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Help for my daughter's diagnosis please
She is 28, and for 5 years has suffered numbness in toes and finger and optic
neuritis
twice. Originally we paid privately to see a neurologist due to waiting times and nothing abnormal was found, although he did state he thought MS!.
She is 28, and for 5 years has suffered numbness in toes and finger and optic
neuritis
twice. Originally we paid privately to see a neurologist due to waiting times and nothing abnormal was found, although he did state he thought MS!.
Hidden
in
Pernicious Anaemia Society
3 years ago
Finally got home late last night!
To show that it was/is Optic
Neuritis
and not a blood clot. A WHAT? No clue about that!!! Probably a good thing they didn't tell me about that!!!๐ So now I'm home, tapering off the steroids! My eye is doing Alot better now!! Thank goodness!
To show that it was/is Optic
Neuritis
and not a blood clot. A WHAT? No clue about that!!! Probably a good thing they didn't tell me about that!!!๐ So now I'm home, tapering off the steroids! My eye is doing Alot better now!! Thank goodness!
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 years ago
Hello my luvs!
Bottom line is optic
neuritis
, 3days prednisone pills. Yuck!! And a in person visit next Tuesday and upcoming MRI to check on George. I am on Ocrevus, and having relaspes. It is not a miracle DMT and doesn't work for everyone! I don't care what anyone says! And PS I hate MS so bad right now!
Bottom line is optic
neuritis
, 3days prednisone pills. Yuck!! And a in person visit next Tuesday and upcoming MRI to check on George. I am on Ocrevus, and having relaspes. It is not a miracle DMT and doesn't work for everyone! I don't care what anyone says! And PS I hate MS so bad right now!
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 years ago
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Buggy eye's?
I don't think this is optic
neuritis
, but I don't know what it is.๐คฃ๐ Any ideas? ๐ Help Me! ๐ค๐๐ฆ
I don't think this is optic
neuritis
, but I don't know what it is.๐คฃ๐ Any ideas? ๐ Help Me! ๐ค๐๐ฆ
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 years ago
Vestibular problems
Cranial nerve
neuritis
finally seen and documented. Been fighting for this for over a year now! To those still struggling to find your champion super doctor, keep on keeping on. Youโll find one in time. They are rare. โค๏ธ
Cranial nerve
neuritis
finally seen and documented. Been fighting for this for over a year now! To those still struggling to find your champion super doctor, keep on keeping on. Youโll find one in time. They are rare. โค๏ธ
Jmiller623
in
LUPUS UK
4 years ago
Diagnosis
Optic
neuritis
referred to consultant neurologist cleared with steroids. Concerned I have MS. Feeling better for a couple of years before start feeling weird again.
Optic
neuritis
referred to consultant neurologist cleared with steroids. Concerned I have MS. Feeling better for a couple of years before start feeling weird again.
Treesl
in
LUPUS UK
4 years ago
God can heal you
Initially I was told it was probably multiple sclerosis due to an episode of optic
neuritis
on my left eye which left me blind for four weeks. However in 2014 I was seeing by professor Mark Edward the leading researcher of FND in the UK and he concluded that I had FND.
Initially I was told it was probably multiple sclerosis due to an episode of optic
neuritis
on my left eye which left me blind for four weeks. However in 2014 I was seeing by professor Mark Edward the leading researcher of FND in the UK and he concluded that I had FND.
Keeponfighting
in
Functional Neurological Disorder - FND Hope
4 years ago
Anyone under the age of 30
The steroids where for my eye o think optic
neuritis
type issue although they are not being very clear or investigating Especially now with CD19 I have terrible issues with my neck where my muscles as on my neck are weak I have problems with my eyes headaches floaters spine shakes sometimes and all
The steroids where for my eye o think optic
neuritis
type issue although they are not being very clear or investigating Especially now with CD19 I have terrible issues with my neck where my muscles as on my neck are weak I have problems with my eyes headaches floaters spine shakes sometimes and all
Buckley123
in
PMRGCAuk
4 years ago
Year 1 finished
I had a problem with my vision over the weekend and my neurologist feels that it is from when I had the flare up a year and a half ago when I had the optic
neuritis
.
I had a problem with my vision over the weekend and my neurologist feels that it is from when I had the flare up a year and a half ago when I had the optic
neuritis
.
Turtlepie
in
My MSAA Community
4 years ago
I need some advice
I had a brain scan which showed a lesion is apparently not the correct area for MS that some of you know just as a quick recap my mum had ms And unfortunately had lost her battle a year ago My lumbar puncher was negative my ace blood levels are twice what they should be Iโve had optic
neuritis
twice
I had a brain scan which showed a lesion is apparently not the correct area for MS that some of you know just as a quick recap my mum had ms And unfortunately had lost her battle a year ago My lumbar puncher was negative my ace blood levels are twice what they should be Iโve had optic
neuritis
twice
Buckley123
in
My MSAA Community
4 years ago
Newly diagnosed after years of problems
I had several episodes of what we thought were optic
neuritis
. I was being treated with IVIG during this time, and my flare-ups responded well the IVIG. My MRI remained normal. In March of 2018, my flare-ups changed. This time, it involved both legs at once.
