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Do I need lymph node dissection?
Had LAPR in beginning of June. Prior to LARP: PSA 6.2, Biopsy: 3+4 with 40% GG4. Histology report after LARP upgraded the cancer to 4+3 with 70% GG4. In addition, Intraductal carcinoma and Cribriform morphology of GG4 is identified. (EPE: negative, SV: negative, bladder neck and lymph vascular invasion
Had LAPR in beginning of June. Prior to LARP: PSA 6.2, Biopsy: 3+4 with 40% GG4. Histology report after LARP upgraded the cancer to 4+3 with 70% GG4. In addition, Intraductal carcinoma and Cribriform morphology of GG4 is identified. (EPE: negative, SV: negative, bladder neck and lymph vascular invasion
FMOH_N
in
Prostate Cancer Network
1 year ago
Mri scan
So I got my mri results back today. I was negative for hla b27 the mri showed minor wear and tear of all of my spine and inflammation in my pelvis sacroiliac joints as well as the auto immune inflammatory peripheral athritis. Osteoarthritis of both hips too. I'm a bit confused but they are keeping me
So I got my mri results back today. I was negative for hla b27 the mri showed minor wear and tear of all of my spine and inflammation in my pelvis sacroiliac joints as well as the auto immune inflammatory peripheral athritis. Osteoarthritis of both hips too. I'm a bit confused but they are keeping me
Brian1977
in
NRAS
1 year ago
RISING PSA 2 YEARS POST EBRT/ADT
Two years post EBRT plus 6 months ADT. Meeting with Oncologist in a few weeks and am wondering what he is going to make of the following PSA progression. Sept 2022 - 0.29 March 2023- 0.56 June 2023 - 0.97 Sept 2023 - 1.77 Testosterone went from near zero post ADT back to 483 in Sept 2022 and
Two years post EBRT plus 6 months ADT. Meeting with Oncologist in a few weeks and am wondering what he is going to make of the following PSA progression. Sept 2022 - 0.29 March 2023- 0.56 June 2023 - 0.97 Sept 2023 - 1.77 Testosterone went from near zero post ADT back to 483 in Sept 2022 and
Waldo13
in
Prostate Cancer Network
1 year ago
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PSA 6.9 six years after prostatectomy but PET/CT negative?
Weird situation here. Had a prostatectomy at Hopkins in early 2018. Organ-confined but Gleason on pathology was 4+5. For a little over two years PSA remained undetectable...and then, well, I kind of slacked off the test. Stupid and reckless on my part. After a roughly 3-year interval I recently
Weird situation here. Had a prostatectomy at Hopkins in early 2018. Organ-confined but Gleason on pathology was 4+5. For a little over two years PSA remained undetectable...and then, well, I kind of slacked off the test. Stupid and reckless on my part. After a roughly 3-year interval I recently
Nittany
in
Advanced Prostate Cancer
1 year ago
Radiation
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
sillyoyster
in
Advanced Prostate Cancer
1 year ago
If it doesn't make you feel bad, is it working?
Background: My husband recently received his fourth docetaxel treatment. He has mets to bones and lymph nodes and has had two SBRT sessions to bone and prostate which significantly reduced both pain and node size. He has "failed" both apalutamide and abiraterone and is officially castrate resistant.
Background: My husband recently received his fourth docetaxel treatment. He has mets to bones and lymph nodes and has had two SBRT sessions to bone and prostate which significantly reduced both pain and node size. He has "failed" both apalutamide and abiraterone and is officially castrate resistant.
MiaAmia
in
Advanced Prostate Cancer
1 year ago
feeling blessed
Happy to share that no detectable psa score at 2 years post prostatectomy. I feel blessed since I delayed radiation which was suggested by Urologist. Going from 3 month checks to 6 month checks. Hopefully they got it all Excellent site for info signing off I hope for good. 🙏🤞
Happy to share that no detectable psa score at 2 years post prostatectomy. I feel blessed since I delayed radiation which was suggested by Urologist. Going from 3 month checks to 6 month checks. Hopefully they got it all Excellent site for info signing off I hope for good. 🙏🤞
thansen535
in
Advanced Prostate Cancer
1 year ago
Painful Peeing/Tamsulosin post RP
Hi Everyone, It's been about 1.5 year since my RP. My psa is .4 and generally life is great-ish. The ish part of this is the following: With Tamsulosin, I pee alot during the night...4-6 x...which leaves me exhausted the next day. Without it, I get up 2x a night and generally sleep better
Hi Everyone, It's been about 1.5 year since my RP. My psa is .4 and generally life is great-ish. The ish part of this is the following: With Tamsulosin, I pee alot during the night...4-6 x...which leaves me exhausted the next day. Without it, I get up 2x a night and generally sleep better
trregan
in
Prostate Cancer And Gay Men
1 year ago
Surgery While on Xtandi/Eligard
I have been on Xtandi/Eligard now for about 5 months. At a psa of around 1.9 last March psma pet picked up 3 nodules in my lungs. All less than a cm. I am hormone sensitive and my current psa is undetectable. This July I had a ct scan of chest/abdomen/pelvis. The mets in the lung have decreased in size
I have been on Xtandi/Eligard now for about 5 months. At a psa of around 1.9 last March psma pet picked up 3 nodules in my lungs. All less than a cm. I am hormone sensitive and my current psa is undetectable. This July I had a ct scan of chest/abdomen/pelvis. The mets in the lung have decreased in size
Hidden
in
Advanced Prostate Cancer
1 year ago
CTC MEANING
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
Joeym1040
in
Advanced Prostate Cancer
1 year ago
Progression
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
NDJIM
in
Advanced Prostate Cancer
1 year ago
PSA seasonality
I am mounting a theory that has to do with increased PSADT during winter vs summer time. For this reason I analyzed my old PSA readings during the 2+ years before starting Bicalutamide. I divided the year into two halfs assigning winter as the period starting on the autumnal equinox and ending on the
I am mounting a theory that has to do with increased PSADT during winter vs summer time. For this reason I analyzed my old PSA readings during the 2+ years before starting Bicalutamide. I divided the year into two halfs assigning winter as the period starting on the autumnal equinox and ending on the
Justfor_
in
Fight Prostate Cancer
1 year ago
Use it or lose it - workout questions.
