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Neomycin / Prednisolone
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leg trouble
hi Paula hear I was diagnosed 4 years ago with vascullituse of the lung it seems to be under control at min with retuxiban and prednisone I was on Mycophenolate to but after a year I had to come of it as it wasn’t suiting me. My problem is since Christmas Eve my legs from the knee down hurt when I stand
hi Paula hear I was diagnosed 4 years ago with vascullituse of the lung it seems to be under control at min with retuxiban and prednisone I was on Mycophenolate to but after a year I had to come of it as it wasn’t suiting me. My problem is since Christmas Eve my legs from the knee down hurt when I stand
Tellyblue
in
Vasculitis UK
4 months ago
new drugs
I was on Eligard and Zytiga plus prednisone for about 4 years with tolerable side effects. Mostly medium fatigue. Got my PSA down to undetectable and my Mets invisible in scans after 4 years. I took a two-year break. Wonderful to be clear of the side effects and infusion. Testosterone and PSA gradually
I was on Eligard and Zytiga plus prednisone for about 4 years with tolerable side effects. Mostly medium fatigue. Got my PSA down to undetectable and my Mets invisible in scans after 4 years. I took a two-year break. Wonderful to be clear of the side effects and infusion. Testosterone and PSA gradually
EchoII
in
Advanced Prostate Cancer
4 months ago
Experience and honest opinions of EMMA, ERA and ALICE tests and karyotype please
Hi, after multiple IVF failures the latest two with PGTA tested euploid embryos, I had another hysteroscopy, curettage and culture and sensitivity procedure yesterday. The consultant said everything looked healthy and normal but I have to wait a week or two for the biopsy report. My tubes were both
Hi, after multiple IVF failures the latest two with PGTA tested euploid embryos, I had another hysteroscopy, curettage and culture and sensitivity procedure yesterday. The consultant said everything looked healthy and normal but I have to wait a week or two for the biopsy report. My tubes were both
Crie1983
in
Fertility Network UK
8 months ago
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Can PMR effect hip, pelvic area
Hello everyone, I have been on prednisolone for just over three weeks, pain in neck, shoulders & arms have improved . I thought my low back had gone into spasm at the weekend however I am wondering if it could be PMR . The pain in hips and pelvic area is excruciating first thing in the morning easing
Hello everyone, I have been on prednisolone for just over three weeks, pain in neck, shoulders & arms have improved . I thought my low back had gone into spasm at the weekend however I am wondering if it could be PMR . The pain in hips and pelvic area is excruciating first thing in the morning easing
Mistyfied
in
PMRGCAuk
8 months ago
Off Prednisone!
I have been on Prednisone for 2 1/2 years. I finally took my last dose about a month ago. I am wondering if it takes a while for this to get out of your system. How long does it take to get rid of any side effects, moon face, etc? I was not on any medication when I was diagnosed with PMR. With
I have been on Prednisone for 2 1/2 years. I finally took my last dose about a month ago. I am wondering if it takes a while for this to get out of your system. How long does it take to get rid of any side effects, moon face, etc? I was not on any medication when I was diagnosed with PMR. With
BigLoser
in
PMRGCAuk
4 months ago
painful shoulders after dead slow taper to 2mg.
