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Metrozol
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Does exemestane work.
Hi . Has anyone been on exemestane please? If so has it shrunk your breast tumors at all? I have been on it nearly 2 months and I don't know if it is worth not as they are not shrinking. Before letrozole stopped working the tumors shrank a lot but nothing is happening with exemestane. I am worried
Hi . Has anyone been on exemestane please? If so has it shrunk your breast tumors at all? I have been on it nearly 2 months and I don't know if it is worth not as they are not shrinking. Before letrozole stopped working the tumors shrank a lot but nothing is happening with exemestane. I am worried
Hidden
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SHARE Metastatic Breast Cancer
3 years ago
COVID antibody results
Hello everyone! Just received my Covid antibody test results and after having COVID in 2020 and being fully vaccinated since MAY 13, my results came back negative for antibodies. I’m asking my doctor to submit an order for another test. According to the results it could be a “false negative”. I am
Hello everyone! Just received my Covid antibody test results and after having COVID in 2020 and being fully vaccinated since MAY 13, my results came back negative for antibodies. I’m asking my doctor to submit an order for another test. According to the results it could be a “false negative”. I am
Gmaoftriplets
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SHARE Metastatic Breast Cancer
3 years ago
What next after ibrance and faslodex?
Hello everyone, I got diagnosed with breast cancer (ER+(50%), PR+(10%), Her2-) in Nov 2016 - I got radical mastectomy. Without further treatment i got the first metastasis in March 2017 - on the spine. I got Femara / letrozole and was on it until 2019 May before it progressed and I got a couple of metastasis
Hello everyone, I got diagnosed with breast cancer (ER+(50%), PR+(10%), Her2-) in Nov 2016 - I got radical mastectomy. Without further treatment i got the first metastasis in March 2017 - on the spine. I got Femara / letrozole and was on it until 2019 May before it progressed and I got a couple of metastasis
ERPRposHER2-
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SHARE Metastatic Breast Cancer
3 years ago
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Letrozole
Hi Ladies, My doctor advised me to start Letrozole from day 3 of my cycle. But I have heard that it is better to be started from day 5. Does anyone have experience with Letrozole? Thanks,
Hi Ladies, My doctor advised me to start Letrozole from day 3 of my cycle. But I have heard that it is better to be started from day 5. Does anyone have experience with Letrozole? Thanks,
e38718
in
Fertility Network UK
3 years ago
CA125 rising but clear scan, low grade ovarian cancer.
Hello, my Mum was diagnosed with 3a low grade fallopian tube cancer last year. She had a total de bulking, no chemo but is taking letrozole. Her CT scans have come back clear but the ca125 has now risen from 35 to 210 in 3 months ? I have read (everything) that the ca125 is only a marker. Has anyone
Hello, my Mum was diagnosed with 3a low grade fallopian tube cancer last year. She had a total de bulking, no chemo but is taking letrozole. Her CT scans have come back clear but the ca125 has now risen from 35 to 210 in 3 months ? I have read (everything) that the ca125 is only a marker. Has anyone
cath_koala
in
My Ovacome
3 years ago
Just started Piqray - now w/ rash
I had some disease progression of metastatic ILC (sigmoid colon area thickening, and a new spot on the adrenal gland). I had a good run on Ibrance and Letrozole (Oct 2017-May2021). Took a bit getting the workup, biopsy and receptor testing. I have a PIK3CA mutation - so 1st of June I started on Piqray
I had some disease progression of metastatic ILC (sigmoid colon area thickening, and a new spot on the adrenal gland). I had a good run on Ibrance and Letrozole (Oct 2017-May2021). Took a bit getting the workup, biopsy and receptor testing. I have a PIK3CA mutation - so 1st of June I started on Piqray
tab78FN
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SHARE Metastatic Breast Cancer
3 years ago
Please Help Me 😭
I hope I dont sound crazy but I have got to find out if it's me or the meds that are making me feel like I am going off the deep end. My marriage is in shambles and I am crying alot, screaming angry at my husband constantly paranoid that he is cheating on me. I just dont know what is going on with me
