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Munchausen's syndrome
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Finally prescribed Methadone, amazing results.
Hi all. I live on the West Coast of Canada and have suffered from RLS since earliest childhood. This past year I was put back onto Levodopa, as I had augmented on everything else available, and they decided to try an old treatment I hadn’t used in twenty years, It actually worked if I used it throughout
Hi all. I live on the West Coast of Canada and have suffered from RLS since earliest childhood. This past year I was put back onto Levodopa, as I had augmented on everything else available, and they decided to try an old treatment I hadn’t used in twenty years, It actually worked if I used it throughout
serengazer
in
Restless Legs Syndrome
3 years ago
RLS-STOPED TAKING MEDS
i have stopped taking my rls meds. ropinirole for around 2 months. it took around 8 months to slowly get off ropinirole. my rls still shows up, but only when i lay down at night to go asleep.i toss and turn for about 4 to 5 hrs before rls stops. i average about 3 hrs of sleep. this still better than
i have stopped taking my rls meds. ropinirole for around 2 months. it took around 8 months to slowly get off ropinirole. my rls still shows up, but only when i lay down at night to go asleep.i toss and turn for about 4 to 5 hrs before rls stops. i average about 3 hrs of sleep. this still better than
help3
in
Restless Legs Syndrome
3 years ago
Supplement Nichi Glucan appears safe and may be worth a PD trial - I would welcome any feedback on the linked documents.
A trial was done involving children with Autism Spectrum Disorder (ASD). However, the research paper makes a fairly good case (IMHO) for running a similar trial with PD patients. Beneficial reconstitution of gut microbiota and control of alpha-synuclein and curli-amyloids-producing enterobacteria,
A trial was done involving children with Autism Spectrum Disorder (ASD). However, the research paper makes a fairly good case (IMHO) for running a similar trial with PD patients. Beneficial reconstitution of gut microbiota and control of alpha-synuclein and curli-amyloids-producing enterobacteria,
jeffreyn
in
Cure Parkinson's
3 years ago
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My ongoing RLS battle
This is a follow up to my post “Life After Ropinirole”. Shortly after I posted my body decided it had had too many opioiods and I became more sick than I had ever gotten on opioids before. It came on suddenly without warning. No chance to make any changes to prevent it. The nausea was so very intense
This is a follow up to my post “Life After Ropinirole”. Shortly after I posted my body decided it had had too many opioiods and I became more sick than I had ever gotten on opioids before. It came on suddenly without warning. No chance to make any changes to prevent it. The nausea was so very intense
Birdland
in
Restless Legs Syndrome
3 years ago
Thyroid and sticky blood tests
I am hoping someone can give me some help and information regarding these tests which my clinic have recommended before our next transfer. A little bit of my story so far. I have had 6 transfers, transfer number 4 gave us our little girl. My last transfer ended in a MMC at 8 weeks, not sure of the reason
I am hoping someone can give me some help and information regarding these tests which my clinic have recommended before our next transfer. A little bit of my story so far. I have had 6 transfers, transfer number 4 gave us our little girl. My last transfer ended in a MMC at 8 weeks, not sure of the reason
emmaemma5
in
Fertility Network UK
3 years ago
From pramipexole and buprenorphine to what?
Hello, I am looking for any advice on withdrawing in my unique circumstance, i.e. how to drop more pramipexole and what to take when buprenorphine is withdrawn in two months time. 10 years RLS with massive augmentation, been at the point of wanting to top myself prior to trialing Targin (oxycodone with
Hello, I am looking for any advice on withdrawing in my unique circumstance, i.e. how to drop more pramipexole and what to take when buprenorphine is withdrawn in two months time. 10 years RLS with massive augmentation, been at the point of wanting to top myself prior to trialing Targin (oxycodone with
ChickenTwisty
in
Restless Legs Syndrome
3 years ago
Anyone tried a homeopath
My mum has suffered with rls for about 10 years. She's tried ropinerole, pamiprexole, skin patches, gabapentin and pregablin. All of this gave her relief at first and then symptoms returned. Next the doctor gave her topiremade, with this her rls went away however she had really bad depression symptoms
My mum has suffered with rls for about 10 years. She's tried ropinerole, pamiprexole, skin patches, gabapentin and pregablin. All of this gave her relief at first and then symptoms returned. Next the doctor gave her topiremade, with this her rls went away however she had really bad depression symptoms
Bejwo50
in
Restless Legs Syndrome
3 years ago
Is there any advantage to putting off increasing my gabapentin?
Up until about 6 weeks ago the 1500 gabapentin that I take completely controlled my restless legs. Then about once a week I got restless legs. I have exercises that I do that take about 10 minutes that allows me to go back to bed without symptoms. It seems pretty obvious to me that I will eventually
Up until about 6 weeks ago the 1500 gabapentin that I take completely controlled my restless legs. Then about once a week I got restless legs. I have exercises that I do that take about 10 minutes that allows me to go back to bed without symptoms. It seems pretty obvious to me that I will eventually
SueJohnson
in
Restless Legs Syndrome
3 years ago
Coming off Apixaban
I have been on Apixaban 5mg twice a day for 6 months now due to me having a pulmonary embolism due to being bed bound with covid. I’m due to come off my medication today as my doctor insist I not longer need treatment. I’m very nervous to stop taking the tablets and what effects it will have on my body
I have been on Apixaban 5mg twice a day for 6 months now due to me having a pulmonary embolism due to being bed bound with covid. I’m due to come off my medication today as my doctor insist I not longer need treatment. I’m very nervous to stop taking the tablets and what effects it will have on my body
Ladyshnappz
in
Hughes Syndrome APS Forum
3 years ago
NAC for RLS?