I had several episodes of what we thought were optic
neuritis
. I was being treated with IVIG during this time, and my flare-ups responded well the IVIG. My MRI remained normal. In March of 2018, my flare-ups changed. This time, it involved both legs at once.
poppymom23
in
Functional Neurological Disorder - FND Hope
4 years ago
Just joined
But I first had optic
neuritis
in my early 20's and neurologist then had said if there had been more than 6 lesions he would have said it was MS. Only had brain MRI and 5 lesions.... now I'm on Tysabri, going on my 4th year...it seems to be working.
But I first had optic
neuritis
in my early 20's and neurologist then had said if there had been more than 6 lesions he would have said it was MS. Only had brain MRI and 5 lesions.... now I'm on Tysabri, going on my 4th year...it seems to be working.
DawnGochenour
in
My MSAA Community
4 years ago
Hey, Precious Mser Family!!๐๐
Ur body will ty sooo much too,,like mine has...Oh I still have my MS Moments,
neuritis
, Aches, but, over all am still in a good Remission..๐๐๐ Have a GR81!๐๐ Jazzi๐horse๐๐พcat ๐๐๐
Ur body will ty sooo much too,,like mine has...Oh I still have my MS Moments,
neuritis
, Aches, but, over all am still in a good Remission..๐๐๐ Have a GR81!๐๐ Jazzi๐horse๐๐พcat ๐๐๐
Jazzihorsecat
in
My MSAA Community
4 years ago
I'm New and My Ball Just Rolled into the Street . . .
Started with optic
neuritis
in my only good eye in 1995, told by a neurologist's student I had MS and would be in a wheelchair by the time I turned 40. Neurologist took over and I became a guinea pig ( and I can really squeall!). IV steroids, and regained98% vision.
Started with optic
neuritis
in my only good eye in 1995, told by a neurologist's student I had MS and would be in a wheelchair by the time I turned 40. Neurologist took over and I became a guinea pig ( and I can really squeall!). IV steroids, and regained98% vision.
CrazyCatWom
in
My MSAA Community
5 years ago
Antiphospholipid Antibodies Overlapping in Isolated Neurological Syndrome and Multiple Sclerosis: Neurobiological Insights & Diagnostic . .
Thus, typical demyelinating lesions of MS, transverse myelitis and optic
neuritis
, may also be present in the pathological spectrum of APS (Cikes et al., 2008).
Thus, typical demyelinating lesions of MS, transverse myelitis and optic
neuritis
, may also be present in the pathological spectrum of APS (Cikes et al., 2008).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
What the Heck do those codes Mean?
Human Stem Cell Therapy LP โ Lumbar Puncture (Spinal Tap) MRI โMagnetic Resonance Imaging NAC N-Acetylcysteine NMO โ Neuromyelitis optica PHSYCO-ME - โMental Meโ PBA - Pseudobulbar Affect RRMS โ Relapsing Remitting MS SPMS โ Secondary Progressive MS PRMS โ Progressive Relapsing MS PPMS - ON โ Optic
Neuritis
Human Stem Cell Therapy LP โ Lumbar Puncture (Spinal Tap) MRI โMagnetic Resonance Imaging NAC N-Acetylcysteine NMO โ Neuromyelitis optica PHSYCO-ME - โMental Meโ PBA - Pseudobulbar Affect RRMS โ Relapsing Remitting MS SPMS โ Secondary Progressive MS PRMS โ Progressive Relapsing MS PPMS - ON โ Optic
Neuritis
CalfeeChick
CommunityAmbassador
in
My MSAA Community
5 years ago
My most recent hypothesis
It finally occurs to me that this is residual damage from optic
neuritis
so many years ago. It's obviously (now that I think about it, duh) something to do with light/glare/my eyes. I may have to become a bat, live in a cave and come out only at dusk.
It finally occurs to me that this is residual damage from optic
neuritis
so many years ago. It's obviously (now that I think about it, duh) something to do with light/glare/my eyes. I may have to become a bat, live in a cave and come out only at dusk.
goatgal
in
My MSAA Community
5 years ago
Exactly what I was worried about!
After looking over all of my MRIs, and giving me a thorough exam AND having me "tell my story" from the last 10 yrs of symptoms, specialist visits and tests, he seemed confused as to how I was diagnosed (even tho I also had a relapse, optic
neuritis
last yr too).
After looking over all of my MRIs, and giving me a thorough exam AND having me "tell my story" from the last 10 yrs of symptoms, specialist visits and tests, he seemed confused as to how I was diagnosed (even tho I also had a relapse, optic
neuritis
last yr too).
cassielynn71
in
My MSAA Community
5 years ago
Neuritis
I have been diagnosed with neuropathy both motor and peripheral there is constant pain to all areas of my body. Can anyone offer any advice on pain relief please. Thank you
I have been diagnosed with neuropathy both motor and peripheral there is constant pain to all areas of my body. Can anyone offer any advice on pain relief please. Thank you
ceedy
in
Fibromyalgia Action UK
5 years ago
Is it possible for APS to be reversed?
In my 20's I developed Optic
Neuritis
following an extremely high fever. I later read that Optic
Neuritis
is common with MS and APS patients. I am not looking for problems that aren't there, however, I do want to prepare for what may be to come down the road. Any thoughts?
In my 20's I developed Optic
Neuritis
following an extremely high fever. I later read that Optic
Neuritis
is common with MS and APS patients. I am not looking for problems that aren't there, however, I do want to prepare for what may be to come down the road. Any thoughts?
myarabella
in
Hughes Syndrome APS Forum
5 years ago
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