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Non-small-cell lung carcinoma
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Technical terms explanation & treatment
Hello all, I've written before about my wife's diagnosis which was T3 N3 M1b Adenocarcinoma of the left upper lobe of lung. Since then she's had a guided needle biopsy which has provided the information all previous tests and scans had failed to uncover. As a result the diagnosis reads as before but
Hello all, I've written before about my wife's diagnosis which was T3 N3 M1b Adenocarcinoma of the left upper lobe of lung. Since then she's had a guided needle biopsy which has provided the information all previous tests and scans had failed to uncover. As a result the diagnosis reads as before but
scotleag
in
The Roy Castle Lung Cancer Foundation
2 years ago
Any advice or help please
I had left lung removed 2yrs ago, told last nov, that cancer was now in right lung.was put on pallative care? No follow ups only phone calls fortnightly.But found out that the drug Pembrolizumab is working very well to extend life especialy for lung cancer patients.Has anyone else heard of this? and
I had left lung removed 2yrs ago, told last nov, that cancer was now in right lung.was put on pallative care? No follow ups only phone calls fortnightly.But found out that the drug Pembrolizumab is working very well to extend life especialy for lung cancer patients.Has anyone else heard of this? and
ginja3
in
The Roy Castle Lung Cancer Foundation
2 years ago
Here we go again!
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
broomfield28
in
PMRGCAuk
2 years ago
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First FDA Approved Targeted Therapy for HER2, Enhertu, for the Treatment of NSCLC With an Activating HER2 Mutation
On August 11th, 2022, the Food and Drug Administration (FDA) approved Enhertu (fam- trastuzumab deruxtecan-nxki) for treatment of advanced non-small cell lung cancer (NSCLC) with an activating HER2 mutation for patients who have received one prior line of therapy. The FDA based their approval on the
On August 11th, 2022, the Food and Drug Administration (FDA) approved Enhertu (fam- trastuzumab deruxtecan-nxki) for treatment of advanced non-small cell lung cancer (NSCLC) with an activating HER2 mutation for patients who have received one prior line of therapy. The FDA based their approval on the
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
Mum recently diagnosed with Lung Cancer.
My 78year old mum has recently been diagnosed with possible lung cancer, following a CT scan. After the results she has had stents fitted in each lung and a Biopsey. She received two letters on Saturday, one addressed to her for an appointment Biops y results and a second addressed to my mum's GP
My 78year old mum has recently been diagnosed with possible lung cancer, following a CT scan. After the results she has had stents fitted in each lung and a Biopsey. She received two letters on Saturday, one addressed to her for an appointment Biops y results and a second addressed to my mum's GP
grayson99
in
The Roy Castle Lung Cancer Foundation
2 years ago
Pet scan question please
Hello I posted the the other day to say my dad has been diagnosed with squamous cell lung cancer , he has been referred to the surgeon regarding next steps . Now during the process of being diagnosed he had walking test, breathing test , echo as well as the needle biopsy. He also had a pet scan as well
Hello I posted the the other day to say my dad has been diagnosed with squamous cell lung cancer , he has been referred to the surgeon regarding next steps . Now during the process of being diagnosed he had walking test, breathing test , echo as well as the needle biopsy. He also had a pet scan as well
Concerned2021
in
The Roy Castle Lung Cancer Foundation
2 years ago
People of HealthUnlocked - COPD: Preparing for a Double Lung Transplant
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Dad been diagnosed with Squamous cell carcinoma . Need some help, guidance and support please
Hello, it was detected my dad he is 73 had an upper right lobe pulmonary nodule late Feb 22 as part of a pre op for a non cancer related matter . Was recommended that his local hospital followed up on this. Some time passed and only received an appointment 4 weeks ago. Several tests later including a
Hello, it was detected my dad he is 73 had an upper right lobe pulmonary nodule late Feb 22 as part of a pre op for a non cancer related matter . Was recommended that his local hospital followed up on this. Some time passed and only received an appointment 4 weeks ago. Several tests later including a
Concerned2021
in
The Roy Castle Lung Cancer Foundation
2 years ago
Ivermectin.
