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Raynauds Pain control
I have primary Raynauds, with several attacks daily. My rheumatologist said he isnt sure if it is or not due to lack of success with treatments; amlodipine, nifedipine, losartan, felodipine, fluoxetine (trial), sildenafil, iloprost and I'm trying naftidrofuryl at the minute with no success so far. My
I have primary Raynauds, with several attacks daily. My rheumatologist said he isnt sure if it is or not due to lack of success with treatments; amlodipine, nifedipine, losartan, felodipine, fluoxetine (trial), sildenafil, iloprost and I'm trying naftidrofuryl at the minute with no success so far. My
BertieB_280616
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
My Biggest Concern [ besides anxiety ] In This New Year Is If I Am Being Over Medicated ?
Xanax Oral > Hyzaar Oral > Paxil Oral > bisoprolol fumarate Oral > omeprazole Oral > Tizanidine Oral > nifedipine Oral !* [not counting any otc's you may need from time to time] Just A Little Over A Year Ago. I Was On NOTHING !* Then BAM !* All Of A Sudden ? Here Comes My Anxiety Disorder Again Outa
Xanax Oral > Hyzaar Oral > Paxil Oral > bisoprolol fumarate Oral > omeprazole Oral > Tizanidine Oral > nifedipine Oral !* [not counting any otc's you may need from time to time] Just A Little Over A Year Ago. I Was On NOTHING !* Then BAM !* All Of A Sudden ? Here Comes My Anxiety Disorder Again Outa
TriggerPoint
in
Anxiety and Depression Support
6 years ago
DO YOU FEEL YOU "DOCTORS" ARE MONITORING "YOUR" MED INTERACTIONS AS CLOSELY AS THEY SHOULD ?*
I HATE Being Dependent On Meds !* I Read ALL About Them Too. Side Effects & The Whole Nine Yards. These Are The One's Right Now: Xanax Oral, celecoxib Oral, tizanidine Oral, omeprazole Oral, Paxil Oral, Hyzaar Oral, bisoprolol fumarate Oral, & nifedipine Oral . What Do They ALL Have In Common ?
I HATE Being Dependent On Meds !* I Read ALL About Them Too. Side Effects & The Whole Nine Yards. These Are The One's Right Now: Xanax Oral, celecoxib Oral, tizanidine Oral, omeprazole Oral, Paxil Oral, Hyzaar Oral, bisoprolol fumarate Oral, & nifedipine Oral . What Do They ALL Have In Common ?
TriggerPoint
in
Anxiety Support
6 years ago
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DO YOU FEEL YOU "DOCTORS" ARE MONITORING "YOUR" MED INTERACTIONS AS CLOSELY AS THEY SHOULD ?*
I HATE Being Dependent On Meds !* I Read ALL About Them Too. Side Effects & The Whole Nine Yards. These Are The One's Right Now: Xanax Oral, celecoxib Oral, tizanidine Oral, omeprazole Oral, Paxil Oral, Hyzaar Oral, bisoprolol fumarate Oral, & nifedipine Oral . What Do They ALL Have In Common ? Tiredness
I HATE Being Dependent On Meds !* I Read ALL About Them Too. Side Effects & The Whole Nine Yards. These Are The One's Right Now: Xanax Oral, celecoxib Oral, tizanidine Oral, omeprazole Oral, Paxil Oral, Hyzaar Oral, bisoprolol fumarate Oral, & nifedipine Oral . What Do They ALL Have In Common ? Tiredness
TriggerPoint
in
Anxiety and Depression Support
6 years ago
WHY AM I ON ALL THESE MEDS ?* I'M LIKE, "WOW" !* I JUST TURNED 61 & HAVE ALL THIS ?* WHEN MOST TESTS SAY NOTHING SERIOUS ?* BOTHERS ME !*
Xanax Oral > celecoxib Oral > tizanidine Oral > omeprazole Oral > Paxil Oral > Hyzaar Oral > bisoprolol fumarate Oral > nifedipine Oral > diphenhydramine oral & A FEW MORE !*.... This Is NUTS !*...In My Tests There's Been Nothing Really Serious To Cause Allot Of My Symptoms ? Yet ? Here We Are !*
Xanax Oral > celecoxib Oral > tizanidine Oral > omeprazole Oral > Paxil Oral > Hyzaar Oral > bisoprolol fumarate Oral > nifedipine Oral > diphenhydramine oral & A FEW MORE !*.... This Is NUTS !*...In My Tests There's Been Nothing Really Serious To Cause Allot Of My Symptoms ? Yet ? Here We Are !*
TriggerPoint
in
Anxiety Support
6 years ago
Amlodipine
I have SSc and take nifedipine for rays with good effect but have had a lot of oedema, flushing and night sweat so consultant advised trying amlodipine. Started it Sat and have had terrible insomnia since, barely slept for 3 nights and struggled at work yesterday. Has anyone had or heard of this? Is
I have SSc and take nifedipine for rays with good effect but have had a lot of oedema, flushing and night sweat so consultant advised trying amlodipine. Started it Sat and have had terrible insomnia since, barely slept for 3 nights and struggled at work yesterday. Has anyone had or heard of this? Is
amd21
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Teen support?
