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Pelvic pain and sexual dysfunction.
Hi guys hope this is the correct thread. I've been suffering with a number of issues these last few years and it's literally taken over my life. My symptoms are penis pain and tenderness especially when erect. perineum issues which includes tickling burning and shooting sensations and I've lost all
Hi guys hope this is the correct thread. I've been suffering with a number of issues these last few years and it's literally taken over my life. My symptoms are penis pain and tenderness especially when erect. perineum issues which includes tickling burning and shooting sensations and I've lost all
DF-1993
in
Men's Health Forum
2 months ago
Need advice please
I have posted on here on my situation. Diagnosed with stage 3c fallopian tube cancer. Went into remission and now it came back with enlarged lymph nodes that are netastatic. I'm on carboplatin and dexol now, 2nd treatment coming up next week. My question is has your husband or partner treat you
I have posted on here on my situation. Diagnosed with stage 3c fallopian tube cancer. Went into remission and now it came back with enlarged lymph nodes that are netastatic. I'm on carboplatin and dexol now, 2nd treatment coming up next week. My question is has your husband or partner treat you
Jacquiemoo
in
My Ovacome
2 months ago
HoneyYorkie
Following on from my previous post when I was eventually (after 6months) diagnosed with Adenocarcinoma of my lower left lobe, I had surgery 3 weeks ago to remove the lobe - called a Lobectomy. I’d just like to say even though the lobe was ‘sticky’ and therefore the surgery took 4.5hours, which was longer
Following on from my previous post when I was eventually (after 6months) diagnosed with Adenocarcinoma of my lower left lobe, I had surgery 3 weeks ago to remove the lobe - called a Lobectomy. I’d just like to say even though the lobe was ‘sticky’ and therefore the surgery took 4.5hours, which was longer
HoneyYorkie
in
The Roy Castle Lung Cancer Foundation
2 months ago
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Started Phase 1 trial - RO7656594 yesterday
Started clinical trial through Honor Health Research in Scottsdale yesterday. Day one was intense with multiple labs and EKG's after his first dose. Appointments today and tomorrow without the med but with follow up labs/EKG's. Friday's appointment will be the start of daily medication. Bone scans and
Started clinical trial through Honor Health Research in Scottsdale yesterday. Day one was intense with multiple labs and EKG's after his first dose. Appointments today and tomorrow without the med but with follow up labs/EKG's. Friday's appointment will be the start of daily medication. Bone scans and
Yadifan
in
Advanced Prostate Cancer
2 months ago
Update on prognosis for my husband with stage 4 A cancer.
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
SherryKahn
in
Advanced Prostate Cancer
2 months ago
My Latest Bladder Cancer Update.
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
Ern007
in
Lung Conditions Community Forum
2 months ago
late diagnosis-too old?
