Back at renal clinic today and doc very happy with way things are going so hopefully things are on the up. Bloods fine, haemoglobin back up so no longer anaemic, kidneys doing ok, still blood and protein in pee but cant have everything. Steroids being reduced so moon face may start to go down! Got side effects from mycophenolate but if they are helping then so be it.
Docs (specialists and my own gp) have been brilliant and I really feel for those of you who arent getting the support and help you need from your docs.
I think I must be one of the lucky ones and am just hoping the meds keep working and gets this flare under control althoug knowing me when things are going well something bad usually happens so we'll just think positive!
Best of luck to all of you who are struggling at the minute. Keep smiling