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husband with CRPC needing advice
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Betsyhrd
in
Advanced Prostate Cancer
8 months ago
R223 - PSA 26 Doubled since February
My husband has had 3 treatments of R223, had to postpone 4th treatment because of flu. On Monday had bloods taken in preparation of 4th treatment on 18th April 2024. Blood results ALP 76, at started of R223 106, HB 92 down from 102, (has Proctitis and occasional bleed, calcium a little low, taken
My husband has had 3 treatments of R223, had to postpone 4th treatment because of flu. On Monday had bloods taken in preparation of 4th treatment on 18th April 2024. Blood results ALP 76, at started of R223 106, HB 92 down from 102, (has Proctitis and occasional bleed, calcium a little low, taken
Janhpr
in
Advanced Prostate Cancer
3 months ago
Big decsions regarding SRT/ADT due to BCR post RP
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Advanced Prostate Cancer
8 months ago
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Big decisions regarding SRT and ADT for BCR
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Prostate Cancer Network
8 months ago
. . & Pissed off Update
You guys are the best. Sue, Jools, Blue, Truly, everyone, I came here because I knew you would be there for me. It's crazy how this support can be so vital and helpful. Really. I've shared this - I recently changed blood pressure meds. The improvement was DRASTIC. My blood pressure
You guys are the best. Sue, Jools, Blue, Truly, everyone, I came here because I knew you would be there for me. It's crazy how this support can be so vital and helpful. Really. I've shared this - I recently changed blood pressure meds. The improvement was DRASTIC. My blood pressure
Leeserann
in
Restless Legs Syndrome
12 days ago
At a loss
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
Tree1228
in
Restless Legs Syndrome
1 month ago
Will I be able to Radiate Prostate Bed Fossa, mass is abutting rectum and bladder?
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
Shorehousejam
in
Fight Prostate Cancer
8 months ago
Exercise? Diet? Therapy? Has this helped you?
Hey there! I am on a mission to research and implement different techniques to help me lose some weight, increase my core strength and endurance. A little bit about me: I am 27 years old and have suffered most of my life with joint and chronic mechanical back pain, Hypermobility, Spina Bifida Occulta
Hey there! I am on a mission to research and implement different techniques to help me lose some weight, increase my core strength and endurance. A little bit about me: I am 27 years old and have suffered most of my life with joint and chronic mechanical back pain, Hypermobility, Spina Bifida Occulta
UndercoverHippie
in
Fibromyalgia Action UK
1 month ago
Bummed, PSA went up 0.08 in a Week! Am I failing ADT?
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
Laparotomy, Radical hysterectomy, bilateral salpingo-oophrectomy
I had a major surgery about 8 months ago but the pain around my stomach hasn't gone away. My blood tests and CT scan results are normal.They mentioned that have adhesions which make me in pain all day all night, so I only rely on the pain reliefs.
I had a major surgery about 8 months ago but the pain around my stomach hasn't gone away. My blood tests and CT scan results are normal.They mentioned that have adhesions which make me in pain all day all night, so I only rely on the pain reliefs.
Bandung
in
My Ovacome
8 months ago
Medical Cannabis?
Has anyone tried medical cannabis for pain relief? I have severe arthritis which limits my life quite a lot, my doctor won’t refer me for knee replacement until I lose more weight, and being on Rux has meant more weight gain! Obviously will need to ask haematologist about. It is quite expensive and
Has anyone tried medical cannabis for pain relief? I have severe arthritis which limits my life quite a lot, my doctor won’t refer me for knee replacement until I lose more weight, and being on Rux has meant more weight gain! Obviously will need to ask haematologist about. It is quite expensive and
lizzziep
in
MPN Voice
2 months ago
Buprenorphine update - one week in
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Claire_lc
in
Restless Legs Syndrome
2 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Radical prostatectomy consultant in the south of England
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
MarkS
in
Prostate Cancer Network
9 months ago
Medicinal Cannabis
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was
Davewm
in
Pain Concern
3 months ago
After Four Cycles of Ra-223
After four cycles of Ra-223 sadly it seems not to be doing as well as we would of liked. I have numinous new uptakes (to numinous to mention) as well as an increase in size of some of the older sites while a few have decreased in size or disappeared the new activity is outweighing the overall success
After four cycles of Ra-223 sadly it seems not to be doing as well as we would of liked. I have numinous new uptakes (to numinous to mention) as well as an increase in size of some of the older sites while a few have decreased in size or disappeared the new activity is outweighing the overall success
TheWizardofWesley
in
Advanced Prostate Cancer
3 months ago
Finally finished prednisolone.
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Amstel
in
PMRGCAuk
5 months ago
Post surgery issues
Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Radical Hysterectomy on 26 October. The surgery went well and I came home after 5 nights. I have suffered with horrible bloating and pain since and was told when still in the hospital it was from post-surgery gas which I know
Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Radical Hysterectomy on 26 October. The surgery went well and I came home after 5 nights. I have suffered with horrible bloating and pain since and was told when still in the hospital it was from post-surgery gas which I know
Jpembs
in
My Ovacome
9 months ago
Atrial fibrillation now as well!
So all is going rather well on the PMR front with Pred down to 5mg and slow reduction to 4.5 planned, I have a little boat once more, and then hey ho it‘s off off A&E feeling frightful with severe chest pains….. At 3.30am after 12.5 hours in a A&E , lots of cardiograms, bloods, x-ray and a good physical
So all is going rather well on the PMR front with Pred down to 5mg and slow reduction to 4.5 planned, I have a little boat once more, and then hey ho it‘s off off A&E feeling frightful with severe chest pains….. At 3.30am after 12.5 hours in a A&E , lots of cardiograms, bloods, x-ray and a good physical
Hopingsail
in
PMRGCAuk
5 months ago
Struggling to have a physical body
I've been diagnosed as BRCA1 positiveIn Nov. 2022 I had a bilateral mastectomy On Aug 17 I had my ovaries and fallopian tubes removed. These were both surgeries to prevent me from hopefully developing cancer in the future. I also have alopecia areata (have had for 19 years) I'm really struggling to
I've been diagnosed as BRCA1 positiveIn Nov. 2022 I had a bilateral mastectomy On Aug 17 I had my ovaries and fallopian tubes removed. These were both surgeries to prevent me from hopefully developing cancer in the future. I also have alopecia areata (have had for 19 years) I'm really struggling to
Themightiestrin
in
Anxiety and Depression Support
11 months ago
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