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Experiences with
Natural desiccated thyroid (NDT)
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Chemo or no/not yet?
59 years old. Metastatic/high volume. PSA hit 366 before starting Abiraterone and Degarelix. Start Lupron next week. Negative on DNA test. Will see what PSA looks like next week after a month of ADT. My question chemo, no chemo or wait on chemo? Onco and Rad Onco both seemed to have a very soft attitude
59 years old. Metastatic/high volume. PSA hit 366 before starting Abiraterone and Degarelix. Start Lupron next week. Negative on DNA test. Will see what PSA looks like next week after a month of ADT. My question chemo, no chemo or wait on chemo? Onco and Rad Onco both seemed to have a very soft attitude
4tunate1
in
Advanced Prostate Cancer
5 months ago
Was there ever really a chance for a cure?
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
duxlubber
in
Advanced Prostate Cancer
5 months ago
Brain Fog or Dimentia?
Hey warriors! So how do you know if you have brain fog or the beginning of dementia? Is it possible to blame ADT and Zytiga? My husband has been on Ellegaard for five years and Zytiga for 2 1/2. Years, he seems to have a lot of memory issues lately, and I fear it’s only getting worse Any thoughts or
Hey warriors! So how do you know if you have brain fog or the beginning of dementia? Is it possible to blame ADT and Zytiga? My husband has been on Ellegaard for five years and Zytiga for 2 1/2. Years, he seems to have a lot of memory issues lately, and I fear it’s only getting worse Any thoughts or
Keeper70
in
Advanced Prostate Cancer
5 months ago
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raised blood pressure and NDT- what to do?
The only thing that has changed that could have increased my blood pressure is being prescribed
NDT
. My private thyroid doctor has changed my dose a few times. After the first 6 weeks on two grains of
NDT
, my FT3 came back at 8.5 which is over-range (3.1 - 6.8).
The only thing that has changed that could have increased my blood pressure is being prescribed
NDT
. My private thyroid doctor has changed my dose a few times. After the first 6 weeks on two grains of
NDT
, my FT3 came back at 8.5 which is over-range (3.1 - 6.8).
lauraleeds666
in
Thyroid UK
1 year ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
5 months ago
PSA on the way up again
I am getting a little concerned about a increase in my PSA, and not just the increase, but also the increase in the rate of increase. Short history. Diagnosed March 2021 by MRI and biopsy Gleason 4 + 3, Stage T3B, ISUP 3 ADT (Zoladex) started June 2021 EBRT 60Gy in 20 fractions December 2021 Last
I am getting a little concerned about a increase in my PSA, and not just the increase, but also the increase in the rate of increase. Short history. Diagnosed March 2021 by MRI and biopsy Gleason 4 + 3, Stage T3B, ISUP 3 ADT (Zoladex) started June 2021 EBRT 60Gy in 20 fractions December 2021 Last
ParrotY
in
Prostate Cancer Network
5 months ago
Dutasteride Monotherapy is effective for Newly Diagnosed PCa men not on ADT
This plot shows men that either don't have PCa (Group A) or newly diagnosed men with PCa by biopsy (Group B). Neither group is on ADT. Dutasteride monotherapy (0.5 mg/day) causes an average drop in PSA of about 50% in both Groups, and an average drop of about 20% in prostate volume. In one man, his
This plot shows men that either don't have PCa (Group A) or newly diagnosed men with PCa by biopsy (Group B). Neither group is on ADT. Dutasteride monotherapy (0.5 mg/day) causes an average drop in PSA of about 50% in both Groups, and an average drop of about 20% in prostate volume. In one man, his
janebob99
in
Prostate Cancer Network
5 months ago
Update #5: Back to front
This will include coming off the 1.5 grains of
NDT
I am already on - HEAR ME OUT - I am gaining no benefit from this 1.5
NDT
.
This will include coming off the 1.5 grains of
NDT
I am already on - HEAR ME OUT - I am gaining no benefit from this 1.5
NDT
.
