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Been away for a bit...depression hit hard
Hello M.S. family. I haven't written in a few months, but I have been reading posts to keep up with everyone. It's been a pretty rough time for me. At the end of March, my mom passed away, and I have just been reeling. My grief has left me exhausted, numb, and feeling like I'm in a fog. The depression
Hello M.S. family. I haven't written in a few months, but I have been reading posts to keep up with everyone. It's been a pretty rough time for me. At the end of March, my mom passed away, and I have just been reeling. My grief has left me exhausted, numb, and feeling like I'm in a fog. The depression
Helpmeup
in
My MSAA Community
1 year ago
Please advise
Hello, everyone. During the last few months, while waiting for my father's scans to be done, I have read hundreds of posts and profiles of people on this board. I have been trying to gain some knowledge and courage to face the situation in front of me, often searching for the most difficult cases
Hello, everyone. During the last few months, while waiting for my father's scans to be done, I have read hundreds of posts and profiles of people on this board. I have been trying to gain some knowledge and courage to face the situation in front of me, often searching for the most difficult cases
BlueF
in
Advanced Prostate Cancer
1 year ago
Need some advice on what tools are still in the toolbox
Hi everybody, it’s been a while since I posted but I’m looking for some advice. I was diagnosed in the fall of 2019 with metastatic prostate cancer with 6 bone lesions (a few have shrunk and a few new one have appeared). FYI, I had my prostate removed in July 2019 Gleason 9, PSA 12. I’ve run the gambit
Hi everybody, it’s been a while since I posted but I’m looking for some advice. I was diagnosed in the fall of 2019 with metastatic prostate cancer with 6 bone lesions (a few have shrunk and a few new one have appeared). FYI, I had my prostate removed in July 2019 Gleason 9, PSA 12. I’ve run the gambit
Rondief
in
Advanced Prostate Cancer
1 year ago
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Here I go.
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
PabloK
in
Advanced Prostate Cancer
1 year ago
CDK12
I am curious to know how treatments are going with the few men who harbor CDK12 mutations. My husband has this mutation. He is in year 6 from diagnosis. 2017 he had Prostate removed … Gleason 8… clear margins at time of surgery. 6 months later PSA began to rise. He was put on Casodex/Lupron and had 39
I am curious to know how treatments are going with the few men who harbor CDK12 mutations. My husband has this mutation. He is in year 6 from diagnosis. 2017 he had Prostate removed … Gleason 8… clear margins at time of surgery. 6 months later PSA began to rise. He was put on Casodex/Lupron and had 39
JolleySprings
in
Advanced Prostate Cancer
1 year ago
Newly diagnosed with N1M1a
My father (68 yr old) is newly diagnosed with Gleason 8 in March and his PSMA PET result just came back with N1M1a (details in bio page). Before the PSMA PET, RO's plan is the whole pelvis with IMRT followed by a prostate only boost based on CTScan and clear bone scan and stated that his treatment
My father (68 yr old) is newly diagnosed with Gleason 8 in March and his PSMA PET result just came back with N1M1a (details in bio page). Before the PSMA PET, RO's plan is the whole pelvis with IMRT followed by a prostate only boost based on CTScan and clear bone scan and stated that his treatment
qidao23
in
Advanced Prostate Cancer
1 year ago
Referrals??
As you may know from my previous posts, I've been considering the estradiol patch, as the side effects of 4 years of ADT are mounting. (Spinal Fracture, Osteopenia, Fatigue, bone, joint and and muscle pain as well as general sick feeling. I have discussed on two occasions with my MO, and he is NOT
As you may know from my previous posts, I've been considering the estradiol patch, as the side effects of 4 years of ADT are mounting. (Spinal Fracture, Osteopenia, Fatigue, bone, joint and and muscle pain as well as general sick feeling. I have discussed on two occasions with my MO, and he is NOT
Hidden
in
Advanced Prostate Cancer
1 year ago
Casodex after castration resistance?