Has anyone tried NAC N-acetylcysteine? Did it help? I accidentally found this, my first thought was how could they miss this? "Glutamate can be reduced in the brains of persons with high glutamate levels within an hour of oral ingestion of N-acetylcysteine" I am taking it at the wrong time! If your
Has anyone tried NAC N-acetylcysteine? Did it help? I accidentally found this, my first thought was how could they miss this? "Glutamate can be reduced in the brains of persons with high glutamate levels within an hour of oral ingestion of N-acetylcysteine" I am taking it at the wrong time! If your
WideBody
in
Restless Legs Syndrome
3 years ago
Relief at last from RSL
Relief at last for my hubby who has suffered with RLS for more then 30 yrs to the point of not being able to sleep or sit down for as long as 52 hours at at time sometimes. Horrible torment. But 3weeks into taking Liquid Magnesium and Liquid Iron and of course lots of prayer he has had almost total
Relief at last for my hubby who has suffered with RLS for more then 30 yrs to the point of not being able to sleep or sit down for as long as 52 hours at at time sometimes. Horrible torment. But 3weeks into taking Liquid Magnesium and Liquid Iron and of course lots of prayer he has had almost total
Nahfranz
in
Restless Legs Syndrome
3 years ago
Newbie - where to start ?
As the title says, I’m new to the forum and very new to RLS. I feel that I’ve been suffering for around 5 years, but of recent it’s getting worst. I have been referred to a chiropractor, but apart from a nice massage, this isn’t helping.. So, I’m 31 years old, 6ft 4 and ‘normal’ build. I lead a fairly
As the title says, I’m new to the forum and very new to RLS. I feel that I’ve been suffering for around 5 years, but of recent it’s getting worst. I have been referred to a chiropractor, but apart from a nice massage, this isn’t helping.. So, I’m 31 years old, 6ft 4 and ‘normal’ build. I lead a fairly
Mpdeadman
in
Restless Legs Syndrome
3 years ago
Possible sjogrens
Hi. I'm not sure if I can post about this here. I have autoimmune liver disease, PBC, AMA positive. And autoimmune inflammatory arthritis. My rheumatologist feels I may have sjogren's. I have dry eyes and mouth, sore ears, sore jaw and swollen glands under my jaw, painful joints in hands , feet, ankle
Hi. I'm not sure if I can post about this here. I have autoimmune liver disease, PBC, AMA positive. And autoimmune inflammatory arthritis. My rheumatologist feels I may have sjogren's. I have dry eyes and mouth, sore ears, sore jaw and swollen glands under my jaw, painful joints in hands , feet, ankle
Nellies47
in
NRAS
3 years ago
SHARING A SUCCESSFUL EXPERIENCE
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
Arjiji
in
Restless Legs Syndrome
3 years ago
pramipexole withdrawal
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
auldreekie18
in
Restless Legs Syndrome
3 years ago
Lip biopsy results
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under my jaw, sore ears,sore joints in hands and feet and ankles and wrists,weakness in lower legs and arms , awful fatigue and restless legs. I have
Nellies47
in
The Australian Sjögren's Syndrome Association
3 years ago
Artificial Sweetener +=insomnia and RLS
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
Shumbah
in
Restless Legs Syndrome
3 years ago
what is Ovarian hyperstimulation syndrome (OHSS)
Hi everyone! I had my First IVF app today! we start our fertility meds on 18th jan!! can't wait. Long story short.. I got told I have Ovarian hyper-stimulation syndrome (OHSS) has anyone ever suffered with this? the consultant said a normal percentage is 19.8 but mines 178. iv read up on google (I know
Hi everyone! I had my First IVF app today! we start our fertility meds on 18th jan!! can't wait. Long story short.. I got told I have Ovarian hyper-stimulation syndrome (OHSS) has anyone ever suffered with this? the consultant said a normal percentage is 19.8 but mines 178. iv read up on google (I know
TTC1994
in
Fertility Network UK
3 years ago
Omg Prednisolone
I was diagnosed with PMR approx 18 months and for the last 6 weeks have been on 0mg Pred after following a very slow tapering plan ( advice given on this forum). I had a couple of set backs and had to increase the dose and start tapering again . I was very keen to get off the Pred but soon realised
I was diagnosed with PMR approx 18 months and for the last 6 weeks have been on 0mg Pred after following a very slow tapering plan ( advice given on this forum). I had a couple of set backs and had to increase the dose and start tapering again . I was very keen to get off the Pred but soon realised
Liby57
in
PMRGCAuk
3 years ago
No support from GP - need to change meds
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Night_raven
in
Restless Legs Syndrome
3 years ago
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