I hope I dont sound crazy but I have got to find out if it's me or the meds that are making me feel like I am going off the deep end. My marriage is in shambles and I am crying alot, screaming angry at my husband constantly paranoid that he is cheating on me. I just dont know what is going on with me
Itisfinished
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SHARE Metastatic Breast Cancer
3 years ago
Need hope
Letrozole failed so now on aromasin but the side effects are horrendous. Get scan results in 2 days. 2 large tumours in breast not shrinking. 1 in armpit painful. 2 on shoulder blade. Had scans etc to see if cancer spreading but feel it has. Feel so ill. Think he will say there is no hope. Is anyone
Letrozole failed so now on aromasin but the side effects are horrendous. Get scan results in 2 days. 2 large tumours in breast not shrinking. 1 in armpit painful. 2 on shoulder blade. Had scans etc to see if cancer spreading but feel it has. Feel so ill. Think he will say there is no hope. Is anyone
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SHARE Metastatic Breast Cancer
3 years ago
Supporting my mom
Hello dear ladies. My name is Saba and I’m here for my mom. She doesn’t speak English. First of all I’m really glad that I was able to find this website:),reading all of your ladies stories and posts give me strength to overcome my anxiety and panic attacks and be the best support for my mom. 4 months
Hello dear ladies. My name is Saba and I’m here for my mom. She doesn’t speak English. First of all I’m really glad that I was able to find this website:),reading all of your ladies stories and posts give me strength to overcome my anxiety and panic attacks and be the best support for my mom. 4 months
SabaAK
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SHARE Metastatic Breast Cancer
3 years ago
Ivf funding uk
Iv been referred for IVF Funding, But Iv heard that if my partner and I don’t have the same home address we can be denied ivf on the NHS, Iv been in relationship for 7 years, we had 6 rounds of Letrozole 2.5mg no success. We basically live together but I’m still down at living at my mums address, Iv
Iv been referred for IVF Funding, But Iv heard that if my partner and I don’t have the same home address we can be denied ivf on the NHS, Iv been in relationship for 7 years, we had 6 rounds of Letrozole 2.5mg no success. We basically live together but I’m still down at living at my mums address, Iv
Hidden
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Fertility Network UK
3 years ago
Birthday blessing as I take scans this week
65 and continue to strive! Bike ride today in nearby Rhode Island. First BC diagnosis 2004. Recurrence 2013. MBC 2018 with bone Mets. Ibrance & Letrozole. This is a tough journey and you all help me so much. Regular CT and bone scans this week and follow up with oncologist next Monday. Prayers and
65 and continue to strive! Bike ride today in nearby Rhode Island. First BC diagnosis 2004. Recurrence 2013. MBC 2018 with bone Mets. Ibrance & Letrozole. This is a tough journey and you all help me so much. Regular CT and bone scans this week and follow up with oncologist next Monday. Prayers and
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SHARE Metastatic Breast Cancer
3 years ago
MRI Anxiety and Meniere’s Disease
I now also have Meniere’s Disease. Anyone out there have this? I have history of sinus for as long as I can remember. After my Moderna shot in February had sinus infection and blocked ear with pressure that occurred at the same time. Been that way ever since, three bouts of vertigo lasting hours
I now also have Meniere’s Disease. Anyone out there have this? I have history of sinus for as long as I can remember. After my Moderna shot in February had sinus infection and blocked ear with pressure that occurred at the same time. Been that way ever since, three bouts of vertigo lasting hours
Tam-56
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SHARE Metastatic Breast Cancer
3 years ago
No more Letrozole
Good morning everyone! Thank you all for your suggestions. A little background on myself. I was first diagnosed in 2004. I was put on tamoxifen right away. Already having interstitial cystitis, which is a incurable disease of the bladder, I started having awful bladder pain after 3 months. I was taken
Good morning everyone! Thank you all for your suggestions. A little background on myself. I was first diagnosed in 2004. I was put on tamoxifen right away. Already having interstitial cystitis, which is a incurable disease of the bladder, I started having awful bladder pain after 3 months. I was taken
Jhshl512
in
SHARE Metastatic Breast Cancer
3 years ago
Discontinuing Letrozole
