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PSMA Pylarify Test
Finally getting a PSMA Pylarify test after a PSA rise from 0.64 to 0.90 in 11 weeks. Should be interesting. No symptoms from the cancer so far. At the current PSA level it would appear there is an almost 90% chance of locating cancer somewhere. Also of some great interest to the doctor(s) is my status
Finally getting a PSMA Pylarify test after a PSA rise from 0.64 to 0.90 in 11 weeks. Should be interesting. No symptoms from the cancer so far. At the current PSA level it would appear there is an almost 90% chance of locating cancer somewhere. Also of some great interest to the doctor(s) is my status
Cancer2x
in
Advanced Prostate Cancer
10 months ago
Intermittent ADT
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
John347
in
Advanced Prostate Cancer
10 months ago
Is creatine safe?
Hi all after 37 radiation sessions I started back on weight training 3 times a week.I was also on ADT for 24 months.I’m 70 and my Gleason scale was 8 my PSA is now totally ok.I finished ADT 9 months ago and am only just feeling glimmerings of libido.Does anyone have any knowledge as to if it’s safe to
Hi all after 37 radiation sessions I started back on weight training 3 times a week.I was also on ADT for 24 months.I’m 70 and my Gleason scale was 8 my PSA is now totally ok.I finished ADT 9 months ago and am only just feeling glimmerings of libido.Does anyone have any knowledge as to if it’s safe to
Coggeshall
in
Prostate Cancer Network
10 months ago
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Living life after a prostatectomy
In 2021 was diagnosed with prostate cancer. I went through the operation and 2 months later lost my spouse of almost 50 years. Obviously, I had a lot put on my plate at one time. I'm on hormone therapy and it's dropped my PSA from 1 to .1. I would love to talk to someone who is going through the same
In 2021 was diagnosed with prostate cancer. I went through the operation and 2 months later lost my spouse of almost 50 years. Obviously, I had a lot put on my plate at one time. I'm on hormone therapy and it's dropped my PSA from 1 to .1. I would love to talk to someone who is going through the same
Studio1954
in
Prostate Cancer And Gay Men
10 months ago
Starting to struggle
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Penelopepitstoq1uk
in
NRAS
1 year ago
Supplements and self-care
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
StayinAlive8
in
Advanced Prostate Cancer
10 months ago
3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
JWS13
in
Prostate Cancer Network
10 months ago
One year in.
Hi all, I’m new to the group, stage 4 met — lymph and bone. Pretty scary stuff. Started with Dox which reduced my PSA from 2200(!) to now around 1200. I’m deep in it. I just had my second pluvocto treatment and hoping for the best. What’s hurting the most is feeling abandoned by my family,
Hi all, I’m new to the group, stage 4 met — lymph and bone. Pretty scary stuff. Started with Dox which reduced my PSA from 2200(!) to now around 1200. I’m deep in it. I just had my second pluvocto treatment and hoping for the best. What’s hurting the most is feeling abandoned by my family,
Arel8
in
Advanced Prostate Cancer
10 months ago
Bicalutamide shortage?
I’ve been on Bicalutamide 50 mg monotherapy for four years . When I received my last refill for 90 tablets, I was given only 14 tablets and told their supplier didn’t know when more would be available. After checking 3 other pharmacies in Florence Oregon , I was able to get 30 more tablets. Next I enrolled
I’ve been on Bicalutamide 50 mg monotherapy for four years . When I received my last refill for 90 tablets, I was given only 14 tablets and told their supplier didn’t know when more would be available. After checking 3 other pharmacies in Florence Oregon , I was able to get 30 more tablets. Next I enrolled
Coastguy
in
Advanced Prostate Cancer
10 months ago
Looking for advice
Hi I have a PSA of 5.5 and a Gleason score of 4+3 and am looking for advice about treatment options. I was dignosed about 5 months ago. Would like to better understand views on surgery versus other treatment optins. Best
Hi I have a PSA of 5.5 and a Gleason score of 4+3 and am looking for advice about treatment options. I was dignosed about 5 months ago. Would like to better understand views on surgery versus other treatment optins. Best
Scorpio53
in
Prostate Cancer Network
10 months ago
Pluvicto, Not Helping
I just had round 5 of Pluvicto on August 10th. I don't see where is is helping much, if any, at all. My PSA before entering round 5 is now over 400. I'm so anemic I've had two blood transfusions in the past 30 days. When I went in for round 5 I was so weak and frail that I had to be pushed around in
I just had round 5 of Pluvicto on August 10th. I don't see where is is helping much, if any, at all. My PSA before entering round 5 is now over 400. I'm so anemic I've had two blood transfusions in the past 30 days. When I went in for round 5 I was so weak and frail that I had to be pushed around in
bglendi53
in
Advanced Prostate Cancer
10 months ago
Interesting PSA observation
For my prostate cancer journey, please see my bio. In 06/2023 I was also diagnosed with testicle lymphoma, maybe as a side effect of earlier radiation. Testicle has been removed, PET/CT & co showed no other evidence of cancer. So I perform four cycles of R-CHOP chemo regimen. Why I post this here? After
For my prostate cancer journey, please see my bio. In 06/2023 I was also diagnosed with testicle lymphoma, maybe as a side effect of earlier radiation. Testicle has been removed, PET/CT & co showed no other evidence of cancer. So I perform four cycles of R-CHOP chemo regimen. Why I post this here? After
Nusch
in
Advanced Prostate Cancer
10 months ago
Could PSA of 3.0 be a problem?
