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Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
11 months ago
Does anyone know if you can take eltroxin along with progesterone and estradot patches / vagifem
I’m on thyroid meds /-eltroxin .I take these in the morning on an empty stomach I’m going on the above HRT meds . Shall I take them in the evening after food ? Eltroxin states on the leaflet that HRT may Interact ? Pharmacist says there should be no interaction ? Maybe I should get my bloods done
I’m on thyroid meds /-eltroxin .I take these in the morning on an empty stomach I’m going on the above HRT meds . Shall I take them in the evening after food ? Eltroxin states on the leaflet that HRT may Interact ? Pharmacist says there should be no interaction ? Maybe I should get my bloods done
Cecy69
in
Thyroid UK
11 months ago
pre lap care (long post)
I haven’t had my endometriosis confirmed by lap yet, I’m awaiting mri and I’m on a 2 year wait list for laparoscopy surgery after 8 nearly 9 years of waiting to be somewhat listened to- I had my first gynae app on the 16th and was told I could use contraceptive to help the affects until my lap (in 2
I haven’t had my endometriosis confirmed by lap yet, I’m awaiting mri and I’m on a 2 year wait list for laparoscopy surgery after 8 nearly 9 years of waiting to be somewhat listened to- I had my first gynae app on the 16th and was told I could use contraceptive to help the affects until my lap (in 2
Luna-rat
in
Endometriosis UK
1 year ago
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Radiation treatment for gynecomastia? Anyone?
As we all know, ADT treatments can cause a side effect known as gynecomastia. I am experiencing gynecomastia after being on Orgovyx and am considering the radiation treatment for it. Has anyone out there done the radiation treatment for gynecomastia? How did it work out for you? Did you experience
As we all know, ADT treatments can cause a side effect known as gynecomastia. I am experiencing gynecomastia after being on Orgovyx and am considering the radiation treatment for it. Has anyone out there done the radiation treatment for gynecomastia? How did it work out for you? Did you experience
Explorer08
in
Advanced Prostate Cancer
11 months ago
Increased Levothyroxine dose or HRT
Hi It’s me again. I’m currently on 75mg of Levothyroxine and am still symptomatic but my GP won’t increase my Levothyroxine and has attributed my symptoms .. weight gain , aching joints, dry hair and brain fog down to hormones and has suggested HRT patches Does anytime have any advice regarding HRT
Hi It’s me again. I’m currently on 75mg of Levothyroxine and am still symptomatic but my GP won’t increase my Levothyroxine and has attributed my symptoms .. weight gain , aching joints, dry hair and brain fog down to hormones and has suggested HRT patches Does anytime have any advice regarding HRT
Gyp101
in
Thyroid UK
11 months ago
Emotional lability and LT ADT
At certain times of extra stress, like awaiting a PSA test result, I have gotten into wrist-slap trouble by making awkward humor and remarks to Clinic staff. They get PO'ed and tattle to my MO. It's really not like me and the latest incident prompted me to look into ADT and emotional SE's. Bingo!
At certain times of extra stress, like awaiting a PSA test result, I have gotten into wrist-slap trouble by making awkward humor and remarks to Clinic staff. They get PO'ed and tattle to my MO. It's really not like me and the latest incident prompted me to look into ADT and emotional SE's. Bingo!
Derf4223
in
Advanced Prostate Cancer
11 months ago
No difference in SBRT vs conventionally fractionated radiation for intermediate risk patients
6-year update of PACE-B randomized trial continues to show no difference in outcomes. This month is my 13th anniversary getting cured with SBRT with no lasting side effects. https://www.prostatecancer.news/2019/02/sbrt-has-non-inferior-acute-and-late.html https://www.prostatecancer.news/2019/04/should-sbrt-be-preferred-treatment-for.html
6-year update of PACE-B randomized trial continues to show no difference in outcomes. This month is my 13th anniversary getting cured with SBRT with no lasting side effects. https://www.prostatecancer.news/2019/02/sbrt-has-non-inferior-acute-and-late.html https://www.prostatecancer.news/2019/04/should-sbrt-be-preferred-treatment-for.html
Tall_Allen
in
Prostate Cancer Network
11 months ago
Menopause
This is a post on behalf of my daughter who inherited her rls from me 😒She is peri-menopausal at the moment but thinking about hrt in the future. She has heard stories that some people have had their rls symptoms dramatically worsen when taking hrt. We were wondering if any of you have any thoughts
This is a post on behalf of my daughter who inherited her rls from me 😒She is peri-menopausal at the moment but thinking about hrt in the future. She has heard stories that some people have had their rls symptoms dramatically worsen when taking hrt. We were wondering if any of you have any thoughts
keiralee
in
Restless Legs Syndrome
11 months ago
UCLA RO says that since it's been only 4 mo since stop of 4 ms RT & 4ms orgo and my T is 80 - more t than baseline (286) may trigger cancer
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
JWS13
in
Advanced Prostate Cancer
10 months ago
Newly diagnosed
Hi, this is all very new to me as only been diagnosed with fibro in the last few months. I originally was told about 3yrs ago that all my symptoms were down to being peri- menopausal and put on hrt patches, then changed to different hrt medicines when these didn't do anything. I then saw a different
Hi, this is all very new to me as only been diagnosed with fibro in the last few months. I originally was told about 3yrs ago that all my symptoms were down to being peri- menopausal and put on hrt patches, then changed to different hrt medicines when these didn't do anything. I then saw a different
Animal99
in
Fibromyalgia Action UK
11 months ago
Hip Replacement and RA
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Angie2212
in
NRAS
1 year ago
Are We Restoring Thyroid Hormone Signaling in Levothyroxine-Treated Patients With Residual Symptoms of Hypothyroidism?
