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Update finally on treatment
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
monkeygirl62
in
SHARE Metastatic Breast Cancer
9 months ago
Adding Kisqali to Letrozale treatment
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
mimosa412
in
SHARE Metastatic Breast Cancer
9 months ago
Xgeva dose
Initially when I was diagnosed with metastatic lobular breast cancer, I had Xgeva injections every 4 weeks. I had many, many, many sites on my bones! Three months after the initial diagnosis, I had NED. Seven and one-half years later, I still have NED on pet-ct scans every six months and my medication
Initially when I was diagnosed with metastatic lobular breast cancer, I had Xgeva injections every 4 weeks. I had many, many, many sites on my bones! Three months after the initial diagnosis, I had NED. Seven and one-half years later, I still have NED on pet-ct scans every six months and my medication
Light74
in
SHARE Metastatic Breast Cancer
9 months ago
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New Normal
Good morning beautiful ladies š This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Good morning beautiful ladies š This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Kcap430
in
SHARE Metastatic Breast Cancer
9 months ago
reduced doseage of ibrance
Hi, I saw my oncologist yesterday and she reduced my ibrance from 125 to 100 mg. This makes me very nervous, though she says there should be no reduction in effectiveness . Has anybody had this happen and what were the results? Did the smaller dose still work for you? I have been on ibrance and letrozole
Hi, I saw my oncologist yesterday and she reduced my ibrance from 125 to 100 mg. This makes me very nervous, though she says there should be no reduction in effectiveness . Has anybody had this happen and what were the results? Did the smaller dose still work for you? I have been on ibrance and letrozole
Dragonfighter
in
SHARE Metastatic Breast Cancer
9 months ago
Is it safe to take antibiotics while on Ibrance and Letrozole?
Good day my fellow warriors! A quick question about taking antibiotics while on Ibrance and Letrozole. I am on vacation right now and unfortunately is experiencing toothache with swollen gums. Iām planning to see a dentist this week to ask for prescription for my swollen gum but not sure if this will
Good day my fellow warriors! A quick question about taking antibiotics while on Ibrance and Letrozole. I am on vacation right now and unfortunately is experiencing toothache with swollen gums. Iām planning to see a dentist this week to ask for prescription for my swollen gum but not sure if this will
Taurus28
in
SHARE Metastatic Breast Cancer
9 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
10 months ago
Letrozole
hello - Iām on my 2nd cycle of Letrozole, first cycle was 2.5mg and didnāt induce ovulation. Iāve just finished 5 days on 5mg and am having significant side effects, tired, achey, itās brought on a period and sore boobs (also shoulder pain) . Does anyone have any experience of this. Should I be worried
hello - Iām on my 2nd cycle of Letrozole, first cycle was 2.5mg and didnāt induce ovulation. Iāve just finished 5 days on 5mg and am having significant side effects, tired, achey, itās brought on a period and sore boobs (also shoulder pain) . Does anyone have any experience of this. Should I be worried
Greekyoghurt
in
Fertility Network UK
10 months ago
Process & timescales - NHS Scotland
Hi everyone, I have been referred to an NHS fertility specialist and my appointment is mid-January. This is the first time I have been through this and looking to see if anyone can tell me a little more about the process and what kind of timescales to expect for starting treatments? (Iām in Scotland
Hi everyone, I have been referred to an NHS fertility specialist and my appointment is mid-January. This is the first time I have been through this and looking to see if anyone can tell me a little more about the process and what kind of timescales to expect for starting treatments? (Iām in Scotland
EasterBunny32
in
Fertility Network UK
10 months ago
Weird / worrying cycles post miscarriage
Hello, Posting here as a bit of a question to others and also a bit of a frustrated rant! I sadly miscarried a blighted ovum back in mid October. By November by pregnancy tests were negative, I went on to have a positive OPK mid November then had a period as usual. I thought this meant my cycles were
Hello, Posting here as a bit of a question to others and also a bit of a frustrated rant! I sadly miscarried a blighted ovum back in mid October. By November by pregnancy tests were negative, I went on to have a positive OPK mid November then had a period as usual. I thought this meant my cycles were
CarlottaD27
in
Fertility Network UK
10 months ago
Skin Rash of little itchy bumps
Hello! Quick question - has anyone on Ibrance and Letrozole developed a skin rash of small random bumps that are itchy? I have been on my lovely ācocktailā since April ā23 and have recently (in the past 2 weeks) developed a few annoying itchy bumps on my lower back. I will reach out to my Oncologist
Hello! Quick question - has anyone on Ibrance and Letrozole developed a skin rash of small random bumps that are itchy? I have been on my lovely ācocktailā since April ā23 and have recently (in the past 2 weeks) developed a few annoying itchy bumps on my lower back. I will reach out to my Oncologist
