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Help with doctors and getting to a plan
In addition to my Gleason 9 and PSA of 18, I have a metastasis on the right pubic bone, discovered by a nm bone scan on Thursday, and am going for chest, ab, pelvic scan today to see if that is the only other site. I met with Dr Cheetham from Mt Sinai because I was waiting and waiting for appointments
In addition to my Gleason 9 and PSA of 18, I have a metastasis on the right pubic bone, discovered by a nm bone scan on Thursday, and am going for chest, ab, pelvic scan today to see if that is the only other site. I met with Dr Cheetham from Mt Sinai because I was waiting and waiting for appointments
Grateful4this
in
Advanced Prostate Cancer
3 years ago
Emotional instability after stopping lupron and abiraterone
After an initial few months of positive improvements in every sector, my guy started into a mental health/cognitive decline to the point where he is now dependent on gabapentin he takes for other reasons in order to maintain any emotional stability. He says his short term memory is also getting worse
After an initial few months of positive improvements in every sector, my guy started into a mental health/cognitive decline to the point where he is now dependent on gabapentin he takes for other reasons in order to maintain any emotional stability. He says his short term memory is also getting worse
lss65
in
Advanced Prostate Cancer
3 years ago
Starting Xtandi
Almost 2 years on Lupron and Bicaludimide and my PSA is starting to go back up. The least it has been is 1.75 a few months ago then about 2.0 last month and now less than 4. My MOC wanted me to start me on Xtandi . I have read the Xtandi information and there are some severe side effects. None of them
Almost 2 years on Lupron and Bicaludimide and my PSA is starting to go back up. The least it has been is 1.75 a few months ago then about 2.0 last month and now less than 4. My MOC wanted me to start me on Xtandi . I have read the Xtandi information and there are some severe side effects. None of them
Hidden
in
Advanced Prostate Cancer
3 years ago
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Hot Flashes and other side affects from Erleada and Lupron
Have been on Erleada 9Apulutanide) with Lupron and Psa is Excellent <.02 for a year but would like a 3 to 6 month break . Has anyone done that aqnde what can I expect?
Have been on Erleada 9Apulutanide) with Lupron and Psa is Excellent <.02 for a year but would like a 3 to 6 month break . Has anyone done that aqnde what can I expect?
Rberke
in
Advanced Prostate Cancer
3 years ago
Scan Results and Treatment Begins
My last post was about 4 months ago. I had planned on posting the results much sooner, but the trip had a few more twists and turns than I planned. Here’s the promised update of my adventure. My history is in my profile and my MO is Dr Maha Hussain. So after 3 clear Axumin scans since 2019, the September
My last post was about 4 months ago. I had planned on posting the results much sooner, but the trip had a few more twists and turns than I planned. Here’s the promised update of my adventure. My history is in my profile and my MO is Dr Maha Hussain. So after 3 clear Axumin scans since 2019, the September
ChicagoJ
in
Advanced Prostate Cancer
3 years ago
PCa warrior humor
Why is having sex with a guy on Lupron like a snow storm? You never know when he's coming, how many inches you'll get, or how long it will last.
Why is having sex with a guy on Lupron like a snow storm? You never know when he's coming, how many inches you'll get, or how long it will last.
Scout4answers
in
Advanced Prostate Cancer
3 years ago
Covid anyone?
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
TonyiaR7
in
My MSAA Community
3 years ago
13 year Battle with Stage 4 PC
This is a long post - patience is advised. My warrior husband passed away on Nov 19 after a 13 year battle with Prostate Cancer. He was originally diagnosed in 2008 with a Gleason of 3+4 and PSA of 35 at age 59. He had a radical prostatectomy followed by 34 radiation treatments. His PSA remained undetectable
This is a long post - patience is advised. My warrior husband passed away on Nov 19 after a 13 year battle with Prostate Cancer. He was originally diagnosed in 2008 with a Gleason of 3+4 and PSA of 35 at age 59. He had a radical prostatectomy followed by 34 radiation treatments. His PSA remained undetectable
poppymom0211
in
Advanced Prostate Cancer
3 years ago
Estrogen Patch ADT
My personal experience was that during the 6 months I was on estrogen patches, my testosterone was undetectable for the most part, it did bounce up to the low 20s a couple of times but I was experimenting with the dose. When I got the dose tuned in my testosterone was undetectable. Lupron reduces testosterone
My personal experience was that during the 6 months I was on estrogen patches, my testosterone was undetectable for the most part, it did bounce up to the low 20s a couple of times but I was experimenting with the dose. When I got the dose tuned in my testosterone was undetectable. Lupron reduces testosterone
Hidden
in
Advanced Prostate Cancer
3 years ago
Extreme pain in penis
I was dx with advanced PC two months ago. It is apparently aggressive, with bone scan, CT scan, and two MRI's indicating metastases at several sites on bones including pelvic area, and external to areas around prostate. No organs involved and apparently no lymph involvement. I had a Lupron shot and began
I was dx with advanced PC two months ago. It is apparently aggressive, with bone scan, CT scan, and two MRI's indicating metastases at several sites on bones including pelvic area, and external to areas around prostate. No organs involved and apparently no lymph involvement. I had a Lupron shot and began
Hidden
in
Advanced Prostate Cancer
3 years ago
Advanced Prostate Cancer Update and Xgeva
Hello everyone I am posting for first time, to update everyone on my condition, after reading posts and looking for others in my condition to converse with to share ideas. I also know where doctors are the best at what they do its also a patient and doctor responsibility together to make a plan for
Hello everyone I am posting for first time, to update everyone on my condition, after reading posts and looking for others in my condition to converse with to share ideas. I also know where doctors are the best at what they do its also a patient and doctor responsibility together to make a plan for
Hidden
in
Advanced Prostate Cancer
3 years ago
Considering surgical castration
Next Tuesday I have a surgical castration consult. Quick history. Diag May 28th Stage 4 Gleason 9, PSA 1065. Casodex and Lupron. Diet changes and supplements provided if your interested. Off Casodex in about 6 weeks and on Zytiga and Lupron as well as bone building infusions. Treatment same to this day
Next Tuesday I have a surgical castration consult. Quick history. Diag May 28th Stage 4 Gleason 9, PSA 1065. Casodex and Lupron. Diet changes and supplements provided if your interested. Off Casodex in about 6 weeks and on Zytiga and Lupron as well as bone building infusions. Treatment same to this day
katartizo61
in
Advanced Prostate Cancer
3 years ago
Vacation continues
Last Lupron (Nov 2020) Update: Testosterone still over 400, PSA Sept 1-“.5” Oct. 13-“.6” Dec 1-“.4” So-PSA is steady/dropping. Vacation continues. Question: Oncologist ordered CBC with differential/platelet and Comp. Metabolic Panel. What are the relevant results regarding PC?
