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Gastroenterology telephone appointment
She is now suffering hair loss on top of peripheral neuropathy, optical
neuritis
and no help from GP. He said her bloods were normal (300) she takes supplements but not helping. I have written a letter to her GP, she won't send yet. What will the gastro be looking for?
She is now suffering hair loss on top of peripheral neuropathy, optical
neuritis
and no help from GP. He said her bloods were normal (300) she takes supplements but not helping. I have written a letter to her GP, she won't send yet. What will the gastro be looking for?
Hidden
in
Pernicious Anaemia Society
4 years ago
Neuritis/ neuralgia ?
Maybe once or twice a year I get a stabbing pain in my ear but doctor says it’s not ear infection. Also the most annoying part is a tingly/irritated scalp that is perfectly divided down the middle to one side only. It’s like a feeling of “aarrrgggghhhh don’t touch that”. Any ideas ??
Maybe once or twice a year I get a stabbing pain in my ear but doctor says it’s not ear infection. Also the most annoying part is a tingly/irritated scalp that is perfectly divided down the middle to one side only. It’s like a feeling of “aarrrgggghhhh don’t touch that”. Any ideas ??
Uncutdad
in
Men's Health Forum
4 years ago
Ms or not
I have optic apathy of the left eye so not quite optic
neuritis
. My lumbar puncture was negative for MS my bloods for lupus are negative also and my neurologist is London’s leading specialist for sarcoidosis he said it’s not that. My age levels are raised but nothing else is in my bloods.
I have optic apathy of the left eye so not quite optic
neuritis
. My lumbar puncture was negative for MS my bloods for lupus are negative also and my neurologist is London’s leading specialist for sarcoidosis he said it’s not that. My age levels are raised but nothing else is in my bloods.
Buckley123
in
My MSAA Community
4 years ago
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Now A Bit of a Rest
His assessment after my light spot test, photographing my eye balls and looking at my optic nerves (amazes me when he looks directly into my eye, he can see the optic
neuritis
scars) was that everything has stablized. He's happy my neurologist put me on Aubagio.
His assessment after my light spot test, photographing my eye balls and looking at my optic nerves (amazes me when he looks directly into my eye, he can see the optic
neuritis
scars) was that everything has stablized. He's happy my neurologist put me on Aubagio.
CrazyCatWom
in
My MSAA Community
4 years ago
Getting a Diagnosis after blood results (daughter)
her original symptoms were loss of feeling in fingers and toes, along with optic
neuritis
. She now has a lot of hair loss, which I did too.
her original symptoms were loss of feeling in fingers and toes, along with optic
neuritis
. She now has a lot of hair loss, which I did too.
Hidden
in
Pernicious Anaemia Society
4 years ago
My appt yesterday..
No nerve damage, but I probably did have optic
neuritis
. 🤔 I think I said that... Along with my neuro. 😂🤣😂 🤗💕👻
No nerve damage, but I probably did have optic
neuritis
. 🤔 I think I said that... Along with my neuro. 😂🤣😂 🤗💕👻
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 years ago
Help for my daughter's diagnosis please
She is 28, and for 5 years has suffered numbness in toes and finger and optic
neuritis
twice. Originally we paid privately to see a neurologist due to waiting times and nothing abnormal was found, although he did state he thought MS!.
She is 28, and for 5 years has suffered numbness in toes and finger and optic
neuritis
twice. Originally we paid privately to see a neurologist due to waiting times and nothing abnormal was found, although he did state he thought MS!.
Hidden
in
Pernicious Anaemia Society
4 years ago
Finally got home late last night!
To show that it was/is Optic
Neuritis
and not a blood clot. A WHAT? No clue about that!!! Probably a good thing they didn't tell me about that!!!🙁 So now I'm home, tapering off the steroids! My eye is doing Alot better now!! Thank goodness!
To show that it was/is Optic
Neuritis
and not a blood clot. A WHAT? No clue about that!!! Probably a good thing they didn't tell me about that!!!🙁 So now I'm home, tapering off the steroids! My eye is doing Alot better now!! Thank goodness!
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 years ago
Hello my luvs!
Bottom line is optic
neuritis
, 3days prednisone pills. Yuck!! And a in person visit next Tuesday and upcoming MRI to check on George. I am on Ocrevus, and having relaspes. It is not a miracle DMT and doesn't work for everyone! I don't care what anyone says! And PS I hate MS so bad right now!
Bottom line is optic
neuritis
, 3days prednisone pills. Yuck!! And a in person visit next Tuesday and upcoming MRI to check on George. I am on Ocrevus, and having relaspes. It is not a miracle DMT and doesn't work for everyone! I don't care what anyone says! And PS I hate MS so bad right now!
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 years ago
Buggy eye's?