CalGal56
in
SHARE Metastatic Breast Cancer
10 months ago
On Palbociclib and Letrozole for 21 days, CA153 elevated. Er+Her2-
Hello, beautiful community. My intro : I have metastatic breast cancer, Liver and bones, Er+, PR+ Her2-. I am a 55-year-old mother of 4 kids and post-menopause. Condition: No physical pains, Feeling normal but weak. Eating normally. I've been on a regimen of Palbociclib and Letrozole for the
Hello, beautiful community. My intro : I have metastatic breast cancer, Liver and bones, Er+, PR+ Her2-. I am a 55-year-old mother of 4 kids and post-menopause. Condition: No physical pains, Feeling normal but weak. Eating normally. I've been on a regimen of Palbociclib and Letrozole for the
MuhammadZain
in
My Breast Cancer Community
10 months ago
Need to Change Treatment
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
Trissh
in
SHARE Metastatic Breast Cancer
10 months ago
Ibrance and TMarkers
Anyone out there with 4+ years of Ibrance and with tumour markers over the normal range? I have a single mets to bone (T9) and I have been taking Ibrance and Letrozole now for 3 years and 9 months. Last month my CA 15-3 went over the normal range to 34.8, my CEA was normal. I had a very bad cold
Anyone out there with 4+ years of Ibrance and with tumour markers over the normal range? I have a single mets to bone (T9) and I have been taking Ibrance and Letrozole now for 3 years and 9 months. Last month my CA 15-3 went over the normal range to 34.8, my CEA was normal. I had a very bad cold
Gramat
in
SHARE Metastatic Breast Cancer
10 months ago
Tumour markers
Has anyone found during Ibrance and Letrozole that their tumour marker has gone over the normal range with a a cold and then gone down again?
Has anyone found during Ibrance and Letrozole that their tumour marker has gone over the normal range with a a cold and then gone down again?
Gramat
in
SHARE Metastatic Breast Cancer
10 months ago
letrozole starting today for fertility cycle 1 . Anyone else?
hi all i finally started my first letrozole cycle today putting my ivf journey on hold. I got my provera induced bleed yesterday i am instructed to take provera cd2-cd6 and have booked my scan for cd 12 . Would love to hear anyone elseās success or anyone else who is on a similar journey to me
hi all i finally started my first letrozole cycle today putting my ivf journey on hold. I got my provera induced bleed yesterday i am instructed to take provera cd2-cd6 and have booked my scan for cd 12 . Would love to hear anyone elseās success or anyone else who is on a similar journey to me
Hidden
in
Fertility Network UK
10 months ago
started my period after provera but caught a bug last night.
hi all finally started my period after provera was supposed to start letrozole tomorrow for fertility i had the worst night and morning with a fever do you think i will be ok to start letrozole tomorrow? Praying it was the last of the fever last night. Hoping i be ok and it doesnt effect treatment
hi all finally started my period after provera was supposed to start letrozole tomorrow for fertility i had the worst night and morning with a fever do you think i will be ok to start letrozole tomorrow? Praying it was the last of the fever last night. Hoping i be ok and it doesnt effect treatment
Hidden
in
Fertility Network UK
10 months ago
provera 5 day course still no bleed
Hi all , i am waiting to start my first letrozole cycle. I have taken 5 days provera 10 mg . I was told i would get my period within a week. However no period its day 6 today. Im getting really worried . When did you get your bleed ? After a 5 day course? Really eager to start the letrozole i
Hi all , i am waiting to start my first letrozole cycle. I have taken 5 days provera 10 mg . I was told i would get my period within a week. However no period its day 6 today. Im getting really worried . When did you get your bleed ? After a 5 day course? Really eager to start the letrozole i
Hidden
in
Fertility Network UK
10 months ago
provera? When did you get your bleed? Waiting to start letrozole.
hi all i took 10mg provera for 5 days . Still no sign of period. Its day 3 post provera. When did you get your bleed after provera? Waiting to start letrozole for the first time for fertility. Thanks
hi all i took 10mg provera for 5 days . Still no sign of period. Its day 3 post provera. When did you get your bleed after provera? Waiting to start letrozole for the first time for fertility. Thanks
Hidden
in
Fertility Network UK
10 months ago
Verzenio
I have stage 3 lobular cancer. So far had surgery, radiation and currently on Letrozole. I am considered high risk. Did not do chemo because it is not always effective with lobular cancer. Oncologist wants to put me on Verzenio but I am reluctant due to side effects. I am 68 and a full time teacher and
I have stage 3 lobular cancer. So far had surgery, radiation and currently on Letrozole. I am considered high risk. Did not do chemo because it is not always effective with lobular cancer. Oncologist wants to put me on Verzenio but I am reluctant due to side effects. I am 68 and a full time teacher and
Upk4
in
My Breast Cancer Community
10 months ago
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