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Non-small-cell lung carcinoma
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12years
it’s has been 12 yrs since I was diagnosed with with stage 4 lung cancer I’ve have surgery 2 lots of chemo, immunotherapy, and radiotherapy It has been over 3 years since my radiotheyand I now have 3 monthly ct scans and all is stable I’m under the care of Christie’s in Manchester and would like
it’s has been 12 yrs since I was diagnosed with with stage 4 lung cancer I’ve have surgery 2 lots of chemo, immunotherapy, and radiotherapy It has been over 3 years since my radiotheyand I now have 3 monthly ct scans and all is stable I’m under the care of Christie’s in Manchester and would like
Liampaul03
in
The Roy Castle Lung Cancer Foundation
2 years ago
Back on the transplant list
Yesterday I returned to the lung transplant waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too. We've all been doing regular testing and we must have caught Dad's covid very early before he could unwittingly pass it on.
Yesterday I returned to the lung transplant waiting list after an enforced break due to my Dad picking up his second bout of Covid. Fortunately, Lauren and I didn't get it, too. We've all been doing regular testing and we must have caught Dad's covid very early before he could unwittingly pass it on.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
2 years ago
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Transplant Surgeon
Well this Monday will take me closer to knowing if I’m to be accepted for transplant. Transplant was discussed with me by my specialist in November 2021 after a scheduled lung reduction was no longer viable. I had a few meetings at wythenshawe hospital, which is my nearest lung unit. I was given a
Well this Monday will take me closer to knowing if I’m to be accepted for transplant. Transplant was discussed with me by my specialist in November 2021 after a scheduled lung reduction was no longer viable. I had a few meetings at wythenshawe hospital, which is my nearest lung unit. I was given a
Northernsaul
in
Lung Conditions Community Forum
2 years ago
NED means I should feel happy, right?
I'm new to this site, was diagnosed with Stage IV NSCLC adenocarcinoma (EGFR mutation) in June 2021. I had SBRT for 3 brain mets, which seems to have taken care of those bastards. I started on Tagrisso pretty soon afterward and am still on it. I had an upper left lung lobectomy and a wedge resection
I'm new to this site, was diagnosed with Stage IV NSCLC adenocarcinoma (EGFR mutation) in June 2021. I had SBRT for 3 brain mets, which seems to have taken care of those bastards. I started on Tagrisso pretty soon afterward and am still on it. I had an upper left lung lobectomy and a wedge resection
Melly_Mel
in
Lung Cancer Support
2 years ago
Has anyone got any experience in coming off Tocilizumab to start on Methotrexate?
I have been on Tocilizumab since August 2021 but the funding for this is being withdrawn. I have been off steroids now for over 2 months so without the Toci I have nothing to ward off any flare-up of GCA. Due to being relatively asymptomatic before diagnosis and losing sight in one eye very quickly rheumatology
I have been on Tocilizumab since August 2021 but the funding for this is being withdrawn. I have been off steroids now for over 2 months so without the Toci I have nothing to ward off any flare-up of GCA. Due to being relatively asymptomatic before diagnosis and losing sight in one eye very quickly rheumatology
sequeluk
in
PMRGCAuk
2 years ago
Preparations afoot for my stem cell transplant
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
Scaredy_cat
in
MPN Voice
2 years ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
2 years ago
the man ( woman) with a treatment plan says :
Hi everyone so I got my treatment plan at last …. Combined chemo ( carboplatin and paclitaxel )once a week / radio every day mon to fri for 6 weeks followed , if I’ve got the appropriate markers with immunotherapy as follow on … they said it was a brutal regime but they are aiming for a curative outcome
Hi everyone so I got my treatment plan at last …. Combined chemo ( carboplatin and paclitaxel )once a week / radio every day mon to fri for 6 weeks followed , if I’ve got the appropriate markers with immunotherapy as follow on … they said it was a brutal regime but they are aiming for a curative outcome
mishamilo53
in
The Roy Castle Lung Cancer Foundation
2 years ago
GP refusing to offer IFAB Test
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
cloudspotting
in
Pernicious Anaemia Society
2 years ago
Join Us! Tuesday, October 11th, Gathering HOPE, a Social Hour
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted now on our ZOOM link this coming Tuesday, October 11th, at 5pm
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted now on our ZOOM link this coming Tuesday, October 11th, at 5pm
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Stem Cell Transplant (stc) after care
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Scaredy_cat
in
MPN Voice
2 years ago
alvesco
hi has anyone used a preventer inhaler called Alvesco is it any good. I have tried quite a few different inhalers recently a few of them have serevent in them that doesn’t suit me it tightens my chest immediately. Just looking for one that I haven’t tried.