Hello everyone. I’ve just joined on behalf of my 14 year old daughter who was diagnosed with Raynauds a couple of years ago. It is in the family. I have two questions please. First, are there any support groups for young people, or indeed teenage members here? The problems she has at school with Raynauds
Hello everyone. I’ve just joined on behalf of my 14 year old daughter who was diagnosed with Raynauds a couple of years ago. It is in the family. I have two questions please. First, are there any support groups for young people, or indeed teenage members here? The problems she has at school with Raynauds
CSC39
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Getting bitten by mosquitoes! Do I need to be concerned?
So I've just come back from a lovely 10 day holiday in Barcelona and then Majorca, and it was so lovely and relaxing after my exams. Luckily it appears that I haven't got any photosensitivity but I have been bitten all over my right calf by the local bugs despite using DEET! I'm usually very bug repellent
So I've just come back from a lovely 10 day holiday in Barcelona and then Majorca, and it was so lovely and relaxing after my exams. Luckily it appears that I haven't got any photosensitivity but I have been bitten all over my right calf by the local bugs despite using DEET! I'm usually very bug repellent
AmyJ3
in
LUPUS UK
6 years ago
Hydroxychloroquine
Hi I had my first appointment this with the rheumatologist who has started me on Hydroxychloroquine along with nifedipine also on a course of steroids for 4 weeks and drops for my dry eyes ! Anyone else on this ? I know it’s going to take a while to feel any benefit from it . He did say they can also
Hi I had my first appointment this with the rheumatologist who has started me on Hydroxychloroquine along with nifedipine also on a course of steroids for 4 weeks and drops for my dry eyes ! Anyone else on this ? I know it’s going to take a while to feel any benefit from it . He did say they can also
PLMurphy
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Newly Diagnosed
After suffering with Raynaud’s for a couple of years I finally saw a rheumatologist about 6 weeks ago. Blood tests reveal that I am anticentromere antibody positive with Systemic Sclerosis, which I understand used to be called CREST Syndrome. She has organised a whole host of further tests, bloods, X-rays
After suffering with Raynaud’s for a couple of years I finally saw a rheumatologist about 6 weeks ago. Blood tests reveal that I am anticentromere antibody positive with Systemic Sclerosis, which I understand used to be called CREST Syndrome. She has organised a whole host of further tests, bloods, X-rays
Cubbikins
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Experience of Iloprost infusion?
Hi all, long post incoming but I need some advice/help!! I am a 24yo female was diagnosed with Primary Raynaud’s when I was 11 and I suffer with it pretty severely, usual stuff.. not fun. Have a history of not tolerating Nifedipine which is all they tried when I was younger. Have tried nifedipine and
Hi all, long post incoming but I need some advice/help!! I am a 24yo female was diagnosed with Primary Raynaud’s when I was 11 and I suffer with it pretty severely, usual stuff.. not fun. Have a history of not tolerating Nifedipine which is all they tried when I was younger. Have tried nifedipine and
celvo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
This is a call out for. Do you feel down after your 3 month rheumatology review for Lupus?
Hi all - I've just received my rheumatology review letter and am really down and very tearful. I feel helpless and hopeless suddenly. I have Lupus SLE (diagnosed this Feb but Rheumy thinks I've had it since birth) and the plan is for me to continue on Methotrexate and now folic acid 6 days a week. I
Hi all - I've just received my rheumatology review letter and am really down and very tearful. I feel helpless and hopeless suddenly. I have Lupus SLE (diagnosed this Feb but Rheumy thinks I've had it since birth) and the plan is for me to continue on Methotrexate and now folic acid 6 days a week. I
DJK99
in
LUPUS UK
6 years ago
Productive GP appointment today
After messing about for 2 weeks waiting for a GP phone call, I hand delivered a letter to the surgery last week listing what I needed to talk about and was rewarded with a loooong face-face appointment today. 1. Back, hip and leg pain. We discussed the fact that this pain has been present for a long
After messing about for 2 weeks waiting for a GP phone call, I hand delivered a letter to the surgery last week listing what I needed to talk about and was rewarded with a loooong face-face appointment today. 1. Back, hip and leg pain. We discussed the fact that this pain has been present for a long
flap7
in
LUPUS UK
6 years ago
More good news for me.
