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Delayed scans
Hi everyone just a little updat on my MBC I had a telephone chat my my oncologist yesterday , was expecting him to give me the dates for my 4 monthly scans to see if Ibrance and Letrozole are still holding my mets stable . He deciddd that as I was feeling so well and bloods all good with no new symptoms
Hi everyone just a little updat on my MBC I had a telephone chat my my oncologist yesterday , was expecting him to give me the dates for my 4 monthly scans to see if Ibrance and Letrozole are still holding my mets stable . He deciddd that as I was feeling so well and bloods all good with no new symptoms
BARBIE70
in
SHARE Metastatic Breast Cancer
3 years ago
IS sorta lol an old drug?
Hi, I’ve just read a members comment that Sotalol is rarely used anymore, I thought it was quite a new drug for some reason. I take it plus Apixiban, Lipitor and Letrozole. I have all sorts of dizziness/ tinnitus/ hair loss/aches and pains and would love to know which drug is the culprit! Could it
Hi, I’ve just read a members comment that Sotalol is rarely used anymore, I thought it was quite a new drug for some reason. I take it plus Apixiban, Lipitor and Letrozole. I have all sorts of dizziness/ tinnitus/ hair loss/aches and pains and would love to know which drug is the culprit! Could it
HelenClare
in
AF Association
3 years ago
Black spots
Hi Ladies, Ive been on Niraparib and Letrozole since March and for the last few days have been getting back spots in front of my eyes (floaters?). Ive checked the list of side effects for both and nothing listed. Has anyone else had this and know cause/remedy? Ive just taken paracetamol but didn’t help
Hi Ladies, Ive been on Niraparib and Letrozole since March and for the last few days have been getting back spots in front of my eyes (floaters?). Ive checked the list of side effects for both and nothing listed. Has anyone else had this and know cause/remedy? Ive just taken paracetamol but didn’t help
Robbo16
in
My Ovacome
3 years ago
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Endocrine treatment.
Following diagnoses of stage 3 invasive breast cancer and surgery in March followed by 5 weeks Radiotherapy l have been unsuccessful in being able to tolerate either Tamoxifen or letrozole due to it exacerbating my existing joint and muscular pains.. I have been given a couple of weeks respite from taking
Following diagnoses of stage 3 invasive breast cancer and surgery in March followed by 5 weeks Radiotherapy l have been unsuccessful in being able to tolerate either Tamoxifen or letrozole due to it exacerbating my existing joint and muscular pains.. I have been given a couple of weeks respite from taking
Tilly101
in
SHARE Breast Cancer Support
3 years ago
Taking letrozole at night
I have been taking letrozole each morning before breakfast. But I am wondering if I might change to in the evening or right before bedtime. I do experience dizziness in the late mornings and thought maybe the change would be good. I will ask my doctor about this but I’m curious to know others experiences
I have been taking letrozole each morning before breakfast. But I am wondering if I might change to in the evening or right before bedtime. I do experience dizziness in the late mornings and thought maybe the change would be good. I will ask my doctor about this but I’m curious to know others experiences
IzzyZorro
in
SHARE Metastatic Breast Cancer
3 years ago
Oncologist appt today
My neutrophils are 1.1 so just one month's ibrance prescribed. And I have no option but to be here for blood test and pill pick up. There is no option to do this in Scotland when I visit my partner. So I have three weeks to enjoy life! Now I know what my savings will be used for, flights to return to
My neutrophils are 1.1 so just one month's ibrance prescribed. And I have no option but to be here for blood test and pill pick up. There is no option to do this in Scotland when I visit my partner. So I have three weeks to enjoy life! Now I know what my savings will be used for, flights to return to
Beryl71
in
SHARE Metastatic Breast Cancer
3 years ago
Strange dreams on Letrozole?
