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Modified radical mastectomy
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Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
9 months ago
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
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Is there any order to when new medications or PARP inhibitor are tried?
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
Shorehousejam
in
Fight Prostate Cancer
6 months ago
Question, each month with rising PSA, when do I do a pet scan
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
7 months ago
Still here & BRCA elective Mastectomy
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Emsymits
in
My Ovacome
10 months ago
Advice needed!!
Good morning, my mum has had a radical hysterectomy earlier this year followed by 6 rounds of chemo. Ca125 15 and CT Scan post chemo performed - awaiting results. Stage 3C High grade serous cancer. Experiencing back pain in recent weeks, just wondered if anyone else had experienced this and if we should
Good morning, my mum has had a radical hysterectomy earlier this year followed by 6 rounds of chemo. Ca125 15 and CT Scan post chemo performed - awaiting results. Stage 3C High grade serous cancer. Experiencing back pain in recent weeks, just wondered if anyone else had experienced this and if we should
ORGM
in
My Ovacome
7 months ago
Hello
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
chancemiracle12
in
SHARE Metastatic Breast Cancer
10 months ago
Too much pain
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
auntysue
in
Fibromyalgia Action UK
10 months ago
BC Update with GP.
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
Ern007
in
Lung Conditions Community Forum
7 months ago
ZEJULA PROS AND CONS
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Mommashark6
in
SHARE Ovarian Cancer Support
10 months ago
Chewing the adcal calcium tablets makes me feel nauseous.
is there anything more palatable in the way of Calcium D3?
is there anything more palatable in the way of Calcium D3?
Gardening2811
in
PMRGCAuk
1 day ago
Does anyone have experience of Radical Prostatectomy surgery or External Beam Therapy (with hormone therapy)?
Good morning, a fairly specific question: I had a HA in 2018 followed by single stent, diagnosis: Ischaemic heart disease, usual medication, rehab and all fine. In 2021 I was diagnosed with Chronic Inflammatory demyalinating polyneuropathy (CIDP), rare and little known condition - not related to the
Good morning, a fairly specific question: I had a HA in 2018 followed by single stent, diagnosis: Ischaemic heart disease, usual medication, rehab and all fine. In 2021 I was diagnosed with Chronic Inflammatory demyalinating polyneuropathy (CIDP), rare and little known condition - not related to the
ken-b
in
British Heart Foundation
7 months ago
Alkaline Phosphotate
Just had a very frightening test result APL over 600. Awaiting specialist appointment. Out of the blue but have had some upper abdomen bloating and discomfort for 3 weeks. Hoping for the best, preparing for the worst. Female 63. Long standing gastric acid and osteoporosis. Take Lansoprazole and AdCal
Just had a very frightening test result APL over 600. Awaiting specialist appointment. Out of the blue but have had some upper abdomen bloating and discomfort for 3 weeks. Hoping for the best, preparing for the worst. Female 63. Long standing gastric acid and osteoporosis. Take Lansoprazole and AdCal
AHG123
in
British Liver Trust
2 months ago
Do Sulforaphane, Melatonin, and Cayenne Pepper work?
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
SisuMike
in
Advanced Prostate Cancer
8 months ago
New primary plus first progression
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
RachH20
in
SHARE Metastatic Breast Cancer
10 months ago
Diagnostic Imaging Not Yet Enough for Biopsy-Free Radical Prostatectomy - MedPage Today, November 27, 2023
Biopsy-free PCa diagnostics would be welcomed by anyone who has had one or more needle biopsies. This article in MedPage Today summarizes the current status for the several methodologies being studied as alternatives. Good info for those currently on AS or just watching a rising PSA. From the lead-in
Biopsy-free PCa diagnostics would be welcomed by anyone who has had one or more needle biopsies. This article in MedPage Today summarizes the current status for the several methodologies being studied as alternatives. Good info for those currently on AS or just watching a rising PSA. From the lead-in
cujoe
in
Fight Prostate Cancer
8 months ago
Timings of medications, help please.
Can anyone help me with the timings for the following medications which I need to take each day apart from the Risedronate once a week, please? I have spoken to the pharmacy and they were not particularly helpful. Levothyroxine and Risedronate both have to be taken on an empty stomach I believe. Not
Can anyone help me with the timings for the following medications which I need to take each day apart from the Risedronate once a week, please? I have spoken to the pharmacy and they were not particularly helpful. Levothyroxine and Risedronate both have to be taken on an empty stomach I believe. Not
Katkin1
in
PMRGCAuk
3 months ago
bone protection
2 weeks in to Pred and very grateful for all the excellent advice. Resting a lot more, taking AdCal/ Vit D supplements and following advice in here have upped dietary intake of calcium ( enjoying hot milk before bed!). Have been told I don’t need a Dexa scan. have got Vit D/ K2 from Amazon. Can I
2 weeks in to Pred and very grateful for all the excellent advice. Resting a lot more, taking AdCal/ Vit D supplements and following advice in here have upped dietary intake of calcium ( enjoying hot milk before bed!). Have been told I don’t need a Dexa scan. have got Vit D/ K2 from Amazon. Can I
Scaredofpred
in
PMRGCAuk
3 months ago
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