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ER+/PR+, HER2-, Stage1B (+sentinel node)
Hi Diagnosed in March 2022 - partial mastectomy and 33 doses/days radiation now on Letrozole. Anyone with similar diagnosis and treatment have any advice on supplements or what to expect? Reading some posts where Letrozole "stopped working". Any information is helpful. Thanks so much and God bless
Hi Diagnosed in March 2022 - partial mastectomy and 33 doses/days radiation now on Letrozole. Anyone with similar diagnosis and treatment have any advice on supplements or what to expect? Reading some posts where Letrozole "stopped working". Any information is helpful. Thanks so much and God bless
KB1968
in
SHARE Metastatic Breast Cancer
2 years ago
Ibrance and Letrozole not working
I have just finished my 3rd round. My CA 15-3 went up 8.1 points to 38.1 and my CEA went up 4.2 to 14.9. I just had a CT that they said was fine except for more lung nodules but an X-ray for hip pain showed growth. What do I do now?
I have just finished my 3rd round. My CA 15-3 went up 8.1 points to 38.1 and my CEA went up 4.2 to 14.9. I just had a CT that they said was fine except for more lung nodules but an X-ray for hip pain showed growth. What do I do now?
Bauchhashem
in
SHARE Metastatic Breast Cancer
2 years ago
Superficial thrombophlebitis an memory loss
I have been prescribed letrozole after having a cancerous well contained lump removed plus 3 lymph nodes which were clear. Had a weeks radiotherapy which the oncologist said wasn’t essential. Could walk away at this point. Have been on letrozole for about 6 weeks and had a few side effects. 3 weeks
I have been prescribed letrozole after having a cancerous well contained lump removed plus 3 lymph nodes which were clear. Had a weeks radiotherapy which the oncologist said wasn’t essential. Could walk away at this point. Have been on letrozole for about 6 weeks and had a few side effects. 3 weeks
Dafduck24
in
SHARE Breast Cancer Support
2 years ago
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Day 21 very high progesterone levels after Letrozole
Can anyone offer me any reassurance please? I was put on Letrozole as a last ditched attempt before starting IVF. Ovulation has never been an issue for me, I believe I was put on letrozole to enhance the egg quality given I have had three consecutive early losses. Last cycle I was taking 5mg of Letrozole
Can anyone offer me any reassurance please? I was put on Letrozole as a last ditched attempt before starting IVF. Ovulation has never been an issue for me, I believe I was put on letrozole to enhance the egg quality given I have had three consecutive early losses. Last cycle I was taking 5mg of Letrozole
Katiee1
in
Fertility Network UK
2 years ago
2nd line without Vernesio
Hello ladies, I’m having a PET scan today and, of course, feeling extra anxious with “what if” scenarios running through my head. Being mobility impaired, I’m dreading being on Vernezio and experience diarrhea even more that otherwise “healthy” patient. I’m currently on palbo 125mg and Letrozole
Hello ladies, I’m having a PET scan today and, of course, feeling extra anxious with “what if” scenarios running through my head. Being mobility impaired, I’m dreading being on Vernezio and experience diarrhea even more that otherwise “healthy” patient. I’m currently on palbo 125mg and Letrozole
Tolife_18
in
SHARE Metastatic Breast Cancer
2 years ago
Reaction to Denisumab?
I take Letrozole each day and have monthly injections of Denisumab. I had the last injection on Thursday of last week after five weeks instead of four because I had not been called for a monitoring blood test. I found that after I had the injection, my joint pains and stiffness were relieved. However
I take Letrozole each day and have monthly injections of Denisumab. I had the last injection on Thursday of last week after five weeks instead of four because I had not been called for a monitoring blood test. I found that after I had the injection, my joint pains and stiffness were relieved. However
MarsiJay
in
SHARE Metastatic Breast Cancer
2 years ago
Does anyone have experience with Enhertu? I was HER2 - low in 2019 and my last liver biopsy was HER2 - 0. Planning to start Enhertu next.
