Australian Senate: Question asked what are... - Ramsays Disease

Ramsays Disease

567 members470 posts

Australian Senate

millysent profile image
8 Replies

Question asked what are we doing for ME and the answer is not a lot.

Transcript of the meeting scott-ludlam.greensmps.org....

Written by
millysent profile image
millysent
To view profiles and participate in discussions please or .
8 Replies
Dunnlyn profile image
Dunnlyn

Bio or psych research $2 million on psych and nothing has been done.

KMC442 profile image
KMC442 in reply to Dunnlyn

Between 2000 and 2013 $2 million on research is tragic.

Ian123 profile image
Ian123

The Medical Research Council yesterday (12 April 2012) filed new overviews at its website of the five ME/CFS research projects it agreed to fund at the end of last year. The total value of their funding is £1.6m spread over the next three years – though some of the projects are due to be completed earlier than that.

The first biological research funded by the MRC so not a lot in the UK either, think I can see a common pattern emerging.

carch520 profile image
carch520

Excuse now cutbacks we're broke see it a mile off.

Theresa60 profile image
Theresa60

Finally the questions are asked when the normal stand has been ignorance and patient abuse from neglect/stigma as a shirkers charter.

rocketronnie profile image
rocketronnie

Gibson inquiry meactionuk.org.uk/The_Gibso...

had answers of not a lot.

illiad2 profile image
illiad2

Facing problems with disbelieving GP's a lack of research affects the perceptions of GP's because all they have to read at present is the constant digest of bio-psycho-social theories generated by Somatoform Psychiatrists promoting Cognitive Behavioural Therapy and Graded Exercise Therapy created by the very same psychiatrists, funded by the Medical Research Council and supported by our Government.

Controlling influence within Science Media Centre sciencemediacentre.org/

continues with latest bias displayed October 28th, null results presented with appalling

ethical standards directly resulting in the Telegraph, science correspondent Sarah Knapton proclaiming ME is not a chronic condition.

Prof. Rona Moss-Morris, presented this reaction sciencemediacentre.org/expe... with obvious bias in favour of colleagues. Contrast this with Science Media Centre handling of "Robust evidence CFS is a biological illness" mailman.columbia.edu/public... critiqued for the Science Media Centre by Prof Michael Sharpe telegraph.co.uk/news/scienc...

"Prof Michael Sharpe, Professor of Psychological Medicine, University of Oxford, said Whilst this finding that some patients with CFS/ME have an immune abnormality is potentially interesting, we should treat it with great caution"

Prof Michael Sharpe a lead author of the PACE trial possesses no expertise in biological medicine warranting comment, inclusion in this article demonstrates psychiatry's influence within the Science Media Centre, distorting the reports shaping a public perception of this illness.

Seascape profile image
Seascape in reply to illiad2

Wonderful insight into murky politics that have further blighted patients.