Hello everyone. I’m very nervous and don’t know what the future holds now that I can’t take Letrozole. I have been suffering from interstitial cystitis for over 30 years and the Letrozole is causing horrible bladder pain. I’m also on Ibrance. I’ve been on these meds since 11/20 and things have been great
Hello everyone. I’m very nervous and don’t know what the future holds now that I can’t take Letrozole. I have been suffering from interstitial cystitis for over 30 years and the Letrozole is causing horrible bladder pain. I’m also on Ibrance. I’ve been on these meds since 11/20 and things have been great
Jhshl512
in
SHARE Metastatic Breast Cancer
3 years ago
Pet and bone scan results
Good morning pretty ladies. Today I received a bone scan result Says everything is stable and there is no evidence of new metastases combo ibrance - Letrozole for 33 months. I'm going to tell you what has happened Remember my extreme pain in my feet .... that continues. I had a pet scan that includes
Good morning pretty ladies. Today I received a bone scan result Says everything is stable and there is no evidence of new metastases combo ibrance - Letrozole for 33 months. I'm going to tell you what has happened Remember my extreme pain in my feet .... that continues. I had a pet scan that includes
Maludagui
in
SHARE Metastatic Breast Cancer
3 years ago
Collagen for hair
Collagen supplements - I have been on Ibrance and Letrozole for 7 months now. They appear to be working as my tumor marker has consistently gone down and I feel good. I know that many of you on this site have experienced hair thinning or loss but I had not really noticed that until this past month.
Collagen supplements - I have been on Ibrance and Letrozole for 7 months now. They appear to be working as my tumor marker has consistently gone down and I feel good. I know that many of you on this site have experienced hair thinning or loss but I had not really noticed that until this past month.
love2golfwell
in
SHARE Metastatic Breast Cancer
3 years ago
Target Medicine Changing from Ibrance to Vezernio
Hello, my wife was diagnosed with stage 4 breast cancer back in June of 2018. She had been in NED since Feb of 2019 but her cancer marker CA 27.29 had increased to 66 and 81 respectively for the past two blood tests. Her current medication is Ibrance + Letrozole and her oncologist would like to change
Hello, my wife was diagnosed with stage 4 breast cancer back in June of 2018. She had been in NED since Feb of 2019 but her cancer marker CA 27.29 had increased to 66 and 81 respectively for the past two blood tests. Her current medication is Ibrance + Letrozole and her oncologist would like to change
BlessedHubby
in
SHARE Metastatic Breast Cancer
3 years ago
Hip issues
Good morning my survivor sisters..I had been having some pain in my hip had a MRI and the results came back I have avascular necrosis I now have to see an orthopedic surgeon this is probably from the chemo I had in the past and possibly some side effect from the ibrance or letrozole as anyone ever experienced
Good morning my survivor sisters..I had been having some pain in my hip had a MRI and the results came back I have avascular necrosis I now have to see an orthopedic surgeon this is probably from the chemo I had in the past and possibly some side effect from the ibrance or letrozole as anyone ever experienced
Lark78
in
SHARE Metastatic Breast Cancer
3 years ago
Update
Hi Ladies Hope everyone is keeping as well as possible, got my first hug in a long time from my daughter and 4 year old granddaughter yesterday which was very emotional! My scan is booked for tonight, not at usual hospital but a 30 minute drive away through heavy teatime traffic. No sign of IV nurse
Hi Ladies Hope everyone is keeping as well as possible, got my first hug in a long time from my daughter and 4 year old granddaughter yesterday which was very emotional! My scan is booked for tonight, not at usual hospital but a 30 minute drive away through heavy teatime traffic. No sign of IV nurse
Hidden
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My Ovacome
3 years ago
Rising tumour markers
Hi I’ve just joined this group and was wondering if anyone has any info on Inrance and letrozole combination. My oncologist told me that my tumour markers are rising and I’m wondering if anyone else on here had experience of this. I’m really worried that they will not be able to change combinations and
Hi I’ve just joined this group and was wondering if anyone has any info on Inrance and letrozole combination. My oncologist told me that my tumour markers are rising and I’m wondering if anyone else on here had experience of this. I’m really worried that they will not be able to change combinations and
Hm50
in
SHARE Metastatic Breast Cancer
3 years ago
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