hi has anyone used a preventer inhaler called Alvesco is it any good. I have tried quite a few different inhalers recently a few of them have serevent in them that doesn’t suit me it tightens my chest immediately. Just looking for one that I haven’t tried.
Hol21
in
Lung Conditions Community Forum
2 years ago
COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
lankisterguy
Volunteer
in
CLL Support
2 years ago
2022 American College of Rheumatology Classification Criteria for Giant Cell Arteritis
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
Exflex
in
PMRGCAuk
2 years ago
COVID update: Who remains at higher risk? by LLS.org
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
lankisterguy
Volunteer
in
CLL Support
2 years ago
Coughing and lung cancer - really frustrating for my Dad ..
hi , my DaD , who has Stage 4, has been ccughing quite a bit in the last couple of days. He had a pleural water removal a couple of weeks ago and worried this may be building again. Anything you've all found that may alleviate some of the coughing symptoms , that i know he finds really frustrating
hi , my DaD , who has Stage 4, has been ccughing quite a bit in the last couple of days. He had a pleural water removal a couple of weeks ago and worried this may be building again. Anything you've all found that may alleviate some of the coughing symptoms , that i know he finds really frustrating
Vip1
in
The Roy Castle Lung Cancer Foundation
2 years ago
Feel like I am waiting for the next tragedy
I am recovering from a bad accident. Every time I go home from the hospital something goes wrong. My lung collapsed twice. I am home again after lung surgery and surgery on some of my broken ribs. Now I am worried the incisions aren’t healing. I am trying to stay positive but the anxiety wins. It has
I am recovering from a bad accident. Every time I go home from the hospital something goes wrong. My lung collapsed twice. I am home again after lung surgery and surgery on some of my broken ribs. Now I am worried the incisions aren’t healing. I am trying to stay positive but the anxiety wins. It has
Raez13
in
Anxiety and Depression Support
2 years ago
Please join us Tuesday September 20th for our Lung Cancer Living Room, Resistance to Targeted Therapy and Immunotherapy. What Happens Next?
Hello, Please join us Tuesday, September 20th, for our Living Room discussion. We will have speaker Dr. David Gandara, from UC Davis Cancer Center. Dr. Gandara will be speaking on "Resistance to Targeted Therapy and Immunotherapy. What Happens Next? ". The conversation will be detailing resistance
Hello, Please join us Tuesday, September 20th, for our Living Room discussion. We will have speaker Dr. David Gandara, from UC Davis Cancer Center. Dr. Gandara will be speaking on "Resistance to Targeted Therapy and Immunotherapy. What Happens Next? ". The conversation will be detailing resistance
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Join Us! Lung Cancer Walk/Runs this Fall
Hi there! My name is Bridget and I'm part of the events team here at GO2 Foundation. I'm excited to share that we have three, in-person walk/runs coming up where you can connect with your local lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis and we'd
Hi there! My name is Bridget and I'm part of the events team here at GO2 Foundation. I'm excited to share that we have three, in-person walk/runs coming up where you can connect with your local lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis and we'd
bpurchGO2
in
Lung Cancer Support
2 years ago
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