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Feel amazing! Had my first B12 injection. Took whole 10 ml bottle, also had 20000 mcg of sublinguals, folate, mct oil,+ cardamom beforehand.
Guess I got excited? Took whole bottle. Guess if your symptoms are bad, injections are the way to go. Came across PA Society post about injections vs other methods, yesterday? Cld have seen it before, not sure. May have woke me up, and prior (just recentlyl, the Pharmacist mentioned they carry injections
Guess I got excited? Took whole bottle. Guess if your symptoms are bad, injections are the way to go. Came across PA Society post about injections vs other methods, yesterday? Cld have seen it before, not sure. May have woke me up, and prior (just recentlyl, the Pharmacist mentioned they carry injections
Fl17
in
Pernicious Anaemia Society
6 years ago
severe pain in the balls of my feet
I HAVE HAD SEVERE PAIN IN THE BALLS OF MY FEEET FOR A FEW WEEKS NOW THIS IS A NEW THING ITS SO PAINFULL I ALSO HAVE PERIFUAL NEUROPATHY THAT IS VERY PAINFULL FIBROMYALGIA AND MANY MORE CONDITIONS ANY IDEAS PLEASE ITS AGONY ,
I HAVE HAD SEVERE PAIN IN THE BALLS OF MY FEEET FOR A FEW WEEKS NOW THIS IS A NEW THING ITS SO PAINFULL I ALSO HAVE PERIFUAL NEUROPATHY THAT IS VERY PAINFULL FIBROMYALGIA AND MANY MORE CONDITIONS ANY IDEAS PLEASE ITS AGONY ,
mason
in
Pain Concern
6 years ago
Beautiful days in Hampshire, but now worried about....
Got invited into next door's garden which was amazing - so here I am admiring and looking towards our son's house. Next pic is at Houghton Lodge in Stockbridge on the River Test. Visited Hillier gardens also - fantastic peonies everywhere. Finally we went back to the country house hotel where simon
Got invited into next door's garden which was amazing - so here I am admiring and looking towards our son's house. Next pic is at Houghton Lodge in Stockbridge on the River Test. Visited Hillier gardens also - fantastic peonies everywhere. Finally we went back to the country house hotel where simon
Janet235
in
My Ovacome
6 years ago
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High b12
I folks I have elevated B12 levels and neuropathy symptom...burning tingling in my legs. I was diagnosed with SIBO small intestinal bacterial overgrowth. I am in treatment for SIBO but my b12 blood tests keep getting higher and the pain is getting worse. Suggestions please if I should get further testing
I folks I have elevated B12 levels and neuropathy symptom...burning tingling in my legs. I was diagnosed with SIBO small intestinal bacterial overgrowth. I am in treatment for SIBO but my b12 blood tests keep getting higher and the pain is getting worse. Suggestions please if I should get further testing
Dancingdp
in
Pernicious Anaemia Society
6 years ago
Would amputation stop my pain. ( neuropathy and arthritis in both feet).
In on Long Tec 50mg 3 x day and gabapentin 400mg 3x day. And its getting worse. Im 53 and feel I can't live with the pain for another 25 years.
In on Long Tec 50mg 3 x day and gabapentin 400mg 3x day. And its getting worse. Im 53 and feel I can't live with the pain for another 25 years.
annebalto
in
Pernicious Anaemia Society
6 years ago
I'm done and I've made my peace and ready to go.
Back in January I was still getting around, having a life with my family then Feb came and because of some chemo treatments and the damage they did to my kidneys I had to get nephrostomy tubes put in. I crashed so hard that whole month that my husband thought I was dieing then. I began to rally back
Back in January I was still getting around, having a life with my family then Feb came and because of some chemo treatments and the damage they did to my kidneys I had to get nephrostomy tubes put in. I crashed so hard that whole month that my husband thought I was dieing then. I began to rally back
tntknc
in
My Ovacome
6 years ago
Severe foot pain
I was diagnosed with Non Diabetic Peripheral Neuropathy many years ago; given Gabapentin which doesn't do anything. I was told the reason for the PN was my height (6'1") and the length of nerves in my legs...which I think is ridiculous. The only relief I get is ice. Several times I had 2nd degree burns
I was diagnosed with Non Diabetic Peripheral Neuropathy many years ago; given Gabapentin which doesn't do anything. I was told the reason for the PN was my height (6'1") and the length of nerves in my legs...which I think is ridiculous. The only relief I get is ice. Several times I had 2nd degree burns
cindylou222
in
Foggy's "Invisible Illness" Support
6 years ago
Temporary Relief of the most painful attacks (fire and pain strikes).
