Medication

[160376]

Hi can anyone tell me what medication they are on for Raynauds as I have been told by the doctors they have stoped Nifedipine thank you

[kes07]

I've been to the doctor's this morning she put me on the slow release ones thats still available at the moment.

[160376 in reply to kes07]

Thank you are they helping at all?

[kes07 in reply to 160376]

Just got them this morning so time will tell. She did say they come in stronger doses so I can go up if I need to.

[160376 in reply to kes07]

I hope they work for you,

[Hidden]

I could’ve tolerate nifedipine so now on Losartan. It seems to help both my Raynaud’s and hypertension

[160376 in reply to Hidden]

Thank you I will have to see what the rheumatologist says as what I should try next

[amd21]

I was on nifedipine but due to side effects (sweating+++) switched to amlodipine. Its not as good but I don't have to change sheets every day and change shirts at lunchtime, so u know swing & roundabouts, i take a variable dose of 0/5/10 depending on circumstances & weather I.e. winter 10 yesterday 10 as was going cycling on the coast and was windy but today 5 as I'm mainly staying in. When its warmer I often don't take it unless planning to go supermarket. But I'm normotensive so only on it for rays.

[160376 in reply to amd21]

Thank you for your reply

[160376 in reply to amd21]

Thank you for your reply

[Sosie]

I take lacidipine 4mg a day plus sildenafil 25mg x3 per day. I am allergic to nifidipine and felodopine and my GP gave me lacidipine as an alternative. Works quite well for me and no side effects.

[Sanmateogirl107]

amlodipine 10mg ask your doctor. they should of told you. it opens the arteries in your hands and fingers 1 time a day. go see an immune specialist and rheumatologist, pain doctor, they can help you. i am sorry your going through this. warmer climate also. probiotics, tumerick help destroy auto immune disease. also fish oil. good luck love julieanna.

[-missymoo]

I tried Nifedipine but had a reaction, then 75mg Losartan which didn’t touch my Raynauds, then Sildenifil, again reacted, then GTN patches (nasty side effects) then they tried a combination of Losartan and Fluoxitine. Nothing has helped my symptoms yet ☹️

Good luck 😉

[Haneefa123]

5mg of nifedipine is a manufacturer problem. My daughter takes 10mg at once instead of two 5mg tablets

[M0nt1]

I’ve just switched to Coracten which is another type of Nifedipine as all the dosages of Nifedipine are being discontinued. Doesn’t seem to be as effective but I’m taking more now and seems to work

[160376 in reply to M0nt1]

That’s good that it’s working for you my doctor said she won’t give me anything I have to wait till I see the Rheumatologist in three weeks I have had Raynauds for over two years a toes ulcer yet I have not had any treatment the Rheumatologist said to get the doctor to prescribe nifedipine but chemist said it’s been stoped so that’s it nothing till June when I see Rheumatologist great

[babygirl123]

Hi, I have just started taking Lercanidipine 10mg once a day as a trial for 28 days because nifedipine not available any more. It is usualy for problms with high bp but is being used to see if it could replace nifedipine. Only been taking it for 5 days, no problems so far. It is a slow release tablet and i was told 10mg of the new one is the same as taking 10mg 3 times a day of nifidepine, we will see . Fingers crossed

[160376]

Hi babygirl123 hope it works for you I now have to wait till June 7 to see the Rheumatologist again as my doctor won’t give me anything until I have seen the Rheumatologist to see what she wants me to start

[Kingfisherblue2009]

I have been on a new medication for Raynauds used by Royal London Free. My consultant has put his patients on it. I can say it has been the best results I have known for years. I know everyone is different. I have had Raynauds for about 30 years plus. I have been put on NitroDur 0.4mg.hr 10mg/24hr patch. Every morning I change the patch. I find it helps with the pain from Raynauds and keeps me a lot warmer. It was a killer getting the first week in my system. I nearly gave up. Because it is the worst headache for a few days and felt so ill. Afterwards it goes away. It comes in three different doses. I am taking the middle dosage. I would say to anyone if your offered this. Do it.

[160376 in reply to Kingfisherblue2009]

Wow where is your consultant then as they have stoped Ranitidine now my doctor want give me anything until I have seen my Rheumatologist again in June I will ask her about it thanks

[Kingfisherblue2009]

My consultant Telford Shropshire. He said that professor Chris Denton Royal London Free was using this patch and great results. Honest get through the headache for a few days. You start the patch about 6 hours first day and build up the hours and i had the patch on 24 hours within about 5 days. It really made a difference to my Raynauds especially through the winter.

[160376 in reply to Kingfisherblue2009]

Will talk to my Rheumatologist in the 7th June thanks for the information

[MFC911]

Just for the record. Nifedipine is generic. Adalat is not currently on the shelves. According to Bayer it will be returning in 2021. God only knows why they are messing about with it. It is causing problems everywhere.

That said, there are many other brands of Nifedipine avalible all of which are comparable with Adalat. No need to worry. All the same stuff, different

packaging.