After being undetectable on mono HT (Zoladex) for 67 months my dad's PSA started climbing in December 2022. In March it was 0.05. His testosterone level also rose from 0.6 to 1.2. The doctor recommended to add Casodex. After a month, in April his PSA was 0.024 and testosterone was 0.9. I have two questions
After being undetectable on mono HT (Zoladex) for 67 months my dad's PSA started climbing in December 2022. In March it was 0.05. His testosterone level also rose from 0.6 to 1.2. The doctor recommended to add Casodex. After a month, in April his PSA was 0.024 and testosterone was 0.9. I have two questions
Nestorian
in
Advanced Prostate Cancer
1 year ago
Need an Advise and Info on Very Experienced Doctors and Centers to do Proton Treatment of the Prostate in Oligometastatic Setting
I have oligometastatic prostate cancer (I have very detailed profile if someone has time). PSA picked in 2020 at 13,000+ ng/mL and recent on the 1st of May 2023 it was 0.07 ng/mL. I have some of the cancer that is FDG+ and PSMA-. I'm hormone sensitive. After the treatments that you can see listed
I have oligometastatic prostate cancer (I have very detailed profile if someone has time). PSA picked in 2020 at 13,000+ ng/mL and recent on the 1st of May 2023 it was 0.07 ng/mL. I have some of the cancer that is FDG+ and PSMA-. I'm hormone sensitive. After the treatments that you can see listed
CurrentSEO
in
Advanced Prostate Cancer
1 year ago
Casodex
Is anyone doing only Casodex for their ADT together with their salvage rad? Are there any disadvantages for a six month course? Seems like it would make T recovery less of a problem.
Is anyone doing only Casodex for their ADT together with their salvage rad? Are there any disadvantages for a six month course? Seems like it would make T recovery less of a problem.
ElRanchoDePoisonIvy
in
Advanced Prostate Cancer
1 year ago
Worrying study on long-term ADT (esp Enza)
I just came across a study (2019 International Journal of Pharmacology) that suggests that long-term use of ADT can cause neuroendicrine differentiation, leading to rapid spread and more aggressive spread. (the article was actually about the use of propanalol to counteract the effect of NED, but the
I just came across a study (2019 International Journal of Pharmacology) that suggests that long-term use of ADT can cause neuroendicrine differentiation, leading to rapid spread and more aggressive spread. (the article was actually about the use of propanalol to counteract the effect of NED, but the
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
No Longer Undetectable, PSMA-CT Results
I posted a few days ago about the fact that my husband had been undetectable since his prostate was removed in April of 2021. And then on 3/31 his PSA was 6.3 and on 4/03 it was 7.1. The oncologist ordered a PSMA-CT scan and that was done today. The oncologist's PA called us with the results and she
I posted a few days ago about the fact that my husband had been undetectable since his prostate was removed in April of 2021. And then on 3/31 his PSA was 6.3 and on 4/03 it was 7.1. The oncologist ordered a PSMA-CT scan and that was done today. The oncologist's PA called us with the results and she
DesertDaisy
in
Fight Prostate Cancer
1 year ago
No Longer Undetectable, PSMA Results
I posted a few days ago about the fact that my husband had been undetectable since his prostate was removed in April of 2021. And then on 3/31 his PSA was 6.3 and on 4/03 it was 7.1. The oncologist ordered a PSMA-CT scan and that was done today. The oncologist's PA called us with the results and she
I posted a few days ago about the fact that my husband had been undetectable since his prostate was removed in April of 2021. And then on 3/31 his PSA was 6.3 and on 4/03 it was 7.1. The oncologist ordered a PSMA-CT scan and that was done today. The oncologist's PA called us with the results and she
DesertDaisy
in
Advanced Prostate Cancer
1 year ago
ADT Recommendations
I'm probably looking at starting salvage radiation soon with 4-6 months of ADT. The doc suggests starting with Casodex and then two sequential Lupron shots. Is there a better way to do ADT for that period? I'd like to get my testosterone back quickly at the end of the treatment period if possible.