Not yet even glanced - so no comments! [i]
Are We Restoring Thyroid Hormone Signaling in Levothyroxine-Treated Patients With Residual Symptoms of Hypothyroidism?
[/i] [i]Sabina Casula MD[/i] [i]Department of Endocrinology, Miami Veterans Affairs Healthcare System, Miami, Florida[/i] [i]Matthew
Not yet even glanced - so no comments! [i]
Are We Restoring Thyroid Hormone Signaling in Levothyroxine-Treated Patients With Residual Symptoms of Hypothyroidism?
[/i] [i]Sabina Casula MD[/i] [i]Department of Endocrinology, Miami Veterans Affairs Healthcare System, Miami, Florida[/i] [i]Matthew
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Insulin
Im reading about Insulin and diabetics are more prone to PCa. What's the consensus on insulin with peeps that already have PCa? Im now on insulin until I can stop L/Z/P, or change to another ADT.
Im reading about Insulin and diabetics are more prone to PCa. What's the consensus on insulin with peeps that already have PCa? Im now on insulin until I can stop L/Z/P, or change to another ADT.
Hidden
in
Advanced Prostate Cancer
11 months ago
help with charity/grant
does anyone know any other grants/charities that could help with an iPad for my son? His broke and now it is absolute chaos as he relies so heavily on it day to day for meltdowns communication ect and I’m not currently in the financial position to afford one, thanks
does anyone know any other grants/charities that could help with an iPad for my son? His broke and now it is absolute chaos as he relies so heavily on it day to day for meltdowns communication ect and I’m not currently in the financial position to afford one, thanks
Buddysgreatadventure
in
Mencap
1 year ago
Music therapy for cognitive loss.
Bethany Cook, PsyD https://www.medicalnewstoday.com/articles/
music
-
therapy
-improves-well-being-in-people-with-dementia-and-caregivers
Bethany Cook, PsyD https://www.medicalnewstoday.com/articles/
music
-
therapy
-improves-well-being-in-people-with-dementia-and-caregivers
Gandalf2
in
Encephalitis International
2 years ago
Prostap/tibolone - regal study
Hi all, I'm 1 week into prostap and tibolone as part of the reval study and I'm not coping well. I dont want to be another horror story on the internet so to keep it brief my main concern is constant nausea (but I cant function) and worsened allergies (and I have a history of anaphylaxis as it is).
Hi all, I'm 1 week into prostap and tibolone as part of the reval study and I'm not coping well. I dont want to be another horror story on the internet so to keep it brief my main concern is constant nausea (but I cant function) and worsened allergies (and I have a history of anaphylaxis as it is).
Ash24601
in
Endometriosis UK
11 months ago
steel hardware in spine and ADT and Radiation
We are off to Mayo Phoenix tomorrow for three month post RARP check up. Not sure what will be suggested, but definitely looking for referrals to oncology and radiology oncology, due to his high/very high risk findings and pathology. He has two steel rods and 9 screws in his thoracic and lumbar spine
We are off to Mayo Phoenix tomorrow for three month post RARP check up. Not sure what will be suggested, but definitely looking for referrals to oncology and radiology oncology, due to his high/very high risk findings and pathology. He has two steel rods and 9 screws in his thoracic and lumbar spine
Lokicliff
in
Advanced Prostate Cancer
11 months ago
BCR May Not Be a Strong Surrogate End Point for Prostate Cancer Survival
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
pca2004
in
Fight Prostate Cancer
11 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
10 months ago
5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
10 months ago
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