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Myopathy
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Disability benefit or just tough luck?
Hi, though my cervical
myopathy
affects my life in weird and not so wonderful ways, I have learned that if I keep quiet and do not do anything to aggrevate the damage already there, I can lead a reasonable life. This rules out the work I had been doing for the past few decades.
Hi, though my cervical
myopathy
affects my life in weird and not so wonderful ways, I have learned that if I keep quiet and do not do anything to aggrevate the damage already there, I can lead a reasonable life. This rules out the work I had been doing for the past few decades.
jointpain
in
Cervical Myelopathy
5 years ago
Steroid myopathy or PMR..? What’s the difference
I’ve checked some earlier threads on this, but I’m confused... I guess we generally understand what we (those on the trip) mean by PMR pain. In my experience, it differs from OA. It’s not also different to ‘nerve’ pain...it’s less intense. Not better, just not the same. I had a phone consultation with
I’ve checked some earlier threads on this, but I’m confused... I guess we generally understand what we (those on the trip) mean by PMR pain. In my experience, it differs from OA. It’s not also different to ‘nerve’ pain...it’s less intense. Not better, just not the same. I had a phone consultation with
Hidden
in
PMRGCAuk
5 years ago
GRAVES AND THYROTOXICOSIS : NEURAL AND MENTAL CHANGES
Muscle fibrillations are not a usual part of the syndrome, but they may occur in chronic thyrotoxic
myopathy
. Polyneuropathy has also been reported. [279] More severe neurologic problems also occur during Graves' disease ( Table 10-5).
Muscle fibrillations are not a usual part of the syndrome, but they may occur in chronic thyrotoxic
myopathy
. Polyneuropathy has also been reported. [279] More severe neurologic problems also occur during Graves' disease ( Table 10-5).
ling
in
Thyroid UK
5 years ago
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PATCH ON LUNG
Not circularity nor
myopathy
or diabetes, so the tests began. She is also planned to have an echo next week for everyone indicated a possible heart problem UNTIL the routine x-ray.
Not circularity nor
myopathy
or diabetes, so the tests began. She is also planned to have an echo next week for everyone indicated a possible heart problem UNTIL the routine x-ray.
Hidden
in
The Roy Castle Lung Cancer Foundation
5 years ago
GRAVES AND THYROTOXICOSIS : MUSCLES
This wasting may go so far as to bear a close resemblance to progressive muscular atrophy; occasionally the
myopathy
may shade into the picture of a polymyositis.
This wasting may go so far as to bear a close resemblance to progressive muscular atrophy; occasionally the
myopathy
may shade into the picture of a polymyositis.
ling
in
Thyroid UK
5 years ago
Steroid myopathy (muscle/ tendon weakness)
Has anyone experienced steroid
myopathy
? How do you know if any weakness/ aches is this caused by pred or the need for more pred due to extra stress/ hitting a tapering wall?
Has anyone experienced steroid
myopathy
? How do you know if any weakness/ aches is this caused by pred or the need for more pred due to extra stress/ hitting a tapering wall?
mrsQuics
in
PMRGCAuk
5 years ago
Request for thyrotoxic myopathy wisdom
Hi all, I was recently diagnosed with graves disease and I am fairly certain I have TM as well. After doing hours of research, I am not expecting to get much help from my doctor unless I see a specialist (which id greatly appreciate if anybody has one in NYC they’d recommend). I am experiencing rather
Hi all, I was recently diagnosed with graves disease and I am fairly certain I have TM as well. After doing hours of research, I am not expecting to get much help from my doctor unless I see a specialist (which id greatly appreciate if anybody has one in NYC they’d recommend). I am experiencing rather
Ethannyc1
in
Thyroid UK
5 years ago
Keep moving folks.
Steroid
myopathy
horrible. Can sit or stand. I’m done.
Steroid
myopathy
horrible. Can sit or stand. I’m done.
Nap1
in
PMRGCAuk
5 years ago
Back on Prednisolone
I saw a private Rheum End March who said he was unconvinced too, ordered hands, shoulder US scans and also Electrical stimulation tests , as he thought I might have
myopathy
of some sort. While waiting for them ( NHS) I became almost imobile and rather miserable.
I saw a private Rheum End March who said he was unconvinced too, ordered hands, shoulder US scans and also Electrical stimulation tests , as he thought I might have
myopathy
of some sort. While waiting for them ( NHS) I became almost imobile and rather miserable.
Breconblue
in
PMRGCAuk
5 years ago
For our GCAPro. Surgery/relapse
I need several more eye surgeries but the knee is pretty important because all else is failing with the steroid
myopathy
. My New Jersey rheumatologist believes I can go down quickly while on the shots. I would like to hear what you folks think. Thank you very much. Marilyn
I need several more eye surgeries but the knee is pretty important because all else is failing with the steroid
myopathy
. My New Jersey rheumatologist believes I can go down quickly while on the shots. I would like to hear what you folks think. Thank you very much. Marilyn
Nap1
in
PMRGCAuk
5 years ago
HERE WE GO AGAIN
On the plus side the Human Genetics Doctor has sent my bloods away (stored blood from 2001 as they never destroy their samples) to be tested for CMT and a final diagnosis of what kind of
Myopathy
I actually suffer from, so well done Dr.