I don't think this is optic
neuritis
, but I don't know what it is.🤣😂 Any ideas? 👀 Help Me! 🤗💕🦈
I don't think this is optic
neuritis
, but I don't know what it is.🤣😂 Any ideas? 👀 Help Me! 🤗💕🦈
Jesmcd2
CommunityAmbassador
in
My MSAA Community
4 years ago
Vestibular problems
Cranial nerve
neuritis
finally seen and documented. Been fighting for this for over a year now! To those still struggling to find your champion super doctor, keep on keeping on. You’ll find one in time. They are rare. ❤️
Cranial nerve
neuritis
finally seen and documented. Been fighting for this for over a year now! To those still struggling to find your champion super doctor, keep on keeping on. You’ll find one in time. They are rare. ❤️
Jmiller623
in
LUPUS UK
4 years ago
Diagnosis
Optic
neuritis
referred to consultant neurologist cleared with steroids. Concerned I have MS. Feeling better for a couple of years before start feeling weird again.
Optic
neuritis
referred to consultant neurologist cleared with steroids. Concerned I have MS. Feeling better for a couple of years before start feeling weird again.
Treesl
in
LUPUS UK
4 years ago
God can heal you
Initially I was told it was probably multiple sclerosis due to an episode of optic
neuritis
on my left eye which left me blind for four weeks. However in 2014 I was seeing by professor Mark Edward the leading researcher of FND in the UK and he concluded that I had FND.
Initially I was told it was probably multiple sclerosis due to an episode of optic
neuritis
on my left eye which left me blind for four weeks. However in 2014 I was seeing by professor Mark Edward the leading researcher of FND in the UK and he concluded that I had FND.
Keeponfighting
in
Functional Neurological Disorder - FND Hope
4 years ago
Anyone under the age of 30
The steroids where for my eye o think optic
neuritis
type issue although they are not being very clear or investigating Especially now with CD19 I have terrible issues with my neck where my muscles as on my neck are weak I have problems with my eyes headaches floaters spine shakes sometimes and all
The steroids where for my eye o think optic
neuritis
type issue although they are not being very clear or investigating Especially now with CD19 I have terrible issues with my neck where my muscles as on my neck are weak I have problems with my eyes headaches floaters spine shakes sometimes and all
Buckley123
in
PMRGCAuk
5 years ago
Year 1 finished
I had a problem with my vision over the weekend and my neurologist feels that it is from when I had the flare up a year and a half ago when I had the optic
neuritis
.
I had a problem with my vision over the weekend and my neurologist feels that it is from when I had the flare up a year and a half ago when I had the optic
neuritis
.
Turtlepie
in
My MSAA Community
5 years ago
I need some advice
I had a brain scan which showed a lesion is apparently not the correct area for MS that some of you know just as a quick recap my mum had ms And unfortunately had lost her battle a year ago My lumbar puncher was negative my ace blood levels are twice what they should be I’ve had optic
neuritis
twice
I had a brain scan which showed a lesion is apparently not the correct area for MS that some of you know just as a quick recap my mum had ms And unfortunately had lost her battle a year ago My lumbar puncher was negative my ace blood levels are twice what they should be I’ve had optic
neuritis
twice
Buckley123
in
My MSAA Community
5 years ago
Newly diagnosed after years of problems
I had several episodes of what we thought were optic
neuritis
. I was being treated with IVIG during this time, and my flare-ups responded well the IVIG. My MRI remained normal. In March of 2018, my flare-ups changed. This time, it involved both legs at once.
I had several episodes of what we thought were optic
neuritis
. I was being treated with IVIG during this time, and my flare-ups responded well the IVIG. My MRI remained normal. In March of 2018, my flare-ups changed. This time, it involved both legs at once.
poppymom23
in
Functional Neurological Disorder - FND Hope
5 years ago
Just joined
But I first had optic
neuritis
in my early 20's and neurologist then had said if there had been more than 6 lesions he would have said it was MS. Only had brain MRI and 5 lesions.... now I'm on Tysabri, going on my 4th year...it seems to be working.
But I first had optic
neuritis
in my early 20's and neurologist then had said if there had been more than 6 lesions he would have said it was MS. Only had brain MRI and 5 lesions.... now I'm on Tysabri, going on my 4th year...it seems to be working.
DawnGochenour
in
My MSAA Community
5 years ago
Hey, Precious Mser Family!!😍😘
Ur body will ty sooo much too,,like mine has...Oh I still have my MS Moments,
neuritis
, Aches, but, over all am still in a good Remission..😀😃😄 Have a GR81!😘😍 Jazzi🐎horse🐈🐾cat 😘😘🍇
Ur body will ty sooo much too,,like mine has...Oh I still have my MS Moments,
neuritis
, Aches, but, over all am still in a good Remission..😀😃😄 Have a GR81!😘😍 Jazzi🐎horse🐈🐾cat 😘😘🍇
Jazzihorsecat
in
My MSAA Community
5 years ago
I'm New and My Ball Just Rolled into the Street . . .
Started with optic
neuritis
in my only good eye in 1995, told by a neurologist's student I had MS and would be in a wheelchair by the time I turned 40. Neurologist took over and I became a guinea pig ( and I can really squeall!). IV steroids, and regained98% vision.
Started with optic
neuritis
in my only good eye in 1995, told by a neurologist's student I had MS and would be in a wheelchair by the time I turned 40. Neurologist took over and I became a guinea pig ( and I can really squeall!). IV steroids, and regained98% vision.
CrazyCatWom
in
My MSAA Community
5 years ago
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