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Same Question Again…
For those harboring the CDK12 mutation … curious to know how you are doing… any new knowledge etc. My husband began with Gleason 8. 2017 Prostate removed. 2018… 39 rounds of Radiation… after 18 months of No PSA , it began climbing and he started Casodex and Lupron. He has had two “vacations” from meds
For those harboring the CDK12 mutation … curious to know how you are doing… any new knowledge etc. My husband began with Gleason 8. 2017 Prostate removed. 2018… 39 rounds of Radiation… after 18 months of No PSA , it began climbing and he started Casodex and Lupron. He has had two “vacations” from meds
JolleySprings
in
Prostate Cancer Network
1 year ago
Xtanti and Eligard vs Casodex and Eligard Cost / QoLife
No one can afford Xtanti Casodex not quite as responsive as Xtanti but only $8 a month
No one can afford Xtanti Casodex not quite as responsive as Xtanti but only $8 a month
OLEO
in
Advanced Prostate Cancer
1 year ago
Getting Cancer meds changed
Seen my urologist today, he said my psa is creeping up and the Casodex may not doing its job. Psa went from 23 to 32 in 2 months. Wants to take me off the Casodex and start me on Orgovyx . I'm making an appointment to see my oncolgist. Would like to get some input on this. Anyone been taken off casodex
Seen my urologist today, he said my psa is creeping up and the Casodex may not doing its job. Psa went from 23 to 32 in 2 months. Wants to take me off the Casodex and start me on Orgovyx . I'm making an appointment to see my oncolgist. Would like to get some input on this. Anyone been taken off casodex
woppaginny
in
Advanced Prostate Cancer
1 year ago
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Casodex 150 mg for how long
Hi everybody, I am after RRp in 2014, SBRT in 2017, now on Casodex 150 mg I had Casodex for 1 year and I reached nadir 0.02. My MO put me on vacation, but after 6 months PSA went up to 0.79 I started again Casodex 150 mg. Now after 1 year My PSA in stabile 0.04. My MO wants to put me on vacation
Hi everybody, I am after RRp in 2014, SBRT in 2017, now on Casodex 150 mg I had Casodex for 1 year and I reached nadir 0.02. My MO put me on vacation, but after 6 months PSA went up to 0.79 I started again Casodex 150 mg. Now after 1 year My PSA in stabile 0.04. My MO wants to put me on vacation
Odon
in
Advanced Prostate Cancer
1 year ago
Mis-diagnosed infection
Not sure where to begin, but three weeks ago, after my Avonex injection (12 hrs. later) I noticed two leisons on my skin right about where my injections have been. One leison was draining & both areas were pink & painful. I couldn't figure out what it was. Asked my husband to take me to the ER because
Not sure where to begin, but three weeks ago, after my Avonex injection (12 hrs. later) I noticed two leisons on my skin right about where my injections have been. One leison was draining & both areas were pink & painful. I couldn't figure out what it was. Asked my husband to take me to the ER because
Workerbea
in
My MSAA Community
1 year ago
Is this a rare event?
Diagnosed in 2006, Gleason 7, failed surgery, failed salvage radiation by beginning of 2007. Saw Tanya Dorff in USC and was put on triple hormone therapy with 90 day lupron. and Casodex and Avodart Dorff believed in intermittent therapy and was i was given a holiday from treatment if psa and testosterone
Diagnosed in 2006, Gleason 7, failed surgery, failed salvage radiation by beginning of 2007. Saw Tanya Dorff in USC and was put on triple hormone therapy with 90 day lupron. and Casodex and Avodart Dorff believed in intermittent therapy and was i was given a holiday from treatment if psa and testosterone
arizonablue
in
Advanced Prostate Cancer
1 year ago
protocol for intermittent ADT
so his psa rose after 2.5years of an ADT holiday and he took casodex for 4 weeks then had a 3 month zoladex implant , after 2 months he is undetectable again , we asked his oncologist what the protocol is for length of time on it this time and he said if he stayed undetectable that he could possibly
so his psa rose after 2.5years of an ADT holiday and he took casodex for 4 weeks then had a 3 month zoladex implant , after 2 months he is undetectable again , we asked his oncologist what the protocol is for length of time on it this time and he said if he stayed undetectable that he could possibly
Merlin1960
in
Advanced Prostate Cancer
1 year ago
Continuing Lupron
On July 17, 2022, my last ADT vacation was ended due to some progression of metastatic lymph node cancer in CT scan at a PSA of 1.1. My MO put me back on Lupron for six months hoping that PSA would drop to undetectable by the end of the six months. A month of Casodex 50 mg before the a Lupron shot brought
On July 17, 2022, my last ADT vacation was ended due to some progression of metastatic lymph node cancer in CT scan at a PSA of 1.1. My MO put me back on Lupron for six months hoping that PSA would drop to undetectable by the end of the six months. A month of Casodex 50 mg before the a Lupron shot brought
dac500
in
Advanced Prostate Cancer
1 year ago
What to do next?
