and my old hemo. Told me I have PV

I have severe breathing problems and on non invasive ventilation. I just wanna know I don't feel too good. My chest feels heavy and painful but can you have a chest infection without a cold & cough? & when I take my ventilator mask off my SATs drop & i am breathless. I suffer from pneumonia a lot

Here is a list of the medications that can impact swallowing and why this happens: Dysphagia as a side effect of medication Medications that affect the smooth and striated muscles of the esophagus which are involved in swallowing may cause dysphagia. Medications with anticholinergic or antimuscarinic

My mum was admitted to hospital 3 weeks ago. She has copd(not sure what stage but she didn't use continuous inhalers but has had a few chest infection in the last 2 month and she would get out of breath very eislily) they put her on non invasive ventilation first then changed to the one going in her

I am in permanent a-fib.  I am trying to find help for the breathlessness it causes.  I have had 3 cardioversions - they didn't work - one lasted 2 days.  I am on metropolol, losartan, lipitor, xarelto, lasix, klor con and tikosyn.  I am too old for an ablation procedure - 85-year-old female.  Any suggestions