Hi all, my partner has lung cancer stage four he is currently ha img chemotherapy and immunotherapy treatment. His last scan they said he was stable so was able to have a break from treatment. We have been to America for a month, a friend of our’s there has recommended Ivermectin, has anybody tried this
Hi all, my partner has lung cancer stage four he is currently ha img chemotherapy and immunotherapy treatment. His last scan they said he was stable so was able to have a break from treatment. We have been to America for a month, a friend of our’s there has recommended Ivermectin, has anybody tried this
Jando2021
in
Lung Cancer Support
2 years ago
Shocking life expectancy
My wonderful husband (41) was diagnosed in February 22 with stage 3 in lung and lymph nodes. He's had chemo x 2 and immunotherapy then reduced to chemo x1 and immunotherapy as responded well. Last week, he found a new lump in his neck which after scans shows it has spread again. The disease in lung
My wonderful husband (41) was diagnosed in February 22 with stage 3 in lung and lymph nodes. He's had chemo x 2 and immunotherapy then reduced to chemo x1 and immunotherapy as responded well. Last week, he found a new lump in his neck which after scans shows it has spread again. The disease in lung
EmCx
in
The Roy Castle Lung Cancer Foundation
2 years ago
double lungs transplant
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
Purpal
in
Lung Conditions Community Forum
2 years ago
ET accelerated progression
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
Smdg
in
MPN Voice
2 years ago
Join Us! Tuesday, August 9th, Gathering HOPE, a Social Hour
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted now on our ZOOM link this coming Tuesday August 9th, at 5pm PT
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted now on our ZOOM link this coming Tuesday August 9th, at 5pm PT
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Off Tocilizumab after six months
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
redhouts
in
PMRGCAuk
2 years ago
LUNG CANCER PATIENT LUMP FOUND IN NECK.
I am heading to ENT tomorrow morning. Consultant found lump in my neck. I am panicking now. Could it be metastases from the lung cancer? I am also panicking as I cannot have a camera put up my nose into my throat whilst I am awake. I just know I can’t do it. Lumps in necks is not good news is it 😔
I am heading to ENT tomorrow morning. Consultant found lump in my neck. I am panicking now. Could it be metastases from the lung cancer? I am also panicking as I cannot have a camera put up my nose into my throat whilst I am awake. I just know I can’t do it. Lumps in necks is not good news is it 😔
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
Patients experience with RATS/VATS Lung surgery??
I have been frantically trying to decide whether to proceed with my scheduled surgery this month. It seems like it is the most logical choice, but Im afraid it is too risky and recovery is difficult. Can anyone share their hospital and/or home recovery experience with their surgery? Any advice?
I have been frantically trying to decide whether to proceed with my scheduled surgery this month. It seems like it is the most logical choice, but Im afraid it is too risky and recovery is difficult. Can anyone share their hospital and/or home recovery experience with their surgery? Any advice?
Hope2thrive
in
Lung Cancer Support
2 years ago
Seems a long time
My husband was diagnosed with Right upper lobe T3 N0 M0 non-small cell lung cancer in June 2021. Because he also has COPD they said they couldn’t operate so he was given 20 sessions of radiotherapy in October 2021. Since then he hasn’t seen his oncologist at all, just a phone call every 12 weeks. He
My husband was diagnosed with Right upper lobe T3 N0 M0 non-small cell lung cancer in June 2021. Because he also has COPD they said they couldn’t operate so he was given 20 sessions of radiotherapy in October 2021. Since then he hasn’t seen his oncologist at all, just a phone call every 12 weeks. He
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
tocilizumab after relapse
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Devoid
in
PMRGCAuk
2 years ago
Request - Real time experience Reco for the best haematologists in Portugal please
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Iwillwin123
in
PMRGCAuk
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
MPN Voice
2 years ago
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