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Mycophenolate
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Mycophenolate Mofetil
I've recently started taking
Mycophenolate
Mofetil and I have been getting terrible abdominal bloating. Does anyone else experience this too... any ideas to ease it?
I've recently started taking
Mycophenolate
Mofetil and I have been getting terrible abdominal bloating. Does anyone else experience this too... any ideas to ease it?
Bethb
in
Behçet's UK
10 years ago
Hot Bath
I was diagnosed as having Churg Strauss last July (2013) and am just getting to grips with treatment of 3g of
mycophenolate
per day. Do others find that taking a hot bath is beneficial? I get in the bath as I'm running it so that I can get it hotter without the initial shock of the hot water.
I was diagnosed as having Churg Strauss last July (2013) and am just getting to grips with treatment of 3g of
mycophenolate
per day. Do others find that taking a hot bath is beneficial? I get in the bath as I'm running it so that I can get it hotter without the initial shock of the hot water.
jaydub
in
Vasculitis UK
10 years ago
Itching and abdo drain post transplant
I'm on Prograf and
Mycophenolate
.
I'm on Prograf and
Mycophenolate
.
vickywaterloo
in
Kidney Transplant Patient Support
10 years ago
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Anyone else who has to ask for Mycophenolate & Hydroxy every month from GP instead of having it on repeat prescription?
They then prescribed me
Mycophenolate
.
They then prescribed me
Mycophenolate
.
tcogb
in
LUPUS UK
10 years ago
Mycophenolate Mofetil & Abdominal Bloating - does anyone get abdominal bloating with this medication? if so, does anything help?
Bethb
in
Behçet's UK
10 years ago
Our son has been diagnosed with palindromic rheumatism but is not responding to treatment? Anyone able to help?
He has tried Azathioprine, Methotrexate and
Mycophenolate
Mofetil, and Amytriptilene, all without success. The only thing that helps him are high doses of steroids (which they obviously cannot maintain for long periods) and HUGE doses of morphine.
He has tried Azathioprine, Methotrexate and
Mycophenolate
Mofetil, and Amytriptilene, all without success. The only thing that helps him are high doses of steroids (which they obviously cannot maintain for long periods) and HUGE doses of morphine.
Rockhopper
in
Hughes Syndrome APS Forum
10 years ago
Newly diagnosed with Cirrohsis
I was put on
Mycophenolate
which I didn't tolerate very well so I stopped taking. Should mention I can't have Azathiaprin.
I was put on
Mycophenolate
which I didn't tolerate very well so I stopped taking. Should mention I can't have Azathiaprin.
nico111
in
British Liver Trust
10 years ago
Does anyone have trouble sleeping on mycophenolate?
I have just upped my
mycophenolate
dose to 750mg in the morning and 750mg at night. I have been suffering ever since with trouble sleeping. It's driving me crazy! Has anyone else experienced this atall? Will I get used to them after a while and be able to sleep?
I have just upped my
mycophenolate
dose to 750mg in the morning and 750mg at night. I have been suffering ever since with trouble sleeping. It's driving me crazy! Has anyone else experienced this atall? Will I get used to them after a while and be able to sleep?
joannebond360
in
LUPUS UK
10 years ago
Mycophenolate question
I have been on
mycophenolate
for two weeks, I have had a cold for weeks which seems to finally be getting better. I have swollen, really painful glands on my neck and armpits. Is this anything to worry about? Keep reading that you have to report to your gp with that, don't have a temperature.
I have been on
mycophenolate
for two weeks, I have had a cold for weeks which seems to finally be getting better. I have swollen, really painful glands on my neck and armpits. Is this anything to worry about? Keep reading that you have to report to your gp with that, don't have a temperature.
joannebond360
in
LUPUS UK
10 years ago
Drugs refused funding...
Six years after diagnosis of Takayasu's Arteritis I seem to have gone through all the immunosuppressants (aza,
mycophenolate
, cyclo, MTX) all of which I've either not tolerated or haven't satisfactorily kept it under control.
Six years after diagnosis of Takayasu's Arteritis I seem to have gone through all the immunosuppressants (aza,
mycophenolate
, cyclo, MTX) all of which I've either not tolerated or haven't satisfactorily kept it under control.
