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Update: results of a recent PSMA PETscan
I wanted to share with you the results of my recent PSMA PET SCAN. A quick synopsis of my history: an 18+ year journey: radical prostatectomy in August 2003. PSA following surgery was 0.1. It slowly rose to 0.4 over a period of 11 years. Following a more rapid rise to .6, I had salvage radiation in
I wanted to share with you the results of my recent PSMA PET SCAN. A quick synopsis of my history: an 18+ year journey: radical prostatectomy in August 2003. PSA following surgery was 0.1. It slowly rose to 0.4 over a period of 11 years. Following a more rapid rise to .6, I had salvage radiation in
mandrake248
in
Advanced Prostate Cancer
2 years ago
Mornings
Good morning everyone, Since I’ve reduced prednisolone down to 5mg I have noticed wrist and hand stiffness in the mornings. Sometimes my fingers feel as if they are tingling when I wake. I also still have puffiness on the outside of each ankle below the bone despite reducing steroids. I thought this
Good morning everyone, Since I’ve reduced prednisolone down to 5mg I have noticed wrist and hand stiffness in the mornings. Sometimes my fingers feel as if they are tingling when I wake. I also still have puffiness on the outside of each ankle below the bone despite reducing steroids. I thought this
Pangolin43
in
PMRGCAuk
2 years ago
Cancer again
Has anyone gotten a secondary cancer while on W & W ? I had breast cancer two years ago and had a lumpectomy with no chemo or radiation. My cancer is now back in same breast. Thinking of a mastectomy this time but still concerned that the CLL might be an underlying cause. Any comments would be very
Has anyone gotten a secondary cancer while on W & W ? I had breast cancer two years ago and had a lumpectomy with no chemo or radiation. My cancer is now back in same breast. Thinking of a mastectomy this time but still concerned that the CLL might be an underlying cause. Any comments would be very
1962jns
in
CLL Support
2 years ago
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External beam radiotherapy [EBRT] and radical prostatectomy [RP] are associated with better survival in Asian PCA patients
New study of SEER data below [1]. "Relative to white patients, an important cancer-specific mortality advantage applies to intermediate-risk and high-risk Asian prostate cancer patients treated with external beam radiotherapy, and to high-risk Asian patients treated with radical prostatectomy. These
New study of SEER data below [1]. "Relative to white patients, an important cancer-specific mortality advantage applies to intermediate-risk and high-risk Asian prostate cancer patients treated with external beam radiotherapy, and to high-risk Asian patients treated with radical prostatectomy. These
pjoshea13
in
Advanced Prostate Cancer
2 years ago
INR problems
On Warfarin for 5 years still I broke my ankle followed by DVT. My INR level should be between 2.0 & 3.0 but has been erratic sometimes too and sometimes too low. I had a Total Gastrectomy 30 years ago and was wondering if malabsorption is causing the problem.
On Warfarin for 5 years still I broke my ankle followed by DVT. My INR level should be between 2.0 & 3.0 but has been erratic sometimes too and sometimes too low. I had a Total Gastrectomy 30 years ago and was wondering if malabsorption is causing the problem.
Spotjack
in
Anticoagulation Support
2 years ago
Rising PSA and want to be the best advocate!