I am a 63 yr old male. I have had Peripheral Neuropathy for 2.5 yrs. Have been through a full cycle of pain disorder symtoms that were localized and now they seem to be moving around in location and intensity (sometimes mild sometimes severe in my feet. The skin on my hands is also thinning. . I
I am a 63 yr old male. I have had Peripheral Neuropathy for 2.5 yrs. Have been through a full cycle of pain disorder symtoms that were localized and now they seem to be moving around in location and intensity (sometimes mild sometimes severe in my feet. The skin on my hands is also thinning. . I
privateer
in
Neuropathy Support
6 years ago
Nonstop knee plain
I have and injury from 2 years ago and have had to stop many sports , hospital told me it was , osgood scklatter disease then shin splints ,arthritis,then a crooked patella and now legs which Bend inwards , what next ? Anything else the nhs want to add to the list , even better when its affecting my
I have and injury from 2 years ago and have had to stop many sports , hospital told me it was , osgood scklatter disease then shin splints ,arthritis,then a crooked patella and now legs which Bend inwards , what next ? Anything else the nhs want to add to the list , even better when its affecting my
Alishapalmieieie
in
Pain Concern
6 years ago
4 years of hell, so far
January 2014, noticed my right small toe felt somewhat numb and would burn at times when it got irritated by wearing shoes. About the same time period I noticed my feet would get very cold for no reason. Made appointment with my gp to find out what the issue is. The gp sent me to a neurologist for some
January 2014, noticed my right small toe felt somewhat numb and would burn at times when it got irritated by wearing shoes. About the same time period I noticed my feet would get very cold for no reason. Made appointment with my gp to find out what the issue is. The gp sent me to a neurologist for some
Rob-2014-01
in
Neuropathy Support
6 years ago
Dr Leslie DeGasparis - 15th April 2018 on the LDN Radio Show
Dr Leslie DeGasparis - 15th April 2018 on the LDN Radio Show Dr. Leslie DeGasparis has her practice in Seattle, Washington and has hundreds of patients on LDN for a variety of conditions. She is very thorough in evaluating her patients with questionnaires and a lengthy interview. I am increasingly
Dr Leslie DeGasparis - 15th April 2018 on the LDN Radio Show Dr. Leslie DeGasparis has her practice in Seattle, Washington and has hundreds of patients on LDN for a variety of conditions. She is very thorough in evaluating her patients with questionnaires and a lengthy interview. I am increasingly
liveurlife
Volunteer
in
LDN Research Trust
6 years ago
Still having some burning in my rectum
The last time I posted I was havind a great deal of back issues( L4L5 ) are out of place by an inch, pressing on the nerves that go to the rectum. This causes a burning feeling in my rectum and sometimes my leg. I finally had a simple exray by a chiropractor to find this problem. I was already seeing
The last time I posted I was havind a great deal of back issues( L4L5 ) are out of place by an inch, pressing on the nerves that go to the rectum. This causes a burning feeling in my rectum and sometimes my leg. I finally had a simple exray by a chiropractor to find this problem. I was already seeing
airplane
in
Pelvic Pain Support Network
6 years ago
PSA increases 28% after 5th Docetaxel treatment after decreasing 10% after each of the first 4 Docetaxel treatments
Have taken 5 of 6 Docetaxel treatments -- one every 3 weeks. PSA decreased 10% every 3 weeks after the first 4 Docetaxel treatments but learned at 5pm today (closing time at the offices unfortunately so couldn't contact anyone) that my PSA increased 28% after the 5th Docetaxel treatment. Any ideas
Have taken 5 of 6 Docetaxel treatments -- one every 3 weeks. PSA decreased 10% every 3 weeks after the first 4 Docetaxel treatments but learned at 5pm today (closing time at the offices unfortunately so couldn't contact anyone) that my PSA increased 28% after the 5th Docetaxel treatment. Any ideas
EdMiller
in
Advanced Prostate Cancer
6 years ago
Need RLS Advice
I have been diagnosed with RLS about 3-4 years ago. and it is getting progressively worse. I am on Requip and Zanaflex. Most times it helps but not for long. I try to take it before I go to bed, so I can get some relief and sleep. Recently it's gotten much worse. It not only affects my legs but my
