Search
Search
About
Log in
Join
Experiences with
Natural desiccated thyroid (NDT)
Posts
Communities
13,468 public posts
Filter results
Advice via PM on purchasing T3 online would be gratefully received. Thinking of switching from NDT to Levothyroxine and T3
I don't think I am doing too well on the usual
NDT
I have had for quite a while. Thanks!
I don't think I am doing too well on the usual
NDT
I have had for quite a while. Thanks!
Hidden
in
Thyroid UK
2 years ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
7 months ago
ADT (Lupron) and creatine?
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
Gs-rider
in
Advanced Prostate Cancer
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
7 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
7 months ago
Trying to get to retirement before HT
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
CJ1958
in
Prostate Cancer Network
7 months ago
Trialling Levo only after an issue with NDT, severe headache subsided to a point, BUT now feeling brain fog, fatigue and very bloated belly.
After several weeks feeling pretty deathly and in a lot of pain, I came off the
NDT
, and started to trial T3, but the headache came back if I had more than 6mg at a time.
After several weeks feeling pretty deathly and in a lot of pain, I came off the
NDT
, and started to trial T3, but the headache came back if I had more than 6mg at a time.
Hidden
in
Thyroid UK
1 year ago
ADT for how long..
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Justt
in
Advanced Prostate Cancer
7 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
7 months ago
Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
7 months ago
Brother's numbers since ADT plus Orchiectomey since diagnosed in February
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Sparlingo
in
Advanced Prostate Cancer
7 months ago
ipp and salvage radiation
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Katamiran
in
Prostate Cancer Network
7 months ago
confused about supplements and certain foods
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
SierraSix
in
Advanced Prostate Cancer
7 months ago
wondering if traction for back is advised while on ADT
my nutty question, I have a back stretcher and it will pull vertebrae apart. U can do same by lying flat on a table gradually pulling yourself forward till abdomen and chest are perpendicular to floor and arms touching. Try at your own risk. I am not a doctor just an orthopedic nightmare with hundreds
my nutty question, I have a back stretcher and it will pull vertebrae apart. U can do same by lying flat on a table gradually pulling yourself forward till abdomen and chest are perpendicular to floor and arms touching. Try at your own risk. I am not a doctor just an orthopedic nightmare with hundreds
TuffNuttoCrack
in
Advanced Prostate Cancer
7 months ago
Castration resistant in just a year? Normal or not? Provenge in my future.
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
Gl448
in
Advanced Prostate Cancer
7 months ago
NDT & blood tests - when to take it?
I've seen that some people split their dose so that their last
NDT
is 8 hours before the blood test- just wondering whether I should start doing this? I'm seeing my endo in 10 days time who prescribes
NDT
but a) doesn't seem to know about the 'life' of
NDT
and b)doubt she knows about this.
I've seen that some people split their dose so that their last
NDT
is 8 hours before the blood test- just wondering whether I should start doing this? I'm seeing my endo in 10 days time who prescribes
NDT
but a) doesn't seem to know about the 'life' of
NDT
and b)doubt she knows about this.
carorueil
in
Thyroid UK
2 years ago
Ugg, can we talk erections
So, even with Cialis I am having issues getting erect and certainly having an orgasm. Some questions for the group: 1. How much of this is the hormone therapy? Meaning, likely by now (more than 2mths on ADT) my testo has dropped very very far right? 2. Why doesnt Cialis help? 3. What is my outcome
So, even with Cialis I am having issues getting erect and certainly having an orgasm. Some questions for the group: 1. How much of this is the hormone therapy? Meaning, likely by now (more than 2mths on ADT) my testo has dropped very very far right? 2. Why doesnt Cialis help? 3. What is my outcome
Yzinger
in
Advanced Prostate Cancer
7 months ago
Advice on options for self medication please
I can’t keep messing about with my medication and am now considering my options with regard to buying T3 or
NDT
. Any advice would be appreciated. 🙏🏻
I can’t keep messing about with my medication and am now considering my options with regard to buying T3 or
NDT
. Any advice would be appreciated. 🙏🏻
Mickeydooley
in
Thyroid UK
1 year ago
IVF medication following BFP for those with POF?
Hi everyone Hoping to find a consensus re: dates of stopping hormone treatment for those with premature ovarian failure going through IVF. Recently thrilled to get a BFP following D5 DE FET (still early days, only 4.5 weeks along). My clinic seem to adopt a 'one-size fits all' approach and stops progesterone
Hi everyone Hoping to find a consensus re: dates of stopping hormone treatment for those with premature ovarian failure going through IVF. Recently thrilled to get a BFP following D5 DE FET (still early days, only 4.5 weeks along). My clinic seem to adopt a 'one-size fits all' approach and stops progesterone
Buzzler
in
Fertility Network UK
7 months ago
Some recent info on PSMA PET from "Urology Times"
Greetings FPC folk, I thought I would put out some recent info from "Urology Times" relating to PSMA scans : https://www.urologytimes.com/view/overview-of-available-clinical-guidelines-on-psma-pet-imaging-in-prostate-cancer?utm_source=sfmc&utm_medium=email&utm_campaign=09282023_UT_LAN-23-URV0147_
Greetings FPC folk, I thought I would put out some recent info from "Urology Times" relating to PSMA scans : https://www.urologytimes.com/view/overview-of-available-clinical-guidelines-on-psma-pet-imaging-in-prostate-cancer?utm_source=sfmc&utm_medium=email&utm_campaign=09282023_UT_LAN-23-URV0147_
NPfisherman
in
Fight Prostate Cancer
7 months ago
1
...
59
60
61
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
8100 results
Advanced Prostate Cancer
3880 results
Prostate Cancer Network
413 results
View top 10 communities
Sort by
Most Relevant
Newest