Last Lupron (Nov 2020) Update: Testosterone still over 400, PSA Sept 1-“.5” Oct. 13-“.6” Dec 1-“.4” So-PSA is steady/dropping. Vacation continues. Question: Oncologist ordered CBC with differential/platelet and Comp. Metabolic Panel. What are the relevant results regarding PC?
Largell
in
Advanced Prostate Cancer
3 years ago
Your Lupron experience...
I've been on the 3 month Lupron for a year now and have detected a pattern. The first five days or so I feel okay but weeks 2 and 3 I feel like crap. Easily fatigued, off-balance and just a big lump in my recliner. Thank the gods for Netflix. Anyone else have a similar experience? Best wishes to
I've been on the 3 month Lupron for a year now and have detected a pattern. The first five days or so I feel okay but weeks 2 and 3 I feel like crap. Easily fatigued, off-balance and just a big lump in my recliner. Thank the gods for Netflix. Anyone else have a similar experience? Best wishes to
bean1008
in
Advanced Prostate Cancer
3 years ago
How long can I expect Xtandi to work
I have been on Xtandi a few months and the results are very good. I was on Lupron 10 years before it quit working. How long can I expect Xtandi to work before going to the next step?
I have been on Xtandi a few months and the results are very good. I was on Lupron 10 years before it quit working. How long can I expect Xtandi to work before going to the next step?
jbskiatook
in
Advanced Prostate Cancer
3 years ago
Te2 functionality
Is there any efficacy on Te2 first then radiation.Mainstream implementation of LhRh lupron orgovyx and other adt products is standard but not always.I understand everyone chemistry different and SOC is another.
Is there any efficacy on Te2 first then radiation.Mainstream implementation of LhRh lupron orgovyx and other adt products is standard but not always.I understand everyone chemistry different and SOC is another.
Metaldraft
in
Advanced Prostate Cancer
3 years ago
An Enigma
I have written a number of posts earlier detailing my 22 year journey since RP in 1999. The issue that I face is a high PSA(146) after Lupron, Casodex, Zytiga and Chemo ( Taxotere). I still receive an injection of Trelstar every 3 months and am currently taking the chemo drug Lynparza. Thankfully I have
I have written a number of posts earlier detailing my 22 year journey since RP in 1999. The issue that I face is a high PSA(146) after Lupron, Casodex, Zytiga and Chemo ( Taxotere). I still receive an injection of Trelstar every 3 months and am currently taking the chemo drug Lynparza. Thankfully I have
whwalker1
in
Advanced Prostate Cancer
3 years ago
Can't run - legs feel like concrete
I used to be a fairly hardcore runner. I averaged about 45 miles/week, more when marathon training. I was into racing. I've run 15 full marathons and countless 5ks, 10ks, etc. It was a huge part of my life. While on Lupron I've found that running is difficult. My legs feel extremely heavy. It's not
I used to be a fairly hardcore runner. I averaged about 45 miles/week, more when marathon training. I was into racing. I've run 15 full marathons and countless 5ks, 10ks, etc. It was a huge part of my life. While on Lupron I've found that running is difficult. My legs feel extremely heavy. It's not
fireandice123
in
Advanced Prostate Cancer
3 years ago
I'm new here, unfortunately. :)
Hello, I had colon cancer in 1993, with surgery for resection, radiation and chemotherapy. Clear colonoscopies ever since. Successfully removed melanoma from left ear in 2005. I was diagnosed in early October (2021) with prostate cancer. After a series of reports, an MRI, bone scan, and CT scan,
Hello, I had colon cancer in 1993, with surgery for resection, radiation and chemotherapy. Clear colonoscopies ever since. Successfully removed melanoma from left ear in 2005. I was diagnosed in early October (2021) with prostate cancer. After a series of reports, an MRI, bone scan, and CT scan,
Hidden
in
Advanced Prostate Cancer
3 years ago
My Dady's Prostate Cancer
Hi everyone, It is the first time that I write and I would like your opinions about my case: I am the daughter of a 75 years old man with metastatic prostate cancer. It all started in 2002 when he underwent a radical prostatectomy with a gleason 6 pt2bn0m0. Until 2019 he has been on intermittent hormonal
Hi everyone, It is the first time that I write and I would like your opinions about my case: I am the daughter of a 75 years old man with metastatic prostate cancer. It all started in 2002 when he underwent a radical prostatectomy with a gleason 6 pt2bn0m0. Until 2019 he has been on intermittent hormonal
Izas
in
Advanced Prostate Cancer
3 years ago
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