Experiences with

Myasthenia gravis

The BTF has updated its site and leaflets on hyperthyroidism: https://www.btf-thyroid.org/hyperthyroidism There is an update on Project Daviad, the trial of antigen-specific immunotherapy in Graves’ disease: https://www.btf-thyroid.org/research-news-graves-disease They've updated the leaflet on antithyroid

This started in February 2019 and I’m not really much further along in terms of diagnosis - all health professionals I have seen so far are convinced that my symptoms are due to Myasthenia Gravis, however, all my blood tests have been normal, hence, no diagnosis.

Does anyone have antiphospholipid syndrome and myasthenia gravis. My brother has myasthenia gravis and i have APS and mctd. I realized when i recently saw him that we walk alike and experience so many of the same symptoms then I started thinking that I should be tested for myasthenia gravis

Thyroid UK has been approached about a clinical trial investigating a new drug for Graves’ disease and wondered if you or anyone else you know might be interested in taking part. This phase I study is investigating a potential new drug, K1-70, to treat patients who have Graves’ disease, thyroid cancer

I had hypertrophy of muscles that looked like muscular dystrophy and I had fatigue that looked like myasthenia gravis. I didn't see fasciculations in my muscles at first, but when I learned what to look for, tongue fasciculations were obvious.

The ophthalmologist is a retina specialist, very good doctor worked on my mom's eye from myasthenia gravis. Still going strong at 90!

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FDA Alert - FDA Warns About Serious Breathing Problems with Seizure and Nerve Pain Medicines Gabapentin (Neurontin, Gralise, Horizant) and Pregabalin (Lyrica, Lyrica CR) in Patients with Respiratory Risk Factors

Posting for a friend. She has had Rheumatoid Arthritis for a number of years and was doing very well in recent months. In the last 5/6 weeks she has noticed a weird lump on her neck (not by her thyroid, it's under her jaw (see pic) - it's about a size of a grape), and has developed a very itchy rash

Hi I have a slight overactive thyroid gland they said they wouldn’t normally give medications for this level but cause I was having shaking body and feeling ill he gave me a week course , is this Graves’ disease :(

“M.G.” myasthenia gravis. This rare disease is sometimes, bizarrely, associated with a tumour of the thymus gland. What is the thymus gland? It is a soft gland, found in youngsters, at the top of the chest. By the time the child is 6 or 7, the thymus has disappeared. What is it for?

Hi does anyone know if it is ok to take the herbal tablet ashwangandha when also on levothyroxine for underactive thyroid. I was taking it for three weeks and was beginning to feel more calm less anxious and irritable and tired. But then found out it could help with underactive thyroid by raising thyroid

In January 2018 i was diagnosed with generalised Myasthenia Gravis and I was wondering if any other B12 sufferer had this rare condition as well. Thanks to my excellent neurologist my MG is under control.

Hi! Hope everyone is well. I’ve recently been diagnosed with Graves’ disease and am on carbimazole. I feel better now on the meds but I do get a lot of joint pain, mostly in my shoulder blade but also in my wrists/fingers. I get shooting pains around my shoulder too and Muscle twitches in my back and

Thyroid UK has been approached about a clinical trial investigating a new drug for Graves’ disease and wondered if you or anyone else you know might be interested in taking part: "Illingworth Research Group Ltd is coordinating this phase I study - https://clinicaltrials.gov/ct2/show/NCT02904330. - investigating

This new paper in Thyroid describes using immunotherapy to alleviate Graves hyperthyroidism. Free access A possible useful start to alternatives to removing the t thyroid or carbimazole: Thyroid Vol. 29, No. 7 Immunology, Autoimmunity, and Graves’ Ophthalmopathy Antigen-Specific Immunotherapy with

There is none lasting cure for Grave's Disease. It can only be managed through tablets like carbimazole. For many years the Endocrinologists follow a standard for treating Graves Disease. Nothing has changed there is non progressive evidence that a break through in treating Graves Disease has been proven

Has anybody been diagnosed with Graves’ disease and also have a toxic nodule. I am confused. I thought they were two different things. I had Graves’ disease 20 years ago and went into remission.

I was diagnosed with M.E and Fibromylgia and IBS, years ago, but I am seriously wondering now if I may have Myasthenia Gravis and been wrongly diagnosed. I have continuous eye troubles too and have been disabled since about 1986, after 3 years confined to bed.

Everyone is different, and what works for one may not for another. I suffered with RLS for so long, I can’t even remember how long. However in the past 5 years it had become unbearable. I wouldn’t sleep for days on end. I was depressed, tired, and thoughts of suicide starting dancing around in my pea