Hello all, I have been following posts here for quite some time, and need a little advice. My father, who is 73, was dx'd with PCA in 2002, PSA 4.2, radical prostatectomy at Mayo, Gleason 3+4, one positive margin. PSA undetectable until winter 2003. Had seven weeks of radiation to the prostate bed at
Hello all, I have been following posts here for quite some time, and need a little advice. My father, who is 73, was dx'd with PCA in 2002, PSA 4.2, radical prostatectomy at Mayo, Gleason 3+4, one positive margin. PSA undetectable until winter 2003. Had seven weeks of radiation to the prostate bed at
Abcsoup73
in
Advanced Prostate Cancer
2 years ago
Breast Tenderness post Eligard
It's been a year since my last 3-month Eligard injection (following radical prostatectomy and salvage radiation) and my PSA level in late November has stayed undetectable while my testosterone level has risen to 13.2 nmol/L. Recently my breasts have become quite tender. Will this resolve on its own or
It's been a year since my last 3-month Eligard injection (following radical prostatectomy and salvage radiation) and my PSA level in late November has stayed undetectable while my testosterone level has risen to 13.2 nmol/L. Recently my breasts have become quite tender. Will this resolve on its own or
Cramlingtonboy
in
Advanced Prostate Cancer
2 years ago
PCa-specific Survival after Radical Prostatectomy Is Improved by Metformin but not other Antidiabetic Drugs
New study from Finland below [1]. "Only postdiagnostic metformin use was associated with reduced risks of PCa death {53% reduction} and ADT initiation compared with nonusers." While Metformin users would be predominantly diabetic, it looks as though "nonusers" inxlude non-diabetics. "insulin and insulin
New study from Finland below [1]. "Only postdiagnostic metformin use was associated with reduced risks of PCa death {53% reduction} and ADT initiation compared with nonusers." While Metformin users would be predominantly diabetic, it looks as though "nonusers" inxlude non-diabetics. "insulin and insulin
pjoshea13
in
Advanced Prostate Cancer
2 years ago
Vitamins D and K2 and Adcal
I heard yesterday from my daughter-in-law that my grandson, who suffers from PoTS, had had blood tests done. She said "these show that he has extremely low vitamin D so is starting vitamins this week. I think his new doctor is hoping this may help relieve some tiredness and aches." I sent her this
I heard yesterday from my daughter-in-law that my grandson, who suffers from PoTS, had had blood tests done. She said "these show that he has extremely low vitamin D so is starting vitamins this week. I think his new doctor is hoping this may help relieve some tiredness and aches." I sent her this
Physalis
in
AF Association
2 years ago
Medical marijuana
Has anyone tried medical marijuana such as the drops, mints or smoke it whatever. If so, did it work. A friend of mine smokes it and said her rls is gone. Im afraid to try it. any feedback?
Has anyone tried medical marijuana such as the drops, mints or smoke it whatever. If so, did it work. A friend of mine smokes it and said her rls is gone. Im afraid to try it. any feedback?
lorri214
in
Restless Legs Syndrome
2 years ago
I’m being ahead of my game but....
I’m currently on a slow taper (DL’s regime] and have stayed on 4 mg for about 4 weeks now (having reduced very slowly by 0.5mg each time]. I’m definitely not in any hurry to reduce quickly, but thinking ahead [ok, I’m dreaming], to when the day comes when I get down to say 1mg, will it be essential
I’m currently on a slow taper (DL’s regime] and have stayed on 4 mg for about 4 weeks now (having reduced very slowly by 0.5mg each time]. I’m definitely not in any hurry to reduce quickly, but thinking ahead [ok, I’m dreaming], to when the day comes when I get down to say 1mg, will it be essential
Doraflora
in
PMRGCAuk
2 years ago
Radical Prostatectomy - Maybe It's Time is Past
I recently received this from Prostate Cancer News: Basically, research indicating that the related side effects make radical prostatectomy counter-indicated for Gay Men. You can read the entire article here: https://www.prostatecancer.news/2021/12/gay-men-should-never-have-prostatectomy.html It would
I recently received this from Prostate Cancer News: Basically, research indicating that the related side effects make radical prostatectomy counter-indicated for Gay Men. You can read the entire article here: https://www.prostatecancer.news/2021/12/gay-men-should-never-have-prostatectomy.html It would
cesces
in
Advanced Prostate Cancer
2 years ago
Darolutamide and scan question (2nd UPDATE 1/15/22) RESULTS of Pylarify scan Anyone have any thoughts or advice? Questions we should ask?