Ok so up front: Gleason 10. Matters? Dunno..castrate resistant now as aberaterone failed. Been battling this since 2020. I was PSA .12 this time last year, started going up at Nov 3-month just, and up since, which was apparent failure point for aberaterone. I had cancer jump into hip, hip muscle,
Ok so up front: Gleason 10. Matters? Dunno..castrate resistant now as aberaterone failed. Been battling this since 2020. I was PSA .12 this time last year, started going up at Nov 3-month just, and up since, which was apparent failure point for aberaterone. I had cancer jump into hip, hip muscle,
DD50
in
Advanced Prostate Cancer
1 year ago
PSA doubled 3 months after chemo - normal or a concern?
I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping any questions I might have for the appointment. My PSA has more than doubled in 3 months from 0.014 to 0.039. Testosterone at time of both tests was <7. At these low levels, is that doubling in 3 months a concern? I’m
I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping any questions I might have for the appointment. My PSA has more than doubled in 3 months from 0.014 to 0.039. Testosterone at time of both tests was <7. At these low levels, is that doubling in 3 months a concern? I’m
Gl448
in
Advanced Prostate Cancer
1 year ago
Attendance Allowance for PA Sufferer's
Hi everyone Has anyone with Palindromic Arthritis submitted a claim fro Attendance Allowance? I am in two minds as I need help when PA strikes at various joints and then living a normal life until it returns again Any thoughts welcome
Hi everyone Has anyone with Palindromic Arthritis submitted a claim fro Attendance Allowance? I am in two minds as I need help when PA strikes at various joints and then living a normal life until it returns again Any thoughts welcome
35395
in
NRAS
1 year ago
confused
I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said no worrisome bone signalling whatever that means. Had surgery but psa persisted at 1.7. Path. Report showed regional spread but 3 lymph nones removed were clear. Eligard shot, Casodex for a month and 33 EBRT treatments
I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said no worrisome bone signalling whatever that means. Had surgery but psa persisted at 1.7. Path. Report showed regional spread but 3 lymph nones removed were clear. Eligard shot, Casodex for a month and 33 EBRT treatments
Izzysdad
in
Advanced Prostate Cancer
1 year ago
Pluvitco
Any input on how long it takes for PSA to start dropping if Pluvitco is going to work?
Any input on how long it takes for PSA to start dropping if Pluvitco is going to work?
Russ506
in
Advanced Prostate Cancer
1 year ago
Patient-Initiated Follow-Up appointments survey
NHS England are currently transforming the way outpatient services are delivered across all health areas and as part of this, have suggested that people with stable inflammatory arthritis should not continue to have regular annual or six-monthly appointments to see their rheumatology-team but only see
NHS England are currently transforming the way outpatient services are delivered across all health areas and as part of this, have suggested that people with stable inflammatory arthritis should not continue to have regular annual or six-monthly appointments to see their rheumatology-team but only see
Hidden
Partner
in
NRAS
1 year ago
LT and cyberknife
My PSA went down to .5 from 6.0 after cyberknife. Six months later it is back to 1.0 should I be worried?
My PSA went down to .5 from 6.0 after cyberknife. Six months later it is back to 1.0 should I be worried?
crony
in
Advanced Prostate Cancer
1 year ago
Pain in top of both feet
Hi. I have fibo and arthritis. I have just had methotrexate increased to 17.5 each week by pen jag. I have recently started having pain across top of my feet walking or sitting still. Usually one at a time. I am not sure if this caused by my fibo. Has anyone any experience of this type of pain. Thanks
Hi. I have fibo and arthritis. I have just had methotrexate increased to 17.5 each week by pen jag. I have recently started having pain across top of my feet walking or sitting still. Usually one at a time. I am not sure if this caused by my fibo. Has anyone any experience of this type of pain. Thanks
Jonn9
in
Fibromyalgia Action UK
1 year ago
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