I was diagnosed with PMR in March 2019. I’ve finally managed to get to 2.25mg prednisone on a slow taper taking a month for 0.25mg drop. I also take Leflonamide which was doubled to 20mg a month ago to deal with probable RA in my hands. (Pain and swelling. It has helped). I’m diabetic due to steroids
I was diagnosed with PMR in March 2019. I’ve finally managed to get to 2.25mg prednisone on a slow taper taking a month for 0.25mg drop. I also take Leflonamide which was doubled to 20mg a month ago to deal with probable RA in my hands. (Pain and swelling. It has helped). I’m diabetic due to steroids
HelenDaisy
in
PMRGCAuk
4 months ago
Bitter Taste In Mouth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
LizMitchell
in
PMRGCAuk
8 months ago
Pred side effects…memory
I have been on Prednisone for 5/years for PMR and GCA . I have had a pretty good run with no major side effects until this last flare 20 mg and my mind is not where it should be .. Literally the moments of being unaware that I just put my keys in my purse or just put my phone on the table is like I
I have been on Prednisone for 5/years for PMR and GCA . I have had a pretty good run with no major side effects until this last flare 20 mg and my mind is not where it should be .. Literally the moments of being unaware that I just put my keys in my purse or just put my phone on the table is like I
Darcy2000
in
PMRGCAuk
4 months ago
First Rheumy Visit, Lymphocyte/Neutrophil
Luckily, my rheumatologist was one I saw while in the hospital. She listened, explained, and answered questions. She is treating me for GSA even though my biopsy was negative. I am currently on 40 mg of prednisone. I am still very fatigued, legs are heavy and weak, arms weak, some pain in right temple
Luckily, my rheumatologist was one I saw while in the hospital. She listened, explained, and answered questions. She is treating me for GSA even though my biopsy was negative. I am currently on 40 mg of prednisone. I am still very fatigued, legs are heavy and weak, arms weak, some pain in right temple
Moaningxcat
in
PMRGCAuk
4 months ago
trigger fingers
I have been dealing with pmr for 8-9 years. Started at 15 mg. Been up and down from that for the last few years. I reached 7 mg this month. Started getting a pain all over so went back up to 8 mg. Feel much better except for the trigger fingers I developed almost over nite. Are trigger fingers a part
I have been dealing with pmr for 8-9 years. Started at 15 mg. Been up and down from that for the last few years. I reached 7 mg this month. Started getting a pain all over so went back up to 8 mg. Feel much better except for the trigger fingers I developed almost over nite. Are trigger fingers a part
Linny3
in
PMRGCAuk
4 months ago
A series of flares
I was first diagnosed with PMR at the end of 2018 after a very stressful journey to Australia, and since then I have managed to reduce to 3.5 mg of prednisone. I started to taper slowly to 3mg and then to 2.5mg and I had a flare. I needed to go back up to 5mg to control the pain in my neck and shoulder
I was first diagnosed with PMR at the end of 2018 after a very stressful journey to Australia, and since then I have managed to reduce to 3.5 mg of prednisone. I started to taper slowly to 3mg and then to 2.5mg and I had a flare. I needed to go back up to 5mg to control the pain in my neck and shoulder
parsifalwiz
in
PMRGCAuk
4 months ago
Oncologist visit today
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
ppulatie
in
Advanced Prostate Cancer
4 months ago
Aching joints after stopping prednisolone
Hi could I ask if it is normal to suffer aching joints & muscles after stopping prednisolone?In mid Nov I managed finally to taper off prednisolone after 3 yrs treatment for PMR. I felt ok and very pleased with myself. I then caught covid ( badly) in early Dec which left me fatigued. I went off to
Hi could I ask if it is normal to suffer aching joints & muscles after stopping prednisolone?In mid Nov I managed finally to taper off prednisolone after 3 yrs treatment for PMR. I felt ok and very pleased with myself. I then caught covid ( badly) in early Dec which left me fatigued. I went off to
lilydunn
in
PMRGCAuk
8 months ago
Strong negative reaction to first Docetaxel treatment
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
4tunate1
in
Advanced Prostate Cancer
4 months ago
Maybe not PMR update 5 years on
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Pawscat11
in
PMRGCAuk
5 months ago
Toronto Prostate Cancer Specialist for Dad
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
Justgettingitright
in
Advanced Prostate Cancer
5 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
8 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
8 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
8 months ago
flares and adrenals
hi folks me again I posted 2 weeks ago about statins. I am on 2.5 mg of prednisone and have been for a month. Last couple of days feel a lot more shoulder stiffness. I just took 5 mg this morning. I flared in January when I tried to go to 2 mg. Question. If I do flare protocol again to 8 mg for 1 -
hi folks me again I posted 2 weeks ago about statins. I am on 2.5 mg of prednisone and have been for a month. Last couple of days feel a lot more shoulder stiffness. I just took 5 mg this morning. I flared in January when I tried to go to 2 mg. Question. If I do flare protocol again to 8 mg for 1 -
Skier321
in
PMRGCAuk
5 months ago
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