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I’m nervous about my Genomic Results plus anyone want to share their experience?
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Had my prostate removed and had another round of Germline mainly Genomics testing done… Gleason 9 Stage 4 Grade 5 Firmagon @28 days, Zytiga with Prednisone Daily, Taltz monthly for severe plague psoriasis VIT D 6 weeks, once a weeks, 50k units, no prolia or Z Acid for bones, my teeth need work
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Might blood be good news?
I'm now getting ready for my 3rd Docetaxel infusion. My symptoms and side effects have been very mild. Before chemo started, I was getting pains in the rectal wall, sharp bladder discomfort and pain on urination - along with blood in the urine. As of today, I'm waiting for definitive results from
I'm now getting ready for my 3rd Docetaxel infusion. My symptoms and side effects have been very mild. Before chemo started, I was getting pains in the rectal wall, sharp bladder discomfort and pain on urination - along with blood in the urine. As of today, I'm waiting for definitive results from
CrocodileShoes
in
Advanced Prostate Cancer
9 months ago
Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
9 months ago
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Scared looking for some advice
I found out ten months ago that I had a PSA of 6.4. It rose to 9.7 and recently has subsided to 8.3. I did a MRI and they said I PI-RADS 4 with a lesion in my transition zone. Seminal vesticles and Neuromuscular bundes are symmetric. However one of my lymph nodes is boderline enlarged at 1.0cm short
I found out ten months ago that I had a PSA of 6.4. It rose to 9.7 and recently has subsided to 8.3. I did a MRI and they said I PI-RADS 4 with a lesion in my transition zone. Seminal vesticles and Neuromuscular bundes are symmetric. However one of my lymph nodes is boderline enlarged at 1.0cm short
RocketTest60
in
Advanced Prostate Cancer
9 months ago
Sex before psa test
Forgot to refrain and had sex 36 hrs before my psa test. Results have increased from 4.2 to 4.8, could sex cause this increase
Forgot to refrain and had sex 36 hrs before my psa test. Results have increased from 4.2 to 4.8, could sex cause this increase
pd63
in
Prostate Cancer Network
9 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
9 months ago
Trying to get to retirement before HT
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
CJ1958
in
Prostate Cancer Network
9 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
9 months ago
Thinking of Active Surveillance with 3+4
Received my results on Feb 28 that I had 1 core of 3+3, not worried about that one.... But I had two cores of 3+4, 1 core the gleason pattern 4 is 10% and the other core was gleason pattern 4 of 10-20%, these reading were from the City of Hope, which confirmed the original report from my first Dr.
Received my results on Feb 28 that I had 1 core of 3+3, not worried about that one.... But I had two cores of 3+4, 1 core the gleason pattern 4 is 10% and the other core was gleason pattern 4 of 10-20%, these reading were from the City of Hope, which confirmed the original report from my first Dr.
MauiJef
in
Prostate Cancer Network
9 months ago
Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
9 months ago
Brother's numbers since ADT plus Orchiectomey since diagnosed in February
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Sparlingo
in
Advanced Prostate Cancer
9 months ago
ipp and salvage radiation
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Katamiran
in
Prostate Cancer Network
9 months ago
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
9 months ago
Woot💙PSA dropped after being the same for two consecutive months
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
dockam
in
Advanced Prostate Cancer
9 months ago
rheumatoid in jaw and neck
Has anyone experienced RA spreading to their jaw / neck? The right side of my jaw is stiff and painful every morning, I can’t open it enough to eat breakfast. I also now have pain in the top of my neck everyday (different to pain from sitting at a desk too long or sleeping on it funny!) I was diagnosed
Has anyone experienced RA spreading to their jaw / neck? The right side of my jaw is stiff and painful every morning, I can’t open it enough to eat breakfast. I also now have pain in the top of my neck everyday (different to pain from sitting at a desk too long or sleeping on it funny!) I was diagnosed
Joannahopkins
in
NRAS
1 year ago
confused about supplements and certain foods
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
SierraSix
in
Advanced Prostate Cancer
9 months ago
First blood tests since starting Abi.
Yesterday I saw the MO and when he entered the room he had a bid smile. My Psa that had climbed from 6.6 in March to 19.14 on Sept. 5 had dropped to 4.74 yesterday. ALP was 141 Sept 5 and down to 114 yesterday. I started taking low dose Abi on Sept 9 so total treatment was 24 days. To say he was happy
Yesterday I saw the MO and when he entered the room he had a bid smile. My Psa that had climbed from 6.6 in March to 19.14 on Sept. 5 had dropped to 4.74 yesterday. ALP was 141 Sept 5 and down to 114 yesterday. I started taking low dose Abi on Sept 9 so total treatment was 24 days. To say he was happy
Professorgary
in
Advanced Prostate Cancer
9 months ago
Castration resistant in just a year? Normal or not? Provenge in my future.
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
Gl448
in
Advanced Prostate Cancer
9 months ago
Tiredness - can anyone suggest ways to help with tiredness caused by rheumatoid arthritis?
My drugs are controlling the inflamation caused by RA, but I am still very tired, not able to do the amount I used to do. Any ideas other than pacing myself? Any good vitamins etc? thanks
My drugs are controlling the inflamation caused by RA, but I am still very tired, not able to do the amount I used to do. Any ideas other than pacing myself? Any good vitamins etc? thanks
kormacurry
in
NRAS
1 year ago
Is HT Treatment necessary after Orchiectomey?
Its been a while since I sent you gentlemen an update. I did go for Keytruda, started it in March of 2022, but stopped in September because of pretty significant skin reaction. My PSA went from 3.31 in February 2022 to 0.09 3 months ago, so it definitely worked. In the meantime I have gone through with
Its been a while since I sent you gentlemen an update. I did go for Keytruda, started it in March of 2022, but stopped in September because of pretty significant skin reaction. My PSA went from 3.31 in February 2022 to 0.09 3 months ago, so it definitely worked. In the meantime I have gone through with
Bdale
in
Advanced Prostate Cancer
9 months ago
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