At the end of a Lupron break in June my PSA was 1.1 and CT scan showed a new lymph node. I was put on six months of Lupron starting with a month of Casodex. The Casodex brought my PSA down to 0.452. After three months the Lupron brought my PSA down to 0.286. Three months later today, my PSA has slightly
At the end of a Lupron break in June my PSA was 1.1 and CT scan showed a new lymph node. I was put on six months of Lupron starting with a month of Casodex. The Casodex brought my PSA down to 0.452. After three months the Lupron brought my PSA down to 0.286. Three months later today, my PSA has slightly
dac500
in
Advanced Prostate Cancer
1 year ago
Update on restaging cancer
Took a little time to process MO appt. last Tuesday...no good news. MO very concerned about doubling time of PSA so quickly. Tho my husband's had many SEs from Xtandi and is now on 1/day, she coaxed him into going back to 2/day for 6 wks./next appt. that will be preceded by another round of bloodwork
Took a little time to process MO appt. last Tuesday...no good news. MO very concerned about doubling time of PSA so quickly. Tho my husband's had many SEs from Xtandi and is now on 1/day, she coaxed him into going back to 2/day for 6 wks./next appt. that will be preceded by another round of bloodwork
Shamrock46
in
Advanced Prostate Cancer
1 year ago
Looking for suggestion of clinical trials for mCRPC
I have had SBRT (2007), Chemotherapy (2010/2011), ADT using Casodex/Lupron/Zytiga (2012-Current). Interested in joining trials that involve PARP inihibitors, immunotherapy, or other new/novel therapies. Can any of you suggest trials currently accepting candidates. My PSA was undetectable (<0.01) for
I have had SBRT (2007), Chemotherapy (2010/2011), ADT using Casodex/Lupron/Zytiga (2012-Current). Interested in joining trials that involve PARP inihibitors, immunotherapy, or other new/novel therapies. Can any of you suggest trials currently accepting candidates. My PSA was undetectable (<0.01) for
Cmdrdata
in
Advanced Prostate Cancer
1 year ago
Casodex time
Hello once again, my father started taking Casodex 50 mg daily on 08/01/2023 and got first injection of Zoladex 3,6 mg on 13/01/2023. His MO said that he can take Casodex for 1 month. I read that Casodex, in this case, is used to prevent testosterone flare but it is usually taken before Zoladex and not
Hello once again, my father started taking Casodex 50 mg daily on 08/01/2023 and got first injection of Zoladex 3,6 mg on 13/01/2023. His MO said that he can take Casodex for 1 month. I read that Casodex, in this case, is used to prevent testosterone flare but it is usually taken before Zoladex and not
gio2x
in
Advanced Prostate Cancer
1 year ago
Triplet therapy - stage 4 diagnosis
Is it best to start triplet therapy first before trying other treatments for stage 4 ? My uncle is stage 4 with spread to nearby lymph nodes and seminal vescile invasion, but no bone spread. They are starting him on Casodex and lupron shots. Can he actually do tripley therapy right away or have
Is it best to start triplet therapy first before trying other treatments for stage 4 ? My uncle is stage 4 with spread to nearby lymph nodes and seminal vescile invasion, but no bone spread. They are starting him on Casodex and lupron shots. Can he actually do tripley therapy right away or have
sportsguyredsox
in
Advanced Prostate Cancer
1 year ago
Update on my father. Triplet therapy?