Hidden
in
Thyroid UK
1 year ago
High PSA upon diagnosis, treatment , and outcome
Hello, Diagnosed 9 months ago with Gleason 7 unfavorable… 2 4+3 ,2 3+4, and 1 3+3 ..on one side only ..I guess my high PSA score made it unfavorable , PSA 18. As a result had aggressive tri modality treatment .. brachytherapy seeds, 15 linac radiation sessions, and 9 months o ADT ..just stopped
Hello, Diagnosed 9 months ago with Gleason 7 unfavorable… 2 4+3 ,2 3+4, and 1 3+3 ..on one side only ..I guess my high PSA score made it unfavorable , PSA 18. As a result had aggressive tri modality treatment .. brachytherapy seeds, 15 linac radiation sessions, and 9 months o ADT ..just stopped
Yokohama2023
in
Prostate Cancer Network
5 months ago
Changing from NDT to T3 What dose of T3 should I take to equal the amount of T3 in the NDT?
Hello allFor the past 18 mths I have been combo dosing with levo and
NDT
. Levo: 75/50mcg on alternate days. Efra: 30mg once a day. Ordered some
NDT
from Europe 6 January still not received them.
Hello allFor the past 18 mths I have been combo dosing with levo and
NDT
. Levo: 75/50mcg on alternate days. Efra: 30mg once a day. Ordered some
NDT
from Europe 6 January still not received them.
DizzyD
in
Thyroid UK
2 years ago
First MO visit
Prostectomy in 2017 and radiation in 2020 with no further treatment. PSMA test in November 2023 was negative with PSA of 0.14 at that time. My PSA has now increased to 0.34. I have my first visit with an MO in a couple weeks. Any suggestions or hints as to what to expect for treatments following
Prostectomy in 2017 and radiation in 2020 with no further treatment. PSMA test in November 2023 was negative with PSA of 0.14 at that time. My PSA has now increased to 0.34. I have my first visit with an MO in a couple weeks. Any suggestions or hints as to what to expect for treatments following
RedBird713
in
Advanced Prostate Cancer
5 months ago
Reliable Thyroid S suppliers please.
I'm wanting to try
NDT
my current T4 +T3 regime isn't working and my suppressed TSH causes stress with GP and Endo. Thanks in advance.
I'm wanting to try
NDT
my current T4 +T3 regime isn't working and my suppressed TSH causes stress with GP and Endo. Thanks in advance.
tzracer
in
Thyroid UK
2 years ago
NGS Test/Next-Generation Sequencing Important to have done.
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
5 months ago
Going round in circles - Your input please
Do you think I need
NDT
? Am really keen to try the natural option as my T3 seems borderline but Naturopath didn't think it was necessary? I haven't felt 100% - am currently on 100mcg/daily Levo.
Do you think I need
NDT
? Am really keen to try the natural option as my T3 seems borderline but Naturopath didn't think it was necessary? I haven't felt 100% - am currently on 100mcg/daily Levo.
Mikico
in
Thyroid UK
1 year ago
Hormonal treatment for Endometriosis
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
Tigerlily34
in
Women's Health
5 months ago
Hormonal treatment for Endometriosis
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
Tigerlily34
in
Endometriosis UK
5 months ago
post radiation. Currently on ADT. PSA slight increase ?
Hey all, My father who started at 226PSA has finished radiation treatment about a year ago.: and remains on ADT. his PSA was sitting 0.03 but has jumped to 0.08. Is this any cause for concern? I took it as a positive as it sounds extremely low but now second guessing ..
Hey all, My father who started at 226PSA has finished radiation treatment about a year ago.: and remains on ADT. his PSA was sitting 0.03 but has jumped to 0.08. Is this any cause for concern? I took it as a positive as it sounds extremely low but now second guessing ..
FormulaRob
in
Advanced Prostate Cancer
5 months ago
Getting private prescriptions on NHS
Also partly because I want to be able to access either T3 or
NDT
easily should they be needed. Question is, if NHS GP is on board and accepts diagnosis, could I potentially get T4 via NHS with the recommendation/dosages prescribed by the private doc?
Also partly because I want to be able to access either T3 or
NDT
easily should they be needed. Question is, if NHS GP is on board and accepts diagnosis, could I potentially get T4 via NHS with the recommendation/dosages prescribed by the private doc?
seveneleven
in
Thyroid UK
1 year ago
Sexual function
I am post ADT 20 months! Still have very to to no seamen on ejaculation and can get erection but certainly not has hard as before ADT. Has anyone experienced this?
I am post ADT 20 months! Still have very to to no seamen on ejaculation and can get erection but certainly not has hard as before ADT. Has anyone experienced this?
Stecruz
in
Advanced Prostate Cancer
5 months ago
Persistent PSA
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
Nonno
in
Prostate Cancer Network
5 months ago
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