Hi Ladies, It’s been a long time since I posted. I feel like I have been zipping through all the lines of treatment. I started with mets in the brachial plexus in 2019. My oncologist is recommending Enhertu as my next line of treatment. This will be my sixth line. I want to know what to expect
Hi Ladies, It’s been a long time since I posted. I feel like I have been zipping through all the lines of treatment. I started with mets in the brachial plexus in 2019. My oncologist is recommending Enhertu as my next line of treatment. This will be my sixth line. I want to know what to expect
Sparky95
in
SHARE Metastatic Breast Cancer
2 years ago
Letrozole question please
Hi ladies, I've just taken my 1st dose 7.5mg of letrozle today on cycle day 2,have to continue up to cycle day 6. Anyone got any experiences on letrozle like side effects etc and have successfully concieved? I'm just nervous as I have low amh too along with other blood test levels which are being
Hi ladies, I've just taken my 1st dose 7.5mg of letrozle today on cycle day 2,have to continue up to cycle day 6. Anyone got any experiences on letrozle like side effects etc and have successfully concieved? I'm just nervous as I have low amh too along with other blood test levels which are being
Mikkie
in
Fertility Network UK
2 years ago
timing of medications
hiya - am getting confused about when to take all my meds and supplements throughout the day other then to leave 1hr after taking thyroxine and not having calcium tab within 4hrs of thyroxine. Does it matter when I have the rest or are there optimal times to take these meds/supplements. I wondered
hiya - am getting confused about when to take all my meds and supplements throughout the day other then to leave 1hr after taking thyroxine and not having calcium tab within 4hrs of thyroxine. Does it matter when I have the rest or are there optimal times to take these meds/supplements. I wondered
bikebabe
in
Thyroid UK
2 years ago
Xeloda and Swimming
Hi! Has anyone been on xeloda ? I just saw my onco today and unfortunately recent PETScan just confirmed my present treatment kisqali and fulvestrant isn’t working anymore. I was on kisqali and letrozole for over 4 yrs and changed letrozole to fulvestrant 3 months ago but unfortunately after 3 months
Hi! Has anyone been on xeloda ? I just saw my onco today and unfortunately recent PETScan just confirmed my present treatment kisqali and fulvestrant isn’t working anymore. I was on kisqali and letrozole for over 4 yrs and changed letrozole to fulvestrant 3 months ago but unfortunately after 3 months
Bless_68
in
SHARE Metastatic Breast Cancer
2 years ago
lining is thinner than it was?!?! - edited
Hi all, so I had my day 11 scan for FET cycle and lining was 6.9mm and today at day 15 is 6.3mm :( it's good quality and triple layer. This is the 3rd try for a FET and they increased meds to taking progy 4 times a day (8mg) and patches and this time is worse. Cycle 1 was 6mg Prog and lining was
Hi all, so I had my day 11 scan for FET cycle and lining was 6.9mm and today at day 15 is 6.3mm :( it's good quality and triple layer. This is the 3rd try for a FET and they increased meds to taking progy 4 times a day (8mg) and patches and this time is worse. Cycle 1 was 6mg Prog and lining was
Melody79
in
Fertility Network UK
2 years ago
Nail fungus
I have an increasing problem with my big toe nail, such that on the last trip to the foot health practitioner, she cut away about half the nail. She described it as a fungal infection. The nail has thickened and become brittle and doesn't adhere to my toe. I have purchased several products from the pharmacy
I have an increasing problem with my big toe nail, such that on the last trip to the foot health practitioner, she cut away about half the nail. She described it as a fungal infection. The nail has thickened and become brittle and doesn't adhere to my toe. I have purchased several products from the pharmacy
Beryl71
in
SHARE Metastatic Breast Cancer
2 years ago
bleeding
5 years ago upon diagnosis of OC, I had a full Hysterectomy and a round of paclitaxol and carboplatin, 3 years later had chemo again but didn't work, been gradually getting worse until May this year I tummy blew up and quite painful can't fit my jeans on anymore thought it was ascites only to have a
5 years ago upon diagnosis of OC, I had a full Hysterectomy and a round of paclitaxol and carboplatin, 3 years later had chemo again but didn't work, been gradually getting worse until May this year I tummy blew up and quite painful can't fit my jeans on anymore thought it was ascites only to have a
Melnie
in
My Ovacome
2 years ago
A bit of good news
Hello fellow warriors, hope all is well with everyone. I had a CatScan 9/23 and discussed results with my onc 9/27. The primary lymph node under my arm has shrunk a further 20% (making it 60% total). I used to be able to feel it but I don't feel it anymore. The secondary node behind my sternum is back
Hello fellow warriors, hope all is well with everyone. I had a CatScan 9/23 and discussed results with my onc 9/27. The primary lymph node under my arm has shrunk a further 20% (making it 60% total). I used to be able to feel it but I don't feel it anymore. The secondary node behind my sternum is back
Kruza
in
SHARE Metastatic Breast Cancer
2 years ago
Anyone over 60 still on Lupron shots to decrease estrogen production?