I'm probably looking at starting salvage radiation soon with 4-6 months of ADT. The doc suggests starting with Casodex and then two sequential Lupron shots. Is there a better way to do ADT for that period? I'd like to get my testosterone back quickly at the end of the treatment period if possible.
ElRanchoDePoisonIvy
in
Advanced Prostate Cancer
1 year ago
Encouraging folks to stay on their MS treatment
Wishing everyone a Happy Spring! In May or June I'll be having my next MRI to see if going back on my old drug (Avonex) after being off treatment for a year worked. I'm 68 and I was on Avonex for many years. A year ago, my neurologist wanted me to try Aubagio, but after three months I developed Neuropathy
Wishing everyone a Happy Spring! In May or June I'll be having my next MRI to see if going back on my old drug (Avonex) after being off treatment for a year worked. I'm 68 and I was on Avonex for many years. A year ago, my neurologist wanted me to try Aubagio, but after three months I developed Neuropathy
Workerbea
in
My MSAA Community
1 year ago
PSMAddition Phase 1/2 Results?
So my story seems to be evolving quickly. Last August with, psa around 1.4, a psma pet picked up an 8 mm lesion in my right lung and nothing else. Too small to biopsy. Everyone unsure what it was. In November my psa was stable at around 1.4 and a ct scan indicated the lesion was unchanged. Too small
So my story seems to be evolving quickly. Last August with, psa around 1.4, a psma pet picked up an 8 mm lesion in my right lung and nothing else. Too small to biopsy. Everyone unsure what it was. In November my psa was stable at around 1.4 and a ct scan indicated the lesion was unchanged. Too small
Hidden
in
Advanced Prostate Cancer
1 year ago
Any Long-term Aubagio Users?
Hi All, As you know, I switched to Aubagio (after self-injecting Avonex for 25 years) last year. April 2023 has been one full year of my new treatment. I enjoy the simplicity of the once-a-day pill, but I don't enjoy the side effects (hair thinning & loss, GI issues: bad gas, diarrhea). My MRI's
Hi All, As you know, I switched to Aubagio (after self-injecting Avonex for 25 years) last year. April 2023 has been one full year of my new treatment. I enjoy the simplicity of the once-a-day pill, but I don't enjoy the side effects (hair thinning & loss, GI issues: bad gas, diarrhea). My MRI's
DM0329
in
My MSAA Community
1 year ago
Nasal sprays
hi fellow sufferers,can I ask for help.My RLS is unbearable lately, I've been prescribed a nasal spray called
Nasonex
used to shrink Polyps.
hi fellow sufferers,can I ask for help.My RLS is unbearable lately, I've been prescribed a nasal spray called
Nasonex
used to shrink Polyps.
Whymelord
in
Restless Legs Syndrome
2 years ago
Calling Former & Current Aubagio Users
FWIW, I started Aubagio 14 mg April 15, 2022. So, it's been nearly one year since I started this tx. I had been self-injecting Avonex (1997) since I was dx in 1994. I just started Menopause too. Ugh. I didn't realize that Menopause causes substantial hair loss too. I love the simplicity of Aubagio
FWIW, I started Aubagio 14 mg April 15, 2022. So, it's been nearly one year since I started this tx. I had been self-injecting Avonex (1997) since I was dx in 1994. I just started Menopause too. Ugh. I didn't realize that Menopause causes substantial hair loss too. I love the simplicity of Aubagio
DM0329
in
My MSAA Community
1 year ago
NUBEQA (darolutimide) as MONOTHERAPY (no lupron or similar)?
I’ve seen two posts today in a couple of threads stating that they’re currently on NUBEQA, or will soon be as a monotherapy without first line ADT like casodex or Lupron. One gent says after 7 months he’s got testosterone levels of 700 with undetectable PSA and no progression on scans. Another says
I’ve seen two posts today in a couple of threads stating that they’re currently on NUBEQA, or will soon be as a monotherapy without first line ADT like casodex or Lupron. One gent says after 7 months he’s got testosterone levels of 700 with undetectable PSA and no progression on scans. Another says
Gl448
in
Advanced Prostate Cancer
1 year ago
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