My husband has a rapidly rising PSA (from 1.28 on Oct 18th to 5.9 on Dec 10th) and he was scheduled to get a Pylarify scan on Jan 6th but with newest PSA reading doc wants to start darolutamide now and not wait for scan. He's never been shown to be metastatic and we are disappointed to not be getting
My husband has a rapidly rising PSA (from 1.28 on Oct 18th to 5.9 on Dec 10th) and he was scheduled to get a Pylarify scan on Jan 6th but with newest PSA reading doc wants to start darolutamide now and not wait for scan. He's never been shown to be metastatic and we are disappointed to not be getting
SuppWife
in
Advanced Prostate Cancer
2 years ago
Disappointing recent Consultantation with Neurologist. Disregarded all the information I provided about ferritin and iron / RLS
Hi all, I last spoke to my neurologist in October 2021, where I was being advised to consider taking pregablin for RLS. I was advised the same on previous consultation after coming off DA (Ropinrole).I don’t know if you recall, I had been on pregabalin previously 450mg for anxiety for 2years. Very
Hi all, I last spoke to my neurologist in October 2021, where I was being advised to consider taking pregablin for RLS. I was advised the same on previous consultation after coming off DA (Ropinrole).I don’t know if you recall, I had been on pregabalin previously 450mg for anxiety for 2years. Very
Freegaza786
in
Restless Legs Syndrome
2 years ago
Surgeon says I'm intermediate risk, but I think I'm high risk based on the pathology report below
I had an RP in March of this year. The 3 psa tests I've had since then have been <0.1 my question my surgeon calls me intermediate risk, but according to my pathology report with T3a I think I'm high risk. Final Diagnosis: 1. Periprostatic fat, excision: - Adipose tissue with no tumor seen. 2
I had an RP in March of this year. The 3 psa tests I've had since then have been <0.1 my question my surgeon calls me intermediate risk, but according to my pathology report with T3a I think I'm high risk. Final Diagnosis: 1. Periprostatic fat, excision: - Adipose tissue with no tumor seen. 2
twostrats
in
Advanced Prostate Cancer
2 years ago
13 year Battle with Stage 4 PC
This is a long post - patience is advised. My warrior husband passed away on Nov 19 after a 13 year battle with Prostate Cancer. He was originally diagnosed in 2008 with a Gleason of 3+4 and PSA of 35 at age 59. He had a radical prostatectomy followed by 34 radiation treatments. His PSA remained undetectable
This is a long post - patience is advised. My warrior husband passed away on Nov 19 after a 13 year battle with Prostate Cancer. He was originally diagnosed in 2008 with a Gleason of 3+4 and PSA of 35 at age 59. He had a radical prostatectomy followed by 34 radiation treatments. His PSA remained undetectable
poppymom0211
in
Advanced Prostate Cancer
2 years ago
I don’t see my long post so I’ll type it again
Husband had radical prostatectomy in 2004. Ok til PSA started to rise in 2010 so had 37 radiation treatments. Did well until this year. Jan started bleeding badly in urine. In and out of hospitals due to the excessive bleeding. May 2021, PSA started to rise again. 1.9 to 3. Doc ordered PET and Bone scan
Husband had radical prostatectomy in 2004. Ok til PSA started to rise in 2010 so had 37 radiation treatments. Did well until this year. Jan started bleeding badly in urine. In and out of hospitals due to the excessive bleeding. May 2021, PSA started to rise again. 1.9 to 3. Doc ordered PET and Bone scan
Madbeach
in
Advanced Prostate Cancer
2 years ago
New diagnosis of metastasised breast cancer in lung.
In 2014 I had treatment for +++ ER stage 2 breast cancer including chemo, mastectomy, lymph clearance, radiation, Herceptin. Following pleurisy and a CT scan I’ve now been diagnosed with the same metastasised BC in my lung by the respiratory dept. I also have severe rib pain and numbness. I will see
In 2014 I had treatment for +++ ER stage 2 breast cancer including chemo, mastectomy, lymph clearance, radiation, Herceptin. Following pleurisy and a CT scan I’ve now been diagnosed with the same metastasised BC in my lung by the respiratory dept. I also have severe rib pain and numbness. I will see
IAMALIVE33
in
SHARE Metastatic Breast Cancer
3 years ago
Removal of greater number of lymph nodes during RP associated with better survival
Removal of greater numbers of lymph nodes during radical prostatectomy for intermediate- and high-risk prostate cancer is associated with improved survival, according to data presented at the 22nd annual meeting of the Society of Urologic Oncology. In a propensity score analysis, removal of 10 to 19
Removal of greater numbers of lymph nodes during radical prostatectomy for intermediate- and high-risk prostate cancer is associated with improved survival, according to data presented at the 22nd annual meeting of the Society of Urologic Oncology. In a propensity score analysis, removal of 10 to 19
Graham49
in
Advanced Prostate Cancer
2 years ago
Medscape» The Hidden Cost of Prostatectomy: Patient Regret
Article in Dec 3 Medscape. I believe it's a subscription only site, so am including a copy below. Comments from doctors have been generally in agreement. https://www.medscape.com/viewarticle/963971?uac=407306BN&faf=1&sso=true&impID=3845549&src=WNL_dne4_211203_MSCPEDIT#vp_1 «quote» The Hidden Cost of
Article in Dec 3 Medscape. I believe it's a subscription only site, so am including a copy below. Comments from doctors have been generally in agreement. https://www.medscape.com/viewarticle/963971?uac=407306BN&faf=1&sso=true&impID=3845549&src=WNL_dne4_211203_MSCPEDIT#vp_1 «quote» The Hidden Cost of
BerkshireBear
in
Advanced Prostate Cancer
2 years ago
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