After my last post, my father underwent spinal cord decompression surgery - they did laminectomy and partial corpectomy of the fractured vertebrae and did pedicular screw fixation to stabilize the spine. It's been 2 weeks since surgery and he is prescribed bed rest for 4-6 weeks. After 1-2 more weeks
After my last post, my father underwent spinal cord decompression surgery - they did laminectomy and partial corpectomy of the fractured vertebrae and did pedicular screw fixation to stabilize the spine. It's been 2 weeks since surgery and he is prescribed bed rest for 4-6 weeks. After 1-2 more weeks
gio2x
in
Advanced Prostate Cancer
1 year ago
Avonex
hi My name is Mara I took Avonex when I was first diagnosed in 2000. I was only able to handle the pain of the side effects for about a year before I had to change to beta serotonin . Which I stayed on only for about two years. I have been on 7 DMT’s in 25 years I am currently taking Ocervus.
hi My name is Mara I took Avonex when I was first diagnosed in 2000. I was only able to handle the pain of the side effects for about a year before I had to change to beta serotonin . Which I stayed on only for about two years. I have been on 7 DMT’s in 25 years I am currently taking Ocervus.
Msyogamovements
in
My MSAA Community
1 year ago
Xtandi failed
My dad was diagnosed in September 2016 following a TURP procedure. His initial PSA was 5.2, Gleason 4+3. Treatment so far: Casodex 150mg, reduced to Casodex 50mg (Sepetmebr 2016 - January 2019) Eligard + Casodex 50mg (January 2019 - March 2019); Eligard only (from March 2019 on) Radiation treatment
My dad was diagnosed in September 2016 following a TURP procedure. His initial PSA was 5.2, Gleason 4+3. Treatment so far: Casodex 150mg, reduced to Casodex 50mg (Sepetmebr 2016 - January 2019) Eligard + Casodex 50mg (January 2019 - March 2019); Eligard only (from March 2019 on) Radiation treatment
MyDad76
in
Advanced Prostate Cancer
2 years ago
Does Casodex impact the results from PSMA PET Scan ?
Does Casodex impact the results from PSMA PET Scan ? My uncle who just got diagnosed gleason 9 was told by urologist to start casodex and then would do lupron shot in 1 month. The radiation oncologist the next week told him to stop taking Casodex and he had to wait 1 month for the casodex to "get
Does Casodex impact the results from PSMA PET Scan ? My uncle who just got diagnosed gleason 9 was told by urologist to start casodex and then would do lupron shot in 1 month. The radiation oncologist the next week told him to stop taking Casodex and he had to wait 1 month for the casodex to "get
sportsguyredsox
in
Advanced Prostate Cancer
2 years ago
High Blood Pressure and Secondary Therapy
I may need to supplement Lupron with one of the secondary drugs. I see that virtually all of them can cause high blood pressure, especially Zytiga, which is taken with a low dosage of Prednisone. I already have high blood pressure that is under really good control, without using a Beta Blocker. I prefer
I may need to supplement Lupron with one of the secondary drugs. I see that virtually all of them can cause high blood pressure, especially Zytiga, which is taken with a low dosage of Prednisone. I already have high blood pressure that is under really good control, without using a Beta Blocker. I prefer
badmamazoo11
in
Advanced Prostate Cancer
2 years ago
start Casodex or wait for 2nd opinion ?
Is it okay to wait 1-2 weeks to start Casodex in order to get a 2nd opinion on treatment / hormone therapy recommendations ? My relative just found out he is Gleason 9 and urologist wants to start him right away on Casodex and then Lupron shot in 2 weeks. After that he would start radiation in
Is it okay to wait 1-2 weeks to start Casodex in order to get a 2nd opinion on treatment / hormone therapy recommendations ? My relative just found out he is Gleason 9 and urologist wants to start him right away on Casodex and then Lupron shot in 2 weeks. After that he would start radiation in
sportsguyredsox
in
Advanced Prostate Cancer
2 years ago
Memory & Brain Supplements
Is anyone taking any supplements to aid with MS "cog fog" or other cognitive issues? I've been using Andrew Lessman's Memory & Brain with Acetyl L-Carnitine. It's too early to tell what benefits I will achieve, but it's worth the chance. I retired at age 45 (dx May 1994 started Avonex September
Is anyone taking any supplements to aid with MS "cog fog" or other cognitive issues? I've been using Andrew Lessman's Memory & Brain with Acetyl L-Carnitine. It's too early to tell what benefits I will achieve, but it's worth the chance. I retired at age 45 (dx May 1994 started Avonex September
DM0329
in
My MSAA Community
2 years ago
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