Hello lovelies, Have any of you ever had any wildly, abnormally strange dreams on Letrozole? Like worse than Avatar on acid?!! Im also feeling exhausted and foggy headed, plus really hot all the time (but not hot flashes). Thanks, Lulu x 🌺
Hello lovelies, Have any of you ever had any wildly, abnormally strange dreams on Letrozole? Like worse than Avatar on acid?!! Im also feeling exhausted and foggy headed, plus really hot all the time (but not hot flashes). Thanks, Lulu x 🌺
Hidden
in
Fertility Network UK
3 years ago
mbc found in lung
my mother has been diagnosed with mbc in lungs after 8 years when she finished her treatment in 2012. she has started taking ibrance with letrozole ..can i expect her to be with me for around 10 years.
my mother has been diagnosed with mbc in lungs after 8 years when she finished her treatment in 2012. she has started taking ibrance with letrozole ..can i expect her to be with me for around 10 years.
fine1
in
SHARE Metastatic Breast Cancer
3 years ago
Fast mimicking diet
Hi I would like to know if anyone who uses the palbociclib + letrozole protocol did the fast mimicking diet to try to improve the treatment response after a small progression I apologize for my English, I'm Brazilian.
Hi I would like to know if anyone who uses the palbociclib + letrozole protocol did the fast mimicking diet to try to improve the treatment response after a small progression I apologize for my English, I'm Brazilian.
DOGHANNA
in
SHARE Metastatic Breast Cancer
3 years ago
Ibrance and Letrozole no longer working
Hello everyone. I recently had an MRI of my pelvis. It showed the cancer is now showing more tumors. I start radiation on Tuesday. I will then be put on Xeloda, when I am finished with radiation. I’m really freaking out when I read about all the side effects. Is there anyone who can enlighten me on
Hello everyone. I recently had an MRI of my pelvis. It showed the cancer is now showing more tumors. I start radiation on Tuesday. I will then be put on Xeloda, when I am finished with radiation. I’m really freaking out when I read about all the side effects. Is there anyone who can enlighten me on
Jhshl512
in
SHARE Metastatic Breast Cancer
3 years ago
Need some encouragement
I am not feeling the greatest on letrozole and ibrance 75mg. I am always struggling to get my blood up. Does anyone else suffer from sore arms and legs on this..especially at night? Now I also have a very leaky heart valve. Have to see to doctors. Please pray I do not need open heart surgery. All
I am not feeling the greatest on letrozole and ibrance 75mg. I am always struggling to get my blood up. Does anyone else suffer from sore arms and legs on this..especially at night? Now I also have a very leaky heart valve. Have to see to doctors. Please pray I do not need open heart surgery. All
Totheriver
in
SHARE Metastatic Breast Cancer
3 years ago
Skin issues, hives and welts
Hello everyone. I am four years and four months into this MBC journey and was diagnosed 20 years after having breast cancer in 1997. I have been on Ibrance and letrozole since my diagnosis along with Xgeva injections monthly. Just changed from Xgeva to Zometa which will be every three months. Starting
Hello everyone. I am four years and four months into this MBC journey and was diagnosed 20 years after having breast cancer in 1997. I have been on Ibrance and letrozole since my diagnosis along with Xgeva injections monthly. Just changed from Xgeva to Zometa which will be every three months. Starting
gerisplace
in
SHARE Metastatic Breast Cancer
3 years ago
Anyone had Low AMH (<1pmol/L) but succeeded with Letrozole only?
Hello lovelies, I was wondering if any of you have/ or know someone who has had really really low AMH (less than 1), but managed to conceive using just Letrozole only (no other stims, meds, or IUI)? Also, have you heard of/ seen “Egg/ cell shells”, or deflated follicles after ovulation?… So basically
Hello lovelies, I was wondering if any of you have/ or know someone who has had really really low AMH (less than 1), but managed to conceive using just Letrozole only (no other stims, meds, or IUI)? Also, have you heard of/ seen “Egg/ cell shells”, or deflated follicles after ovulation?… So basically
Hidden
in
Fertility Network UK
3 years ago
Update on Scans
Hello ladies! Please forgive me for not updating everyone sooner. The day of my scans I was basically there all day and had a 2 hr drive back to my sons in Concord NC so I was exhausted. Then I packed up from there and headed to Edisto beach for a mini vacay! However PRAISE GOD PRAISE GOD PRAISE GOD
Hello ladies! Please forgive me for not updating everyone sooner. The day of my scans I was basically there all day and had a 2 hr drive back to my sons in Concord NC so I was exhausted. Then I packed up from there and headed to Edisto beach for a mini vacay! However PRAISE GOD PRAISE GOD PRAISE GOD
Itisfinished
in
SHARE Metastatic Breast Cancer
3 years ago
Planning is impossible!
