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Experiences with
Mefenamic acid
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Rheumy telephone call appointment
I had a telephone appointment with my Rheumy yesterday, and basically it didn't go well!! The last time I spoke to her was November 2020, and I have not actually seen her for a very long time. Everything I am doing/not doing is wrong as it doesn't fit within her guidelines, which are reduce 1mg every
I had a telephone appointment with my Rheumy yesterday, and basically it didn't go well!! The last time I spoke to her was November 2020, and I have not actually seen her for a very long time. Everything I am doing/not doing is wrong as it doesn't fit within her guidelines, which are reduce 1mg every
Purplegloss
in
PMRGCAuk
3 years ago
Zinc carnosine
I would like to try zinc carnosine for my gastritis and heartburn but am worried it may give me restless legs. Does anyone have any experience of this. An extract reads Carnosine is a naturally-occurring compound made from the amino acids beta-alanine and histidine.
I would like to try zinc carnosine for my gastritis and heartburn but am worried it may give me restless legs. Does anyone have any experience of this. An extract reads Carnosine is a naturally-occurring compound made from the amino acids beta-alanine and histidine.
Mum007
in
Restless Legs Syndrome
3 years ago
Burning tongue or burning mouth
If any of you have burning tongue or mouth syndrome you might want to check this out as it helped me. Many years ago when I was doing some research for burning mouth syndrome I found R-Alpha Lipoic Acid and, at that time, R-ALA was only available in the USA (ALA is readily available but supposedly
If any of you have burning tongue or mouth syndrome you might want to check this out as it helped me. Many years ago when I was doing some research for burning mouth syndrome I found R-Alpha Lipoic Acid and, at that time, R-ALA was only available in the USA (ALA is readily available but supposedly
Moggy1234
in
Pernicious Anaemia Society
3 years ago
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Interesting looking supplement
Saw this one on a dental summit. Used to detox and other things. Has a lot of familiar ingredients! Has anyone used it? https://oradix.com/product/stemdetox-detoxification-anti-germ-and-weight-loss/ How to Use StemDetox™ Take 1 capsule 2X daily for the 1st 5 days, 3 capsules 2X daily for the next 5
Saw this one on a dental summit. Used to detox and other things. Has a lot of familiar ingredients! Has anyone used it? https://oradix.com/product/stemdetox-detoxification-anti-germ-and-weight-loss/ How to Use StemDetox™ Take 1 capsule 2X daily for the 1st 5 days, 3 capsules 2X daily for the next 5
LAJ12345
in
Cure Parkinson's
3 years ago
Omega 3
For love nor Money can I work this out. Which has higher omega 3 please. See pic attached.
For love nor Money can I work this out. Which has higher omega 3 please. See pic attached.
Uglow
in
PMRGCAuk
3 years ago
Zoledronic acid infusion - side effects sound horrendous. Any advice?
Hi folks, My osteoporosis consultant has recommended an intravenous infusion of Zolendronic acid, as I can't stomach the Alendronic acid tablets. My last DEXA scan was January 2019 - the numbers I can't remember but they were at a low level yet not low enough for treatment. Consultant says they are
Hi folks, My osteoporosis consultant has recommended an intravenous infusion of Zolendronic acid, as I can't stomach the Alendronic acid tablets. My last DEXA scan was January 2019 - the numbers I can't remember but they were at a low level yet not low enough for treatment. Consultant says they are
strawclutching
in
PMRGCAuk
3 years ago
Bisphosphonate success?
I am in desperate need of some positivity and success stories regarding the use of bisphophonates, particularly the once a week for 2-3 years regimen, and then hopefully a drug holiday. The word I see most often on this site is "terrified", as I also am, by other readers considering the prospect of
I am in desperate need of some positivity and success stories regarding the use of bisphophonates, particularly the once a week for 2-3 years regimen, and then hopefully a drug holiday. The word I see most often on this site is "terrified", as I also am, by other readers considering the prospect of
Loveballet
in
Osteoporosis Support
3 years ago
So many capsules, tablets, powders to swallow....
Hello everyone, I trust this post of mine finds you well. I wanted to ask you, how do you deal with all these things we have to swallow? More than once I found myself choking on a huge omega 3 capsule or a polyvitamin one. Maybe even a Mg capsule. And what about the constant need to drink, I don't even
Hello everyone, I trust this post of mine finds you well. I wanted to ask you, how do you deal with all these things we have to swallow? More than once I found myself choking on a huge omega 3 capsule or a polyvitamin one. Maybe even a Mg capsule. And what about the constant need to drink, I don't even
enjoy2013
in
Cure Parkinson's
3 years ago
My health history
I was diagnosed with Catastrophic Anti-Phospholipid Syndrome (CAPS) or Hugh's Syndrome in early 2009 which resulted in a partial loss of kidney function (it was stage 5 renal failure with less than 15% functionality but I have since recovered to about 60% ish total renal function). I was 17 years of
I was diagnosed with Catastrophic Anti-Phospholipid Syndrome (CAPS) or Hugh's Syndrome in early 2009 which resulted in a partial loss of kidney function (it was stage 5 renal failure with less than 15% functionality but I have since recovered to about 60% ish total renal function). I was 17 years of
Jake91
in
Hughes Syndrome APS Forum
3 years ago
What dosage of calcium supplement is recommended when on prednisolone?