hi Ladies, I’m so enjoying my month visit to Nz seeing old friends! Also saw my old oncologist here in Nz who wants me to think about having my ovaries out to help my verzenio treatment work better even though I am 62! When chemo pushed me into menopause back when I was 44, it aprarently allowed
hi Ladies, I’m so enjoying my month visit to Nz seeing old friends! Also saw my old oncologist here in Nz who wants me to think about having my ovaries out to help my verzenio treatment work better even though I am 62! When chemo pushed me into menopause back when I was 44, it aprarently allowed
Bettybuckets
in
SHARE Metastatic Breast Cancer
2 years ago
PET results!
hi everyone! My dad was diagnosed with MBC in May of 2022 to bone. He is currently on Ibrance, letrozole, lupron, and xjeva. He just had his first pet scan after starting treatment and it shows that all of his previous lesions that lit up on the PET scan have resolved. (Primary breast tumor and bone
hi everyone! My dad was diagnosed with MBC in May of 2022 to bone. He is currently on Ibrance, letrozole, lupron, and xjeva. He just had his first pet scan after starting treatment and it shows that all of his previous lesions that lit up on the PET scan have resolved. (Primary breast tumor and bone
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
Ibrance/Letrozole
Hello, I was wondering if anyone has been on Ibrance and Letrozole longer than 5 years. I have. Been on this treatment now for 5 1/2 years,. Thank you
Hello, I was wondering if anyone has been on Ibrance and Letrozole longer than 5 years. I have. Been on this treatment now for 5 1/2 years,. Thank you
Gmaoftriplets
in
SHARE Metastatic Breast Cancer
2 years ago
Ki scores
hello. Just wanted to reach out and see if anyone knows their Ki score and what their oncologists say about predictability in outcomes. My fathers Ki score is 67-70% which Google has informed me is high. I think this means that it is very Chemo sensitive. Does anyone else have a high Ki score and how
hello. Just wanted to reach out and see if anyone knows their Ki score and what their oncologists say about predictability in outcomes. My fathers Ki score is 67-70% which Google has informed me is high. I think this means that it is very Chemo sensitive. Does anyone else have a high Ki score and how
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
FL oncologist recommendations
hi! Does anyone have any good recommendations for a breast oncologist in FL? Specifically in the Delray Beach/ boca area? Willing to drive to Deerfield, Miami, boynton, etc. Thanks so much! This is for my father who was diagnosed with MBC to bone in May of 2022. Started on Ibrance letrozole lupron
hi! Does anyone have any good recommendations for a breast oncologist in FL? Specifically in the Delray Beach/ boca area? Willing to drive to Deerfield, Miami, boynton, etc. Thanks so much! This is for my father who was diagnosed with MBC to bone in May of 2022. Started on Ibrance letrozole lupron
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
BRCA 2 GENE
hello everyone- I just wanted to reach out and inquire if anyone has the BRCA 2 gene which contributed to their MBC diagnosis. If so, how did this affect your treatment lines. I read a scary article that if you have a BRCA mutation you become resistant more quickly to Ibrance and endocrine therapy like
hello everyone- I just wanted to reach out and inquire if anyone has the BRCA 2 gene which contributed to their MBC diagnosis. If so, how did this affect your treatment lines. I read a scary article that if you have a BRCA mutation you become resistant more quickly to Ibrance and endocrine therapy like
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
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