Saw Cardiologist a few days ago after we had a disagreement last time I saw her about adding yet another pill to mix. Rheumy told me to wait until results of the last echo was done before making a decision. Cardio wanted me to stop my Nifedipine (needed for my Raunauds) and take another drug-not suitable
Saw Cardiologist a few days ago after we had a disagreement last time I saw her about adding yet another pill to mix. Rheumy told me to wait until results of the last echo was done before making a decision. Cardio wanted me to stop my Nifedipine (needed for my Raunauds) and take another drug-not suitable
Ozchick
in
Hughes Syndrome APS Forum
6 years ago
Reasons why drugs won’t work for Raynauds?
Hello to anyone reading. I have secondary Raynauds and Systemic Sclerosis. I don’t know if anyone can answer my question, but does anyone know why medication wouldn’t work for Raynauds? I’ve tried Nifedipine, 75mg losartan and now Sildenafil but nothing seems to touch it and wondered why? Why wouldn’
Hello to anyone reading. I have secondary Raynauds and Systemic Sclerosis. I don’t know if anyone can answer my question, but does anyone know why medication wouldn’t work for Raynauds? I’ve tried Nifedipine, 75mg losartan and now Sildenafil but nothing seems to touch it and wondered why? Why wouldn’
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
I’m going to see Professor Denton! 😊
Hi there. I saw my Rheumatologist today for a medication review. I started taking nifedipine (for Raynauds) but had to stop because it made me feel very unwell. They then started me on 25mg losartan increasing to 50mg and then 75mg with no effect, so I have now been prescribed Sildenafil 25mg - 50mg
Hi there. I saw my Rheumatologist today for a medication review. I started taking nifedipine (for Raynauds) but had to stop because it made me feel very unwell. They then started me on 25mg losartan increasing to 50mg and then 75mg with no effect, so I have now been prescribed Sildenafil 25mg - 50mg
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
All new to me! Help!
Hi! I’m just looking for some advice and support really. This is all so new to me! I was referred to a specialist in September 2017 after experiencing some dodgy symptoms along with quite severe Raynaud's which I have had since a young teenager. I’ve also always been prone to infections. My specialist
Hi! I’m just looking for some advice and support really. This is all so new to me! I was referred to a specialist in September 2017 after experiencing some dodgy symptoms along with quite severe Raynaud's which I have had since a young teenager. I’ve also always been prone to infections. My specialist
Dani_7
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Hand/wrist pain but negative rh blood test. Raynauds diagnosed but is it secondary?
Hi there, A few years back I was diagnosed with Raynauds however I have noticed over the past 6 months or so I’ve started to struggle with everyday jobs using my right hand. Hoovering causing cramp and feeling weakness in my wrist when holding a mug so I’ve been using my left hand more often. I started
Hi there, A few years back I was diagnosed with Raynauds however I have noticed over the past 6 months or so I’ve started to struggle with everyday jobs using my right hand. Hoovering causing cramp and feeling weakness in my wrist when holding a mug so I’ve been using my left hand more often. I started
confusedkatie
in
NRAS
6 years ago
Amlodipine for Raynaud's?
I was diagnosed with Raynaud's (cold hands) about 5 years ago, and my doctor put me on Nifedipine ER which has helped significantly. I just got a notice from my drug insurance provider that for next year they will no longer covers the cost of Nifedipine, and suggest Amlodipine Besylate instead. The
I was diagnosed with Raynaud's (cold hands) about 5 years ago, and my doctor put me on Nifedipine ER which has helped significantly. I just got a notice from my drug insurance provider that for next year they will no longer covers the cost of Nifedipine, and suggest Amlodipine Besylate instead. The
shedridc
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
how to mix cinnamon and honey for more then one items
I want to treat gas, fatigue , hearing loss , high blood pressure , and a few other things .My x doctor had me on 60 mg of Nifedipine it was only reducing my pressure to 140/80 and there was times it was above that reading so he increased it to 90 mg and that didn't help . i decided to become my own
I want to treat gas, fatigue , hearing loss , high blood pressure , and a few other things .My x doctor had me on 60 mg of Nifedipine it was only reducing my pressure to 140/80 and there was times it was above that reading so he increased it to 90 mg and that didn't help . i decided to become my own
hammer44
in
Healthy Eating
7 years ago
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