In addition to my Gleason 9 and PSA of 18, I have a metastasis on the right pubic bone, discovered by a nm bone scan on Thursday, and am going for chest, ab, pelvic scan today to see if that is the only other site.
I met with Dr Cheetham from Mt Sinai because I was waiting and waiting for appointments with both NYU and MSK and getting nowhere for a few days. She started me on Casodex and wants to give me a Lupron shot this week. She also wants me to meet with Dr Tewari and Bobby Liaw of MT Sinai. Additionally she will bring in Dr Shasha of MSK as an RO.
Does anyone know of Dr Cheetham, this will be very helpful. Also Tewari, and is having practitioners from different hospitals not a good plan
Now to the other Docs.
Additionally, yesterday, I finally got to see Dr Tenaja at NYU after weeks of waiting, he wants a pet scan.
While waiting I was also able to get an appt with 2 docs at MSK, Zelefsky on Dec 23 and as of yesterday an MO Dr Autio on Dec 21.
I was and am concerned about how much time is passing since discovery in early Nov so I continued to reach out. It seems they are all talking about LTRT and ADT, although prostatectomy has not been ruled out
Sorry for the rambling. I will try to answer all in time today but a lot going on, so thank you all in advance for your help and making this site a helpful place to be