hi. I have RA but this is a post about my dad. He is 73 and suddenly developed lots of swelling in his hand, pain in shoulders, pain in groin and just pain! His bloods showed RF greater than 200, inflammatory markers over 100 on each and he had a wrist ultrasound which lit up like a Christmas tree with
hi. I have RA but this is a post about my dad. He is 73 and suddenly developed lots of swelling in his hand, pain in shoulders, pain in groin and just pain! His bloods showed RF greater than 200, inflammatory markers over 100 on each and he had a wrist ultrasound which lit up like a Christmas tree with
Elmo333
in
NRAS
8 months ago
Interesting new targeted therapy trial
I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment. https://www.transcodetherapeutics.com TransCode’s lead therapeutic candidate, TTX-MC138, is a targeted therapy designed to treat cancer patients with metastatic cancer,
I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment. https://www.transcodetherapeutics.com TransCode’s lead therapeutic candidate, TTX-MC138, is a targeted therapy designed to treat cancer patients with metastatic cancer,
Best521
in
SHARE Metastatic Breast Cancer
2 months ago
Capivasertib, fulvestrant
Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023. SUV increase 5.6 to 5.9? Now Onc suggesting to capivasertib+fulvestrant but don't know yet if it's in addtion to or replacing Ibrance, Letrozole
Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023. SUV increase 5.6 to 5.9? Now Onc suggesting to capivasertib+fulvestrant but don't know yet if it's in addtion to or replacing Ibrance, Letrozole
Hidden
in
SHARE Metastatic Breast Cancer
2 months ago
Helicobacter pylori
Good morning just wondered if you have come across H Pylori I seem to have tested positive for this test. Waiting to hear from GP later today, what questions should I ask? I was assuming not enough stomach acid but now not sure what’s going on with my guts! Look forward to hearing your views
Good morning just wondered if you have come across H Pylori I seem to have tested positive for this test. Waiting to hear from GP later today, what questions should I ask? I was assuming not enough stomach acid but now not sure what’s going on with my guts! Look forward to hearing your views
Bollieforme
in
Thyroid UK
9 months ago
Trodelvy after one year update
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
2 months ago
Hi, Im new here! Stage IV Ovarian Ca champion
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Nlehrer
in
SHARE Ovarian Cancer Support
2 months ago
Xpo1 significance
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
NewCll
in
CLL Support
2 months ago
Primary Peritoneal Cancer
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
Hockeymom52
in
My Ovacome
2 months ago
Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
domforr
in
Acoustic Neuroma Support
2 months ago
Mind and Body Syndrome
I have suffered RLS for more than 20 years and currently take Gabapentin. I have also had long covid since March 22- chronic fatigue type symptoms (14 different symptoms in all) which waxed and waned but hadn’t improved. So debilitating that I took early retirement and rarely left the house. I have
I have suffered RLS for more than 20 years and currently take Gabapentin. I have also had long covid since March 22- chronic fatigue type symptoms (14 different symptoms in all) which waxed and waned but hadn’t improved. So debilitating that I took early retirement and rarely left the house. I have
Edengirl58
in
Restless Legs Syndrome
8 months ago
Covid treatment
Hi all. Has anyone had treatment for Covid recently (since guidelines changed and you don’t automatically get referred). I am Covid positive and really struggling with symptoms. Have recently had treatment for a PE. The called 111 to arrange Covid treatment and they are sending a non urgent ambulance
Hi all. Has anyone had treatment for Covid recently (since guidelines changed and you don’t automatically get referred). I am Covid positive and really struggling with symptoms. Have recently had treatment for a PE. The called 111 to arrange Covid treatment and they are sending a non urgent ambulance
Pink75928
in
NRAS
8 months ago
Anyone has treatment addressing Genomic ATM Mutations?
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Intraductal Prostate Carcinoma
Just wanted to say hello as this is a new journey. Hopefully most of you are experiencing success better than anticipated from the onset. . I share many of your diagnosis but for any of you out there with the more (rare) - intraductal Carcinoma diagnosis I'd love to see if it's possible to connect
Just wanted to say hello as this is a new journey. Hopefully most of you are experiencing success better than anticipated from the onset. . I share many of your diagnosis but for any of you out there with the more (rare) - intraductal Carcinoma diagnosis I'd love to see if it's possible to connect
bdrakes
in
Advanced Prostate Cancer
2 months ago
New valve- but now afib and thinner
female, 49yrs old (almost 50) Ive had an aortic valve, root and ascending aorta replacement 9 months ago. Bovine valve to avoid thinners for a better life. Im still recovering, a was symptomatic too long i think ( 3 years really struggling but a known lifelong long valve leak) … and since the
female, 49yrs old (almost 50) Ive had an aortic valve, root and ascending aorta replacement 9 months ago. Bovine valve to avoid thinners for a better life. Im still recovering, a was symptomatic too long i think ( 3 years really struggling but a known lifelong long valve leak) … and since the
Bebop2023
in
Heart Valve Voice
8 months ago
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