JElsom
in
Vasculitis UK
10 years ago
Myfenax(Mycophenolate mode till. does anyone take these.
sully14
in
Behçet's UK
10 years ago
Anyone else with SLE related pelvic girdle synovitis of sacrum & hip joints responding to mycophenolate?
exercise (Pilates, yoga etc), antiinflammation diet & supplements, meditation, pacing myself/rationing activity, mindfulness etc etc, but all that has only helped "so much"....this is why I was so thrilled by the help pred tapers do give me, and why i now have high hopes for myco I'm about to try
mycophenolate
exercise (Pilates, yoga etc), antiinflammation diet & supplements, meditation, pacing myself/rationing activity, mindfulness etc etc, but all that has only helped "so much"....this is why I was so thrilled by the help pred tapers do give me, and why i now have high hopes for myco I'm about to try
mycophenolate
Barnclown
in
LUPUS UK
10 years ago
Mycophenolate and migraine/headaches?
Since I've upped my
mycophenolate
(CellCept) to 1.5g per day few weeks back, I've been having constant headaches and for the past few days those headaches have upgraded to migraines, those being so painful that I was actually considering going to A&E!
Since I've upped my
mycophenolate
(CellCept) to 1.5g per day few weeks back, I've been having constant headaches and for the past few days those headaches have upgraded to migraines, those being so painful that I was actually considering going to A&E!
Purpletop
in
LUPUS UK
10 years ago
I have been asked to share my story. Make yourself comfy and I will begin .......
On to
Mycophenolate
which helped but in 2008 I was becoming increasingly fatigued and grumbling disease was present. So I was offered Rituximab. One infusion before Christmas, one 2 weeks later.
On to
Mycophenolate
which helped but in 2008 I was becoming increasingly fatigued and grumbling disease was present. So I was offered Rituximab. One infusion before Christmas, one 2 weeks later.
Moley1
in
Vasculitis UK
10 years ago
Side effects
I've been on
Mycophenolate
for about 2 weeks now. I take 1 x 500mg in the morning and 1 in the evening both with food.
I've been on
Mycophenolate
for about 2 weeks now. I take 1 x 500mg in the morning and 1 in the evening both with food.
tcogb
in
LUPUS UK
10 years ago
When NOT in a flare, do you still have residual symptoms?
I've been on
mycophenolate
(CellCept) since June and although symptoms have improved a lot in the main, I still have daily tiredness of various degrees (ranging from slightly sleepy to exhausted), muscle and joint pain here and there (although not consistently), hair loss of various degrees (from handfuls
I've been on
mycophenolate
(CellCept) since June and although symptoms have improved a lot in the main, I still have daily tiredness of various degrees (ranging from slightly sleepy to exhausted), muscle and joint pain here and there (although not consistently), hair loss of various degrees (from handfuls
Purpletop
in
LUPUS UK
10 years ago
Rheumy recommended I consider adding mycophenolate to my other meds as lupus seems to be getting more active. Im on hydroxy and adipine,
Scared because of bad reactions to sulphasalazine and methotrexate, any advice or experiences welcome. Thanks jo
Scared because of bad reactions to sulphasalazine and methotrexate, any advice or experiences welcome. Thanks jo
jo100
in
LUPUS UK
10 years ago
Anyone: have you been diagnosed with Achenbach syndrome (paroxysmal haematoma of fingers (& toes)) or Ehlers Danlos?
She says the SLE treatment plan I'm on is appropriate (plaquenil, Amitriptyline, pred tapers & about to start
mycophenolate
+ all my 'holes' have treatment plans which are more or less effective (eyes, mouth, nose, undercarriage (sorry)) and no extra treatment for my bleeds is necessary because there
She says the SLE treatment plan I'm on is appropriate (plaquenil, Amitriptyline, pred tapers & about to start
mycophenolate
+ all my 'holes' have treatment plans which are more or less effective (eyes, mouth, nose, undercarriage (sorry)) and no extra treatment for my bleeds is necessary because there
Barnclown
in
The Australian Sjögren's Syndrome Association
10 years ago
Has anyone had enlarged red blood cells and/or vitamin B12 deficiency?
Had a routine blood test to establish baseline bloods prior to starting on
Mycophenolate
(I have a recent diagnosis of SLE overlapping with MCTD) and my GP called to say I had enlarged red blood cells which could be down to any number of factors (including lab error) but on next weekly blood test she
Had a routine blood test to establish baseline bloods prior to starting on
Mycophenolate
(I have a recent diagnosis of SLE overlapping with MCTD) and my GP called to say I had enlarged red blood cells which could be down to any number of factors (including lab error) but on next weekly blood test she
tcogb
in
LUPUS UK
10 years ago
Pain under the fingernails and toenails
I'm on Plaquenil and
mycophenolate
mofetil.
I'm on Plaquenil and
mycophenolate
mofetil.
Purpletop
in
LUPUS UK
11 years ago
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