I have been diagnosed with RLS about 3-4 years ago. and it is getting progressively worse. I am on Requip and Zanaflex. Most times it helps but not for long. I try to take it before I go to bed, so I can get some relief and sleep. Recently it's gotten much worse. It not only affects my legs but my
kimmie66
in
Restless Legs Syndrome
6 years ago
LYRICA
Following a particularly bad 36 hours, racked with pain, hardly able to speak or walk, in addition to my ZOMORPH I have been put on LYRICA , initially 25mg twice a day. This. is my 3rd day - totally free of pain! Coincidence? I would be interested to know the experience of others with LYRICA. I am keeping
Following a particularly bad 36 hours, racked with pain, hardly able to speak or walk, in addition to my ZOMORPH I have been put on LYRICA , initially 25mg twice a day. This. is my 3rd day - totally free of pain! Coincidence? I would be interested to know the experience of others with LYRICA. I am keeping
HADES
in
Fibromyalgia Action UK
6 years ago
Any Fellow Sufferers with Small Fibre Peripheral Neuropathy out there?
I have Small Fibre Peripheral Neuropathy affecting both lower limbs. I would love to chat with anyone who has this condition. Very difficult to explain to other people the weird and wonderful symptoms I experience - the pain (helped by Gabapentin) and the constant, unrelenting paraesthesia. Is there
I have Small Fibre Peripheral Neuropathy affecting both lower limbs. I would love to chat with anyone who has this condition. Very difficult to explain to other people the weird and wonderful symptoms I experience - the pain (helped by Gabapentin) and the constant, unrelenting paraesthesia. Is there
Hilsho47
in
Neuropathy Support
6 years ago
Peripheral neuropathy
Hi I've developed peripheral neuropathy, and looking into the potential causes I see that having celiac disease can cause this if untreated. I wondered if any of you had experienced this prior to diagnosis? I have some of the atypical celiac symptoms. Thanks in advance Tere
Hi I've developed peripheral neuropathy, and looking into the potential causes I see that having celiac disease can cause this if untreated. I wondered if any of you had experienced this prior to diagnosis? I have some of the atypical celiac symptoms. Thanks in advance Tere
Hidden
in
Gluten Free Guerrillas
6 years ago
Lyrica?
I wrote a post recently about my severe rls. I visited my gp today and she wanted me to try this drug called lyrica (or pregabalin). I'm very anxious about trying this new medication (to me, it's always scary trying new drugs!). I'm hoping to hear if it has helped others with rls and fibromyalgia (for
I wrote a post recently about my severe rls. I visited my gp today and she wanted me to try this drug called lyrica (or pregabalin). I'm very anxious about trying this new medication (to me, it's always scary trying new drugs!). I'm hoping to hear if it has helped others with rls and fibromyalgia (for
mariannabelle
in
Restless Legs Syndrome
6 years ago
Thank You My Friends
With Fibro and diabeties every morning when I try to move my toes they won't move. Also my toes have begun curling on me. I hate the pain but 45 miligrams of oxycodone daily is only thing that helps, that and Lyrica. I am 68 and too imagine the few remaining years I have left to be nothing but pain
With Fibro and diabeties every morning when I try to move my toes they won't move. Also my toes have begun curling on me. I hate the pain but 45 miligrams of oxycodone daily is only thing that helps, that and Lyrica. I am 68 and too imagine the few remaining years I have left to be nothing but pain
Hawk480
in
Fibromyalgia Action UK
6 years ago
Gaucher Disease
Does anyone on here have Gaucher Disease? There seems to be a link between that, Parkinsons, and being an ashkenazi Jew. I'm trying to get more information about this. Thanks. Symptoms and timing of getting one then the other or simultaneous diagnosis.
Does anyone on here have Gaucher Disease? There seems to be a link between that, Parkinsons, and being an ashkenazi Jew. I'm trying to get more information about this. Thanks. Symptoms and timing of getting one then the other or simultaneous diagnosis.
NancyJHP
in
Cure Parkinson's
6 years ago
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