On the plus side the Human Genetics Doctor has sent my bloods away (stored blood from 2001 as they never destroy their samples) to be tested for CMT and a final diagnosis of what kind of
Myopathy
I actually suffer from, so well done Dr.
LoolooLacey2
in
Charcot-Marie-Tooth UK
5 years ago
PROGRESS!
He has also sent my blood samples from way back in 2002 for more research into my
myopathy
.
He has also sent my blood samples from way back in 2002 for more research into my
myopathy
.
LoolooLacey2
in
Charcot-Marie-Tooth UK
5 years ago
Hydroxychloroquine
I have awful side effects: myosotis, itch,
myopathy
, headache, vomiting, general oedema (particularly thighs / sacral area), pain, swelling and the list goes on. Now I have to wait and see what happens now I’ve stopped. Would love to hear your stories please. I read your posts everyday. Xx
I have awful side effects: myosotis, itch,
myopathy
, headache, vomiting, general oedema (particularly thighs / sacral area), pain, swelling and the list goes on. Now I have to wait and see what happens now I’ve stopped. Would love to hear your stories please. I read your posts everyday. Xx
Greentomatoes
in
LUPUS UK
6 years ago
Is anyone else atypical ?
I've been checked for ankylosing spondylitis and tested for myositis and
myopathy
because my creatine kinase was ' moderately elevated' , although the sample was taken as an afterthought by my GP whilst I was already on 30mg prednisone .
I've been checked for ankylosing spondylitis and tested for myositis and
myopathy
because my creatine kinase was ' moderately elevated' , although the sample was taken as an afterthought by my GP whilst I was already on 30mg prednisone .
katiemills
in
PMRGCAuk
6 years ago
Something to be aware of when taking Gapbapentin or Pregabalin.
After reviewing dozens of animal studies, clinical studies and case studies, they concluded that:[3] “[Neurontin] can induce diverse side effects such as teratogenicity, hypoventilation, respiratory failure, deficits in visual field,
myopathy
, self-harm behavior, suicidal behavior, mitochondrial toxicity
After reviewing dozens of animal studies, clinical studies and case studies, they concluded that:[3] “[Neurontin] can induce diverse side effects such as teratogenicity, hypoventilation, respiratory failure, deficits in visual field,
myopathy
, self-harm behavior, suicidal behavior, mitochondrial toxicity
Goldy700
in
Restless Legs Syndrome
6 years ago
Breathless
My GP keeps telling me I have steroid
myopathy
as I have muscle weakness in arms and thighs and must keep the taper going. Now at 12.5 mg on alternate days, the breathlessness is not improving. Lungs are ok after CT scan of arteries, heart (2 stents) ok.
My GP keeps telling me I have steroid
myopathy
as I have muscle weakness in arms and thighs and must keep the taper going. Now at 12.5 mg on alternate days, the breathlessness is not improving. Lungs are ok after CT scan of arteries, heart (2 stents) ok.
coda123
in
PMRGCAuk
6 years ago
Cramping feet and hands ?
I thought around then that I may have been developing some Pred related
myopathy
after raising my Pred dose for the 2nd time to 30mg - with a feeling of tightness/constriction and some pain in both my hands and feet occasionally.
I thought around then that I may have been developing some Pred related
myopathy
after raising my Pred dose for the 2nd time to 30mg - with a feeling of tightness/constriction and some pain in both my hands and feet occasionally.
Rimmy
in
PMRGCAuk
6 years ago
How does steroid myopathy differ from pmr? Consultant now says stiffness is myopathy, but it wears off during the day.
Desperate to get off steroids but this stiffness seems familiar.
Desperate to get off steroids but this stiffness seems familiar.
Cally55
in
PMRGCAuk
6 years ago
A clinical trial of Niagen for a neurological disorder.
First the study: - Effective treatment of mitochondrial
myopathy
by nicotinamide riboside, a vitamin B3 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4203351/ - In the study researchers cured mice that had a genetically caused disorder that impacts the brain in a way that has similarities to what
First the study: - Effective treatment of mitochondrial
myopathy
by nicotinamide riboside, a vitamin B3 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4203351/ - In the study researchers cured mice that had a genetically caused disorder that impacts the brain in a way that has similarities to what
sunvox
in
Cure Parkinson's
6 years ago
Clinical trial of Niagen for treatment of a neurological disorder.
First the study: - Effective treatment of mitochondrial
myopathy
by nicotinamide riboside, a vitamin B3 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4203351/ - In the study researchers cured mice that had a genetically caused disorder that impacts the brain in much the same way many ataxic brains are
First the study: - Effective treatment of mitochondrial
myopathy
by nicotinamide riboside, a vitamin B3 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4203351/ - In the study researchers cured mice that had a genetically caused disorder that impacts the brain in much the same way many ataxic brains are
sunvox
in
Ataxia UK
6 years ago
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