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Recommendations for gloves?
Hi All, Thank your letting me join your community. I have primary Raynaud’s and was wondering if anyone had any recommendations for gloves that people have found helpful? I have a skiing holiday coming up (probably not the most sensible idea in hindsight from my hands and feet’s perspective lol) so was
Hi All, Thank your letting me join your community. I have primary Raynaud’s and was wondering if anyone had any recommendations for gloves that people have found helpful? I have a skiing holiday coming up (probably not the most sensible idea in hindsight from my hands and feet’s perspective lol) so was
citygirl1234
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Insurance denials
Can anyone advise me as to how to get insurance approval for a ganglion impar block? My husband is completely debilitated with excruciating anal/rectal pain that began 20 months ago. After months of agony, visits to multiple specialists, trying lidocaine, Valium suppositories, nifedipine, hydrocortisone
Can anyone advise me as to how to get insurance approval for a ganglion impar block? My husband is completely debilitated with excruciating anal/rectal pain that began 20 months ago. After months of agony, visits to multiple specialists, trying lidocaine, Valium suppositories, nifedipine, hydrocortisone
PatientRN
in
Pelvic Pain Support Network
5 years ago
Ramipril dose increase - BP has soared
Hi, I'm new to this forum but have been reading with interest about other people's experience of Ramipril. I was put on Nifedipine last year, then had Ramipril added but was switched to 5mg Ramipril only in June by a new doctor. All seemed fine at first, pressure was down and have felt well - not had
Hi, I'm new to this forum but have been reading with interest about other people's experience of Ramipril. I was put on Nifedipine last year, then had Ramipril added but was switched to 5mg Ramipril only in June by a new doctor. All seemed fine at first, pressure was down and have felt well - not had
CJ70
in
British Heart Foundation
5 years ago
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First time post, swollen lower legs prescribed nifedipine
Hello, this is my first post and I’m wondering if anyone else has the same symptoms as me. I was diagnosed several years ago with raynauds and have been self managing until recently. I booked a GP appt a few months back as was suffering with swollen and burning lower legs, feet were so swollen I couldn
Hello, this is my first post and I’m wondering if anyone else has the same symptoms as me. I was diagnosed several years ago with raynauds and have been self managing until recently. I booked a GP appt a few months back as was suffering with swollen and burning lower legs, feet were so swollen I couldn
Mycatishoney
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Raynaurds Back Body and organs possibly for me ? I am a new soul hear not a young one. I support broken back broken ribs enthusiasm rules
I have recently been diagnosed with Raynaurds Phenomenon to my complete surprise. As I went to Doctor about very painful thumbs. Doctor saw something i had not, and cold hand went to Arthritics consultant he diagnosed Raynaurds, Osteoarthritis, and carpel tunnel, thought life was feel difficult, I
I have recently been diagnosed with Raynaurds Phenomenon to my complete surprise. As I went to Doctor about very painful thumbs. Doctor saw something i had not, and cold hand went to Arthritics consultant he diagnosed Raynaurds, Osteoarthritis, and carpel tunnel, thought life was feel difficult, I
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Nifedipine/ Coracten
Hi, I've been on Nifedipine 20mg (Adalat Retard) twice daily for about 5 years to help control painful spasms in my forearms related to Raynauds/Scleroderma. I'm also on Carbamazepine, Aspirin, Co-codamol, and Illoprost every 6 months. The recent change to Coracten I think has led to side effects which
Hi, I've been on Nifedipine 20mg (Adalat Retard) twice daily for about 5 years to help control painful spasms in my forearms related to Raynauds/Scleroderma. I'm also on Carbamazepine, Aspirin, Co-codamol, and Illoprost every 6 months. The recent change to Coracten I think has led to side effects which
Gxmouse
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Nifedipine
Hi has anyone been given nifedipine 30mg for blood pressure and white finger
Hi has anyone been given nifedipine 30mg for blood pressure and white finger
Hamishmac
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Medication
Hi can anyone tell me what medication they are on for Raynauds as I have been told by the doctors they have stoped Nifedipine thank you
Hi can anyone tell me what medication they are on for Raynauds as I have been told by the doctors they have stoped Nifedipine thank you
160376
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Pregnant @6 weeks
I have hypertension possibly due to CKD according to my doctors. Found out a couple of weeks ago that I’m pregnant so doctors switched me from Benazepril 40 to Amlodipine 5 to Nifedipine 60. Took them today and boy my heart starts racing. Looked it up and possible side effect is Tachycardia. This made
I have hypertension possibly due to CKD according to my doctors. Found out a couple of weeks ago that I’m pregnant so doctors switched me from Benazepril 40 to Amlodipine 5 to Nifedipine 60. Took them today and boy my heart starts racing. Looked it up and possible side effect is Tachycardia. This made
htnckd3
in
Kidney Disease
5 years ago
Update on Nifedipine
Hi all, Thank you to everyone who responded to my previous post. Just to clarify it’s the Bayer Adalat Nifedipine that is no longer available. I’ve now been prescribed Coracten which is another brand of Nifedipine. They don,t do the 5mg ones so I’m on the 20mg moderate release so hopefully they will
Hi all, Thank you to everyone who responded to my previous post. Just to clarify it’s the Bayer Adalat Nifedipine that is no longer available. I’ve now been prescribed Coracten which is another brand of Nifedipine. They don,t do the 5mg ones so I’m on the 20mg moderate release so hopefully they will
M0nt1
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Article on Nifedipine
Here’s the article about discontinuing Nifedipine. I’ll try and find out more tomorrow
Here’s the article about discontinuing Nifedipine. I’ll try and find out more tomorrow
M0nt1
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Nifedipine alternatives ?
