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Non-small-cell lung carcinoma
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Care oncology
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Leni22
in
The Roy Castle Lung Cancer Foundation
9 months ago
Severe heartburn after lobectomy
Hello,2/14/23 I had a lower rt lung lobectomy. Since that time I have horrific heartburn. Not just a little but debilitating. Has anyone else experienced this? I have had an endoscopy done and the dr reports that he can see no reason for my symptoms. I am now being referred to other Dr's one being a
Hello,2/14/23 I had a lower rt lung lobectomy. Since that time I have horrific heartburn. Not just a little but debilitating. Has anyone else experienced this? I have had an endoscopy done and the dr reports that he can see no reason for my symptoms. I am now being referred to other Dr's one being a
MeLyndi
in
The Roy Castle Lung Cancer Foundation
9 months ago
Questions
Anyone on here lived a long life after heart surgery lung surgery?
Anyone on here lived a long life after heart surgery lung surgery?
Chaseree
in
British Heart Foundation
9 months ago
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Pain after lung surgery
I was diagnosed with a lung cancer in my lower left lung late January 2023,I had a surgery to remove it on 10th February 2023 .it started off keyhole but I had a bad bleed do they ended up doing open ,all went well and I was told all cancer was removed and there was no spread, all went well with recovery
I was diagnosed with a lung cancer in my lower left lung late January 2023,I had a surgery to remove it on 10th February 2023 .it started off keyhole but I had a bad bleed do they ended up doing open ,all went well and I was told all cancer was removed and there was no spread, all went well with recovery
Cakebaker2
in
The Roy Castle Lung Cancer Foundation
9 months ago
Life after Tocilizumab?
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
tweety_pie
in
PMRGCAuk
18 days ago
Tocilizumab
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
Niblick
in
PMRGCAuk
25 days ago
Colonoscopy
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Babciboys
in
PMRGCAuk
29 days ago
Returning temporal headaches after stopping Tocilizumab, what to do ?
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
ghost123uk
in
PMRGCAuk
1 month ago
Neutropenia whilst on Tocilizumab
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Magsters123
in
PMRGCAuk
2 months ago
Qualifying for Tocilizumab
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Golfers1
in
PMRGCAuk
2 months ago
Please Join Us! Tuesday October 10th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, October 10th, at 5pm PT/8pm ET. At
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, October 10th, at 5pm PT/8pm ET. At
Michelezeh
Partner
in
Lung Cancer Support
10 months ago
Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
3 months ago
The Journey Begins 7th August 2023
Nasty cough with shortness of breath , Local GP suspected chest infection, prescribed antibiotics and chest x ray, this picked up a issue so had chest CT scan. 12th August. Suspected lung cancer to right upper lobe .!! Early staging suggests T3/N2/M0 this now May have been a bit premature as Bronchoscopy
Nasty cough with shortness of breath , Local GP suspected chest infection, prescribed antibiotics and chest x ray, this picked up a issue so had chest CT scan. 12th August. Suspected lung cancer to right upper lobe .!! Early staging suggests T3/N2/M0 this now May have been a bit premature as Bronchoscopy
Beatthisthing2023
in
The Roy Castle Lung Cancer Foundation
10 months ago
Vasculitus, a promising road ahead- let’s hope so!
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
Exflex
in
PMRGCAuk
3 months ago
The Wind Beneath My Wings Caregiver Award
Behind every lung cancer patient stands a caregiver walking together with their loved one diagnosed with lung cancer. Whether it’s a shoulder to cry on or a ride to the doctor — caregivers are there to help. The caregiver is often the person behind the curtain, ensuring their loved one has everything
Behind every lung cancer patient stands a caregiver walking together with their loved one diagnosed with lung cancer. Whether it’s a shoulder to cry on or a ride to the doctor — caregivers are there to help. The caregiver is often the person behind the curtain, ensuring their loved one has everything
Miranda_GO2
Partner
in
Lung Cancer Support
10 months ago
colonoscope
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
soul-123
in
Lung Conditions Community Forum
8 months ago
Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Musiclady18
in
PMRGCAuk
3 months ago
post surgery recovery
I had lung surgery five weeks ago, lower left hand lobe The tumour was removed completely and the test results came back that it hasn’t spread to the lymph nodes which is fantastic news The problem I’m having is, I am still in excruciating pain in the area where the chest drain was , at the hospital
I had lung surgery five weeks ago, lower left hand lobe The tumour was removed completely and the test results came back that it hasn’t spread to the lymph nodes which is fantastic news The problem I’m having is, I am still in excruciating pain in the area where the chest drain was , at the hospital
Rosegarden100
in
The Roy Castle Lung Cancer Foundation
10 months ago
Asbestos
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
wimbledon
in
Lung Conditions Community Forum
8 months ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
4 months ago
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