I know from posts I've read that some of you ladies have manage to get away. Well I had a night in the New Forest on Sunday and visited my sister and had a couple of nice walks. It was just like old times when I used to take myself off for mini and major trips. Now all that feels like a thing of the
I know from posts I've read that some of you ladies have manage to get away. Well I had a night in the New Forest on Sunday and visited my sister and had a couple of nice walks. It was just like old times when I used to take myself off for mini and major trips. Now all that feels like a thing of the
Beryl71
in
SHARE Metastatic Breast Cancer
3 years ago
Who else was shocked!!
I'm new here but thought I would add me current experience with MBC. I was diagnosed with BC back in 2014, had a mastectomy and only had to take Letrozole for 5 years. I thought it was a fluke and thought nothing more about it. Well, low and behold it is back!! I thought I had pulled a muscle from
I'm new here but thought I would add me current experience with MBC. I was diagnosed with BC back in 2014, had a mastectomy and only had to take Letrozole for 5 years. I thought it was a fluke and thought nothing more about it. Well, low and behold it is back!! I thought I had pulled a muscle from
peggylz
in
SHARE Metastatic Breast Cancer
3 years ago
Scans/bloodwork
Having my 2nd set of scans and bloodwork done today since I started Letrozole and Ibrance. Its been 5 months. I am trying not to get fearful and anxious. 🙏🙏🙏
Having my 2nd set of scans and bloodwork done today since I started Letrozole and Ibrance. Its been 5 months. I am trying not to get fearful and anxious. 🙏🙏🙏
Itisfinished
in
SHARE Metastatic Breast Cancer
3 years ago
Dry cough
I am wondering if anyone has had issues with a dry cough after treatment for metastatic breast cancer brain surgeries. I started taking letrozole in late February and then started Ibrance a month or so later. I stopped the Ibrance after three rounds and I am taking another drug, Gallium Maltolate, instead
I am wondering if anyone has had issues with a dry cough after treatment for metastatic breast cancer brain surgeries. I started taking letrozole in late February and then started Ibrance a month or so later. I stopped the Ibrance after three rounds and I am taking another drug, Gallium Maltolate, instead
IzzyZorro
in
SHARE Metastatic Breast Cancer
3 years ago
My face to face appointment Friday
Hi Ladies, I’m going to try posting this again. I had a disastrous appointment with the oncologist yesterday. I went through the whole treatment menu to no avail. The disease has spread to places I didn’t know I had so I appreciate that there is nothing left for me only Letrozole which I took last night
Hi Ladies, I’m going to try posting this again. I had a disastrous appointment with the oncologist yesterday. I went through the whole treatment menu to no avail. The disease has spread to places I didn’t know I had so I appreciate that there is nothing left for me only Letrozole which I took last night
Gemimablackvelvet
in
My Ovacome
3 years ago
Gonal F for FET... MCS due to poor lining...did any tried low dose gonal F and trigger shot for FET?
Gonal F for FET... MCS due to poor Hi ok so after few MCS now my doctor thinks letrozole which is for ovulation is not enough to form the thick lining for my uterus so that's y multiple MCS....did anyone tried low dose gonal F and trigger to induce ovulation and then went for FET?
Gonal F for FET... MCS due to poor Hi ok so after few MCS now my doctor thinks letrozole which is for ovulation is not enough to form the thick lining for my uterus so that's y multiple MCS....did anyone tried low dose gonal F and trigger to induce ovulation and then went for FET?
Same0508
in
Fertility Network UK
3 years ago
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