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Non-small-cell lung carcinoma
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labs results that contraindicate one another
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Katep66875
in
Pernicious Anaemia Society
2 months ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
2 months ago
Newly Diagnosed
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Mindini1964
in
The Roy Castle Lung Cancer Foundation
8 months ago
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lung cancer
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Sally789
in
The Roy Castle Lung Cancer Foundation
8 months ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
3 months ago
Please Join us tomorrow, November 16th for our Coming Together Globally to Combat Stigma Living Room
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Michelezeh
Partner
in
Lung Cancer Support
8 months ago
Mum has lung cancer stage 4 BRAF Tumour
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Beetro84
in
The Roy Castle Lung Cancer Foundation
8 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
4 months ago
International Lung Cancer Livingroom 1400 GMT. 16th November.
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Denzie
in
The Roy Castle Lung Cancer Foundation
8 months ago
Special time for an International Lung Cancer Livingroom. Accessible to many countries. November 16 at 12:00 eastern.
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Denzie
Volunteer
in
Lung Cancer Support
8 months ago
immunotherapy damaging kidneys
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
SharonTan
in
The Roy Castle Lung Cancer Foundation
8 months ago
Please Join Us! Tuesday November 14th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
8 months ago
Blood Work
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Canadian77
in
Pernicious Anaemia Society
4 months ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
9 months ago
Waiting game
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
purdeyspringer
in
Lung Conditions Community Forum
9 months ago
PV & Gene Editing for Sickle cell anemia
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
ERei
in
MPN Voice
7 months ago
Time flies... when you're having babies!
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 months ago
just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
9 months ago
Lung Cancer Treatment
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
younginmind
in
Lung Conditions Community Forum
9 months ago
Lung Cancer Treatment
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
younginmind
in
Lung Cancer Support
9 months ago
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