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Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
8 months ago
Phosphorous questions
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
Bassetmommer
in
Kidney Dialysis
8 months ago
how often for a Fibroscan
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
8 months ago
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Dealing with an AFib episode without meds.
I was diagnosed with Paroxysmal AFib by an Energency Dept Consultant who ordered certain tests to be done in the future and sent me home with Anticoagulants. I wasn’t given any advice on how to manage an AFib episode or a follow up consultation just a letter to say my test results were OK.A year later
I was diagnosed with Paroxysmal AFib by an Energency Dept Consultant who ordered certain tests to be done in the future and sent me home with Anticoagulants. I wasn’t given any advice on how to manage an AFib episode or a follow up consultation just a letter to say my test results were OK.A year later
Jomaur
in
Atrial Fibrillation Support
4 months ago
18F-flotufolastat PET alters treatment approach for nearly 90% of patients with recurrent prostate cancer
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
Maxone73
in
Advanced Prostate Cancer
8 months ago
Multiple Sclerosis Predicted by Autoantibody Signature
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
BettysMom
in
My MSAA Community
5 months ago
Heart rate smart watch
Hi,I have a 2 lead pacemaker for total heart block following AV ablation and 2yrs later since the procedure I'm in heart failure & afib and take ramipril, bisoprolol, dapagliflozin and having a few issues, which has resulted in me having to attend the pacemaker clinic 3x in last 3 weeks. I struggled
Hi,I have a 2 lead pacemaker for total heart block following AV ablation and 2yrs later since the procedure I'm in heart failure & afib and take ramipril, bisoprolol, dapagliflozin and having a few issues, which has resulted in me having to attend the pacemaker clinic 3x in last 3 weeks. I struggled
Nomis21
in
Atrial Fibrillation Support
4 months ago
PSMA PET Looks Good But PSA Rising
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
FaithOverFear104
in
Advanced Prostate Cancer
8 months ago
Survey about patient care
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
zoe69
Vasculitis UK
in
Vasculitis UK
5 months ago
Worried about low heart rate now
Ok so I posted up before because was a bit anxious about my heart rate anyway. I have just started and only completed one run on last Tuesday. I felt so wiped out the days following that. I have a doctor's phone consultation on 30th which I originally booked just to get the ok to go ahead with C25K
Ok so I posted up before because was a bit anxious about my heart rate anyway. I have just started and only completed one run on last Tuesday. I felt so wiped out the days following that. I have a doctor's phone consultation on 30th which I originally booked just to get the ok to go ahead with C25K
DanDSC
in
Couch to 5K
4 months ago
Help us develop a new information resource on lupus and the menopause
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
Debbie_kinsey
Administrator
in
LUPUS UK
5 months ago
Failed RP & SRT; Negative PSMA PET
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
dans_journey
in
Advanced Prostate Cancer
8 months ago
changed time of taking Clopidogrel.
Since starting to take Clopidogrel at night, alongside Atorvastatin, I noticed an increase in ectopic/irregular heartbeats. I decided I had endured the anxiety associated with the symptoms long enough so am now taking Clopidogrel in the morning and my Atorvastatin in the evening. The result is…..a much
Since starting to take Clopidogrel at night, alongside Atorvastatin, I noticed an increase in ectopic/irregular heartbeats. I decided I had endured the anxiety associated with the symptoms long enough so am now taking Clopidogrel in the morning and my Atorvastatin in the evening. The result is…..a much
Ladylovesmilktray
in
Anticoagulation Support
4 months ago
L Glutamine
Hi everyone, could anyone advice me on L Glutamine, I have Intestinal Metaplasia and I don't know if I should take it. I have read it supports the stomach lining but I am concerned that this would only help a 'normal stomach' and I may do more harm than good. Thanks
Hi everyone, could anyone advice me on L Glutamine, I have Intestinal Metaplasia and I don't know if I should take it. I have read it supports the stomach lining but I am concerned that this would only help a 'normal stomach' and I may do more harm than good. Thanks
Helliborous
in
Pernicious Anaemia Society
8 months ago
Progression
My mum got diagnosed with PSP just last October,but that took 18 months .She is now in a residential home ,but I fell so guilty I couldn't keep her at home 😞 The PSP has progressed so quickly Her slight is problematic,falling alot,her speech has become very bad over the last month . Thankfully her
My mum got diagnosed with PSP just last October,but that took 18 months .She is now in a residential home ,but I fell so guilty I couldn't keep her at home 😞 The PSP has progressed so quickly Her slight is problematic,falling alot,her speech has become very bad over the last month . Thankfully her
Blitzford72
in
PSP Association
4 months ago
Vyalev, steady levodopa/carbidopa infusion, now available in Canada
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Thal
in
Cure Parkinson's
8 months ago
Detecting undiagnosed AF
I'm a stroke lived-experience person since 2016 and, I've had atrial fibrillation / flutter that started years before that. Intially paroxymal, later becoming permanent. I was the subject of a paper (available on the Internet) on pulmonary toxicity (aka cryptogenic organising pnuemonia) secondary to
I'm a stroke lived-experience person since 2016 and, I've had atrial fibrillation / flutter that started years before that. Intially paroxymal, later becoming permanent. I was the subject of a paper (available on the Internet) on pulmonary toxicity (aka cryptogenic organising pnuemonia) secondary to
john-boy-92
in
Atrial Fibrillation Support
4 months ago
The Flare That Keeps on Giving
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
Donna5658
in
PMRGCAuk
5 months ago
Ablation or Not?
I'm currently waiting for an ablation and have been for over 6 months. When I first developed AF I was quite badly affected by it. I would: Get out of breath just walking a short distance Keep falling asleep Found climbing stairs and carrying 'heavy' things more difficult than they should Occasionally
I'm currently waiting for an ablation and have been for over 6 months. When I first developed AF I was quite badly affected by it. I would: Get out of breath just walking a short distance Keep falling asleep Found climbing stairs and carrying 'heavy' things more difficult than they should Occasionally
Peakoverload
in
Atrial Fibrillation Support
4 months ago
Nutrition and Autoimmune Thyroid disease: An expert talk
[i]TONIGHT: Join Nicole Goode, (Sunday 21st April 2024, 7pm) for an informative and engaging online expert talk on nutrition and autoimmune thyroid disease![/i] [i]Book your place via Eventbrite at: [/i] https://www.eventbrite.co.uk/e/nutrition-and-autoimmune-thyroid-disease-talk-by-nicole-goode-registration
[i]TONIGHT: Join Nicole Goode, (Sunday 21st April 2024, 7pm) for an informative and engaging online expert talk on nutrition and autoimmune thyroid disease![/i] [i]Book your place via Eventbrite at: [/i] https://www.eventbrite.co.uk/e/nutrition-and-autoimmune-thyroid-disease-talk-by-nicole-goode-registration
helvella
Thyroid UK
in
Thyroid UK
5 months ago
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