slow release nifedipine

[PBMB]

hi ,

Just wondering people’s thoughts and experiences . It’s a last resort for me I’ve tried everything else .

Is it useful for attacks ? Side effects ?

getting frequent attacks and fingers are so sore now

TIA

[castlewalks]

Hi, I find it to be really good. I’m on 60 mg daily - I had also been prescribed sildenafil but it didn’t agree with me.

[Chumpy]

I'm on this 60mg a day it helps I still have symptoms but don't seem quite as bad Don't get any side effects

I was also taking hrt I have now come off this after talking to the doctor as it appeared to be making my raynaurds worse

I'm still waiting on an appointment on rheumatology hopefully get some more answers then x

[PBMB in reply to Chumpy]

Thanks for reply . I have just started 10 mg twice a day with a view to increasing .

I have a rheumatology appointment in jan too but I’ve tried most other meds with no luck 😟

[Chumpy in reply to PBMB]

I have found that the 60mg tablets once a day helped more than taking them 3 times a day so it may be worth enquiring about that if you have to up your dosage hope you get some answers from rheumatology

[Midgebite21]

I have been on nifedipine slow release for years. It doesn’t prevent attacks but definitely reduces the intensity and duration. I did get side effects when I first started them. Headaches, nausea, lightheadedness but I just pushed through as I knew they would settle. I found it easier to take the first does in the evening when I had less to do and could rest or go to bed and hopefully sleep through the worst of it. Also if you can start on a weekend/days you don’t have to go out to work.

The medication isn’t the full story when dealing with Raynauds unfortunately. It’s just part of the journey. I still have to use everything else in my armoury to mitigate attacks like hats, gloves, scarves, merino wool socks, shearling lined boots, thermal layers, cosy jumpers, windproof coat and avoidance of triggers like drafts, cold damp windy weather (living in Scotland that is quite hard).

Since starting them though I rarely get digital ulcers or broken down open chilblains and if I do, I can up my dose a little and they heal faster. Hope you manage to tolerate them.

[Kaycee97]

I have tried slow release and standard nifedipine but sadly I wasnt able to tolerate them. I was only on 15mg slow release too but the headaches were quite unbearable and I gave them time to settle. I was then given Amlodopine but after a couple of weeks my feet swelled and I couldnt get any shoes on! Then finally sildenefil which upset my stomach so sadly I have run out of options. I am currently trying high strength gingko biloba and oddly enough they do seem to have helped.

[PBMB in reply to Kaycee97]

That’s interesting . I tried sidenafil too

No side effects but didn’t make any difference to my attacks 😣

I have tried standard nifedipine but couldn’t tolerate side effects have started on 10 mg slow twice a day will see how this goes 🙏

[AJOC4]

I have been taking Nifedipine for 10 years or so. No side effects but do notice nasty attack of Reynaulds if I forget to take it. It is fast acting which is good for preventing nasty symptoms of an attack, but still get them.