Hi, can anyone help please. I have been using nifedipine 5mg 3 times a day for about a year to manage my Raynauds. However the pharmacy can no longer get these or others. They got 20mg before but these are no longer available. I’ve read an article saying all nifedipine by Bayer is being discontinued.
Hi, can anyone help please. I have been using nifedipine 5mg 3 times a day for about a year to manage my Raynauds. However the pharmacy can no longer get these or others. They got 20mg before but these are no longer available. I’ve read an article saying all nifedipine by Bayer is being discontinued.
M0nt1
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
More questions than answers
Hi, I'm new here. I have been having severe anal pain for about 4 months now. It started after a bout of constipation which caused hemorrhoids and an anal fissure. Over the months the pain worsened exponentially and my surgeon recommended a hemorroidectomy, which I had one month ago. Since surgery the
Hi, I'm new here. I have been having severe anal pain for about 4 months now. It started after a bout of constipation which caused hemorrhoids and an anal fissure. Over the months the pain worsened exponentially and my surgeon recommended a hemorroidectomy, which I had one month ago. Since surgery the
mipdgal
in
Pelvic Pain Support Network
5 years ago
Primary Raynauds not CREST
I’m really confused. The gp I spoke with a few weeks ago was great and advised bloods to check for crest. I’ve just seen a different gp for results and apparently everything is fine apart from low folate. Although she has put me on nifedipine stating she thinks I may have had Raynauds for a long time
I’m really confused. The gp I spoke with a few weeks ago was great and advised bloods to check for crest. I’ve just seen a different gp for results and apparently everything is fine apart from low folate. Although she has put me on nifedipine stating she thinks I may have had Raynauds for a long time
Frozen18
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Raynaud's - open sore and general confusion!
Hi! MY BACKGROUND: I was diagnosed with Raynaud's in early 2015, after suffering with it for around 2 years previously. My toes are affected much more than my fingers, and from time to time I have developed chillblains and sore areas on my toes during the winter months. I get discolouration, the numbness
Hi! MY BACKGROUND: I was diagnosed with Raynaud's in early 2015, after suffering with it for around 2 years previously. My toes are affected much more than my fingers, and from time to time I have developed chillblains and sore areas on my toes during the winter months. I get discolouration, the numbness
SpinyHog
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Raynaud's, Looking for advice.
Went to see another specialist, I had been diagnosed with primary Rays about 3 years ago. The 1st specialist started to doubt his diagnosis after lack of success with medications; Amlodipine Nifedipine Losartan Felodipine Iloprost Sildenafil Fluoxetine Naftidrofuryl I had a nail capillaroscopy which
Went to see another specialist, I had been diagnosed with primary Rays about 3 years ago. The 1st specialist started to doubt his diagnosis after lack of success with medications; Amlodipine Nifedipine Losartan Felodipine Iloprost Sildenafil Fluoxetine Naftidrofuryl I had a nail capillaroscopy which
BertieB_280616
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Nifedipine and Gastroparosis
I started on Nephedipine 30mg. It did not work. My dosage was increased to 60mg. This amount worked a little. I was then increased to 90mg. and this worked great! However, my gastroparesis symptoms returned...nauseous in morning and increased bloating throughout the day. I am now back on 60mg. and am
I started on Nephedipine 30mg. It did not work. My dosage was increased to 60mg. This amount worked a little. I was then increased to 90mg. and this worked great! However, my gastroparesis symptoms returned...nauseous in morning and increased bloating throughout the day. I am now back on 60mg. and am
Berniz
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Anyone had success with Tadalafil for treating severe Raynauds?
Hello all I have Systemic Sclerosis and Secondary Raynauds. Have tried (all separately) Nifedipine, Losartan 75mg, then Sildenfil, GTN patches, combined Losartan and Fluoxetine all with NO success. Professor Denton has mentioned that I am a candidate for Tadalifil. Just wondering if anyone has had success
Hello all I have Systemic Sclerosis and Secondary Raynauds. Have tried (all separately) Nifedipine, Losartan 75mg, then Sildenfil, GTN patches, combined Losartan and Fluoxetine all with NO success. Professor Denton has mentioned that I am a candidate for Tadalifil. Just wondering if anyone has had success
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Hi I'm new, have Reynauds and am. Exhausted
I've suffered from Reynauds symptoms for as long as I can remember. I'm 40 and have finally found a gp willing to listen who has prescribed nifedipine. Just over a year ago bloods showed I'm deficient in vitamin d. I'm exhausted, cold, itchy, have on and off heart burn and constipation. Also suffering
I've suffered from Reynauds symptoms for as long as I can remember. I'm 40 and have finally found a gp willing to listen who has prescribed nifedipine. Just over a year ago bloods showed I'm deficient in vitamin d. I'm exhausted, cold, itchy, have on and off heart burn and constipation. Also suffering
Bashfulwhite
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Not a bad appointment
I attend my rheumy appointment today and it went quite well. She’s put me back on my leflunomide and 2 weekly blood monitoring. If my liver goes up again she’ll send me for a scan to have a look. She’s going to push my physio referral again as I’m still waiting. She’s given me nifedipine to try and
I attend my rheumy appointment today and it went quite well. She’s put me back on my leflunomide and 2 weekly blood monitoring. If my liver goes up again she’ll send me for a scan to have a look. She’s going to push my physio referral again as I’m still waiting. She’s given me nifedipine to try and
LouLamb
in
LUPUS UK
5 years ago
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