My 48 year old son lives in Norway. He was recently contacted by their hereditary cancer clinic and advised that his PSA had increased to 3.0 from from last years 2.5. They felt that's a little high for his age and are going to call him in for an MR and a new PSA test. Is this any cause for concern
My 48 year old son lives in Norway. He was recently contacted by their hereditary cancer clinic and advised that his PSA had increased to 3.0 from from last years 2.5. They felt that's a little high for his age and are going to call him in for an MR and a new PSA test. Is this any cause for concern
Hidden
in
Prostate Cancer Network
11 months ago
Is it a flare ?
Hi ,i was recently diagnosed with fibro after 40+ years of pain,i also have osteoarthritis and lipoedema which are also constant pain. For the last couple of weeks i have had what feels like the worst hangover without the night out! Is this a "flare"?.
Hi ,i was recently diagnosed with fibro after 40+ years of pain,i also have osteoarthritis and lipoedema which are also constant pain. For the last couple of weeks i have had what feels like the worst hangover without the night out! Is this a "flare"?.
Cabello
in
Fibromyalgia Action UK
1 year ago
BP with abiraterone + prednisone, eplerenone, dexamethasone
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
Gearhead
in
Advanced Prostate Cancer
11 months ago
Declining psa #5
Gm ladies n gentlemen, after a stabilization psa between 1.5-1.7 for the last two months solely on ivermectin, I incorporated cbd, turmeric, zinc a lot of fruits especially cherries 🍒 and the pits (2-5 daily) of cherries, peaches, plums n apricots for the natural amygdalin nutrient and I am happy to
Gm ladies n gentlemen, after a stabilization psa between 1.5-1.7 for the last two months solely on ivermectin, I incorporated cbd, turmeric, zinc a lot of fruits especially cherries 🍒 and the pits (2-5 daily) of cherries, peaches, plums n apricots for the natural amygdalin nutrient and I am happy to
Nfler
in
Advanced Prostate Cancer
11 months ago
ADT before Surgery?
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
Lost_Sheep
in
Prostate Cancer Network
11 months ago
Blood in urine and clotting 3 weeks after starting Zytiga
After starting Zytiga I noticed a few drops of blood but only after a bowel motion. Yesterday after a big bowel motion I couldn’t pee and headed for hospital though on getting there I suppose my bladder was full enough it forced the clot out while going to the toilet. I’ve had blockage problems ana
After starting Zytiga I noticed a few drops of blood but only after a bowel motion. Yesterday after a big bowel motion I couldn’t pee and headed for hospital though on getting there I suppose my bladder was full enough it forced the clot out while going to the toilet. I’ve had blockage problems ana
Ausi
in
Advanced Prostate Cancer
11 months ago
FYI: New data on progression of visceral mets without PSA progression (discordance) and ARAT/docetaxel therapy
Interesting study, folks. We know physical progression of PCa (i.e., new metastases) can occur without PSA progression. This is known as a discordance. But we don't know how often it occurs or why it occurs. In these instances, our greatest fear is "therapy-induced neuroendocrine prostate cancer
Interesting study, folks. We know physical progression of PCa (i.e., new metastases) can occur without PSA progression. This is known as a discordance. But we don't know how often it occurs or why it occurs. In these instances, our greatest fear is "therapy-induced neuroendocrine prostate cancer
SeosamhM
in
Advanced Prostate Cancer
11 months ago
Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Brokedown_Palace
in
Advanced Prostate Cancer
11 months ago
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