Experiences with

Neoral

Hi all, This is just a stab in the dark in case anyone has had similar, and perhaps share their experience ? In my mid 40s been on Simponi for 10 years now. My AS is fairly under control however, over the last 4ish years, very slowly to begin but steadily, I've gone from having the odd headache, to

Hi everyone. I’m so glad that I learned of PRDA as I have just been getting along with things by myself. I had colorectal cancer 12 years ago with weeks of radiation and oral chemotherapy. The radiation burnt my genital and anal area badly but I did not realise that the skin would become so sensitive

I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance because of hospitalization (3) for infections that I needed my immune system to fight. Probably 6 months. In that time I developed nodules (small) in bowel, pelvis and cervical 2. I was taken off both ibrance and faslodex

I suffer from a rare type of blood cancer in which my platelets are too high. They have been controlled during the last three years but recently have risen again. During the last six years I have been having Eylea injections for macular degeneration in both eyes (somewhere about 60 injections altogether

Hello, first time posting here but I have been following this group for a little while now. A bit of background - I was diagnosed with underactive thyroid in October '22 and have been taking 50mcg Levo since then. My main symptoms were fatigue, feeling cold and hair loss. My hair has been shedding excessively

A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being

I have a history of PTLD but that was years ago (It was spurred by mono and they took me off my immunosuppressants briefly and then changed me from Neoral to Cellcept thereafter). I told my primary care who ordered a CT scan but insurance wouldn’t cover it.

Hi lovely ladies, After reading about Beth’s amazing travels in New Zealand, I hope to encourage you to follow your dreams with travel when you can. I am from the UK, and was crushed when I had to cancel my planned silver wedding anniversary trip to New England twice, the first time because of the pandemic

Underwent the "simple mastectomy" on Nov 1 on the right side. This is my third breast cancer surgery and sixth primary cancer overall. I was so discouraged to have cancer again and did not want the surgery, but it was the only rational option. Already have had so much radiation to the chest (lung cancer

I have not posted for some time as I have changed from Butec patches to Temgesic sublingual tablets and have been having some issues. Firstly, as dickJones has found out the patches definitely do not last seven days for most people. When I started the patches (15 mcg) I was getting reasonably good

Hello warriors . My mum was diagnosed with stage 3c ovarian cancer in 2016. Followed by chemotherapy and debunking surgery. She was cancer free for 5 years, after which it returned in April 2021. After completing 6 rounds of chemotherapy she was back in remission and was put on Olaparib ( she is BRCA

I have completed the standard of treatment for a GBM - surgery, followed by daily radiation and oral chemotherapy for six and a half weeks, then a six-month regimen of oral chemotherapy given five days a month. Some doctors are advising to continue chemotherapy for 12 cycles or till my body is reacting

Had left lung removed last year but learned cancer now in remaining right lung. Oncologist has suggested oral chemotherapy treatment using Vinorelbine (navelbine) capsules as a middle, gentler path than intravenous route but hopefully more beneficial than no treatment. Does anyone have any experience

Myhubby58, Has once again got a bad report from his ct scans..He was diagnosed in July of 2017 with stage 4 Prostate Cancer..since 2017, he has had 2 oral chemotherapy treatments casodex and standing with prednisone,in chair he has had cabotaxel,taxotere and 2 clinical trials. All of these treatments

ModraDoc006/Ritonavir Offers Promising Therapeutic Option for mCRPC, Convenient Approach Amid COVID-19 Pandemic February 8, 2021 Dr. Ulka N. Vaishampayan ModraDoc006, a novel oral docetaxel formulation, has advantages as a convenient, oral, and better-tolerated potential therapeutic option for patients

I had to replace my email address and my phone and lost all access including this site about a year ago! My update: I was on oral chemotherapy with several different medications, slowly reducing down the strength of them because if my reactions - heart & breathing issues. But my cancer kept disappearing

I gave just finished a 28 day cycle of radiotherapy for a rectal tumour accompanied by oral chemotherapy (Capecitebine) It has given me severe proctitis and tenesmus which started after the third week. Has anyone suffered with this? How long does it last? Any tips for managing it?

One of you ladies mentioned Nioxin #3 Shampoo for thinning hair. I would like to order this shampoo but would like to know if it actually stops the hair from falling out. I don't want to spend money on it if my hair is going to fall out anyway. Someone else also mentioned Nizoral Shampoo and Conditioner

Hi everyone! I'm new on this site and I'm interested in learning about the experiences of people with Essential Thrombocythaemia (ET). I was diagnosed with Janus Kinase 2 (JaK2)-positive ET about a year ago but only started on oral chemotherapy with Hydroxycarbamide (Hydroxyurea) a few weeks ago, as

Hello ladies. Had anyone with Low Grade Serous Ovarian Cancer had oral chemotherapy called “Cyclophosphamide”. It’s an old chemo drug that apparently works on slower growing cancer cells. My oncologist suggested it to me a while ago and said it had been trialed at some point in the past but not really