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Non-small-cell lung carcinoma
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The Journey Begins 7th August 2023
Nasty cough with shortness of breath , Local GP suspected chest infection, prescribed antibiotics and chest x ray, this picked up a issue so had chest CT scan. 12th August. Suspected lung cancer to right upper lobe .!! Early staging suggests T3/N2/M0 this now May have been a bit premature as Bronchoscopy
Nasty cough with shortness of breath , Local GP suspected chest infection, prescribed antibiotics and chest x ray, this picked up a issue so had chest CT scan. 12th August. Suspected lung cancer to right upper lobe .!! Early staging suggests T3/N2/M0 this now May have been a bit premature as Bronchoscopy
Beatthisthing2023
in
The Roy Castle Lung Cancer Foundation
9 months ago
The Wind Beneath My Wings Caregiver Award
Behind every lung cancer patient stands a caregiver walking together with their loved one diagnosed with lung cancer. Whether it’s a shoulder to cry on or a ride to the doctor — caregivers are there to help. The caregiver is often the person behind the curtain, ensuring their loved one has everything
Behind every lung cancer patient stands a caregiver walking together with their loved one diagnosed with lung cancer. Whether it’s a shoulder to cry on or a ride to the doctor — caregivers are there to help. The caregiver is often the person behind the curtain, ensuring their loved one has everything
Miranda_GO2
Partner
in
Lung Cancer Support
9 months ago
post surgery recovery
I had lung surgery five weeks ago, lower left hand lobe The tumour was removed completely and the test results came back that it hasn’t spread to the lymph nodes which is fantastic news The problem I’m having is, I am still in excruciating pain in the area where the chest drain was , at the hospital
I had lung surgery five weeks ago, lower left hand lobe The tumour was removed completely and the test results came back that it hasn’t spread to the lymph nodes which is fantastic news The problem I’m having is, I am still in excruciating pain in the area where the chest drain was , at the hospital
Rosegarden100
in
The Roy Castle Lung Cancer Foundation
9 months ago
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Tocilizumab
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
Niblick
in
PMRGCAuk
11 hours ago
Colonoscopy
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Babciboys
in
PMRGCAuk
5 days ago
Returning temporal headaches after stopping Tocilizumab, what to do ?
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
ghost123uk
in
PMRGCAuk
19 days ago
Neutropenia whilst on Tocilizumab
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Magsters123
in
PMRGCAuk
21 days ago
Qualifying for Tocilizumab
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Golfers1
in
PMRGCAuk
1 month ago
colonoscope
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
soul-123
in
Lung Conditions Community Forum
7 months ago
Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
2 months ago
Asbestos
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
wimbledon
in
Lung Conditions Community Forum
7 months ago
Vasculitus, a promising road ahead- let’s hope so!
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
Exflex
in
PMRGCAuk
2 months ago
Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Musiclady18
in
PMRGCAuk
3 months ago
Please Join Us! Tuesday September 12th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, September 12th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, September 12th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
10 months ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
3 months ago
Bed hair
Well I've had all my tests, I'm now severe, got pulmonary hypertension so the lung reduction is out of the question, apparently. I can go forward for a lung transplant but you know, I caused this with smoking, I gave up 2 years ago. And I don't fancy having my ribcage opened and someone else's blood
Well I've had all my tests, I'm now severe, got pulmonary hypertension so the lung reduction is out of the question, apparently. I can go forward for a lung transplant but you know, I caused this with smoking, I gave up 2 years ago. And I don't fancy having my ribcage opened and someone else's blood
Zand60
in
Lung Conditions Community Forum
10 months ago
GENETIC MUTATION SUPPORT GROUP
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
10 months ago
LUNG CANCER TREATMENT SUPPORT
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
10 months ago
Would you like to get more involved?
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
10 months ago
Anyone’s thoughts on milk thistle?https://thyroidpatients.ca/2022/01/16/milk-thistle-thyroid-transport/amp/
I am on a hormone group someone has shared this I’ve been using milk thistle organic oil orally with vitamin e it doesn’t seem to have had any negative effects on myself thankyou in advance
I am on a hormone group someone has shared this I’ve been using milk thistle organic oil orally with vitamin e it doesn’t seem to have had any negative effects on myself thankyou in advance
Joannak
in
Thyroid UK
9 months ago
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