I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised him that I wouldn't be taking up his recommendation of Alendronic Acid despite having a very small amount of osteoporosis in my lower lumber region. I advised him that I was taking Caltrate which has 600mg calcium/200 IU
I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised him that I wouldn't be taking up his recommendation of Alendronic Acid despite having a very small amount of osteoporosis in my lower lumber region. I advised him that I was taking Caltrate which has 600mg calcium/200 IU
Pr0jection
in
PMRGCAuk
3 years ago
Tips on improving spine and back
Hi I’m on another forum and stumble across this one which I’m so pleased. I had a major operation last May and pre op, I acquired sarcopenia, Kyphosis and Osteoporosis with multiple spinal fractures. I was prescribed Alendronic acid pre op but it made me feel very queasy so I stopped taking it as I
Hi I’m on another forum and stumble across this one which I’m so pleased. I had a major operation last May and pre op, I acquired sarcopenia, Kyphosis and Osteoporosis with multiple spinal fractures. I was prescribed Alendronic acid pre op but it made me feel very queasy so I stopped taking it as I
Flowergirl24
in
Bone Health and Osteoporosis UK
3 years ago
Which supplements?? Your top 5
Besides exercise, medication etc etc I have been taking a wide range of supplements. I have no idea which individuals are beneficial. Based on advice I take: - vitamin D, C, B complex (a few people have said I should focus non B1) - omega 3 - Turmeric - magnesium - calcium citrate - mannitol What do
Besides exercise, medication etc etc I have been taking a wide range of supplements. I have no idea which individuals are beneficial. Based on advice I take: - vitamin D, C, B complex (a few people have said I should focus non B1) - omega 3 - Turmeric - magnesium - calcium citrate - mannitol What do
blazyb
in
Cure Parkinson's
3 years ago
Menopause and problems
Hi there I’m new to this forum but been with HU many years on the running forum. I’m 4 years into menopause and I am struggling so much right now and wondered if anyone could offer some help or questions for me to ask in my upcoming appointment on Tuesday, I’ve been trying to cope on my own but I think
Hi there I’m new to this forum but been with HU many years on the running forum. I’m 4 years into menopause and I am struggling so much right now and wondered if anyone could offer some help or questions for me to ask in my upcoming appointment on Tuesday, I’ve been trying to cope on my own but I think
Realfoodieclub
in
Menopause and Perimenopause Support
3 years ago
Reversed my Hashimoto's with dietary and lifestyle changes
I was diagnosed about three years ago with Hashimoto's. All my thyroid hormone levels were normal but my anti-TPO antibodies were out of range. I had all the usual symptoms: fatigue, weight gain and then the inability to lose weight, hair loss, dry skin, you name it. I also developed severe cold urticaria
I was diagnosed about three years ago with Hashimoto's. All my thyroid hormone levels were normal but my anti-TPO antibodies were out of range. I had all the usual symptoms: fatigue, weight gain and then the inability to lose weight, hair loss, dry skin, you name it. I also developed severe cold urticaria
Hidden
in
Thyroid UK
3 years ago
Do any supplements work?
Do any supplements work? I've read through many, many posts on this site claiming that particular supplements, or combinations of supplements, slow or stop or reverse the progression of Parkinson's Disease. Off the top of my head, I've seen posts on the following: - Vitamin B1 - CoQ 10 - Ceylon
Do any supplements work? I've read through many, many posts on this site claiming that particular supplements, or combinations of supplements, slow or stop or reverse the progression of Parkinson's Disease. Off the top of my head, I've seen posts on the following: - Vitamin B1 - CoQ 10 - Ceylon
Alock2020
in
Cure Parkinson's
3 years ago
Advise regarding pain needed
A doctor at 111 prescribed codeine and
mefenamic
acid
which eases the pain slightly. Can endometriosis cause fluctuating pain? thank you in advance x x
A doctor at 111 prescribed codeine and
mefenamic
acid
which eases the pain slightly. Can endometriosis cause fluctuating pain? thank you in advance x x
HL1988
in
Endometriosis UK
3 years ago
Ingredients to prevent or slow progression of PD - Knox Van Dyke - Dept of Biochemistry and Molecular Pharmacology, West Virginia University
I give Doctor Knox Van Dyke credit. He put his name on it and did not spare any details. https://asclepiusopen.com/clinical-research-in-immunology/volume-1-issue-1/4.php Ingredients to prevent or slow progression of PD (2018): - Inosine - 4 g/day in divided doses inosine or sustained release inosine
I give Doctor Knox Van Dyke credit. He put his name on it and did not spare any details. https://asclepiusopen.com/clinical-research-in-immunology/volume-1-issue-1/4.php Ingredients to prevent or slow progression of PD (2018): - Inosine - 4 g/day in divided doses inosine or sustained release inosine
Bolt_Upright
in
Cure Parkinson's
3 years ago
Fatigue--Side effects of Ursodiol?
Hi I am new to this forum and grateful that it exists. I have just been diagnosed with PBC (early stage) and was put on Ursodiol. I am 62 and otherwise really healthy and fit. Yet at this point. I am really struggling with fatigue (and occasional dizzy spells) and wondering if anybody else experienced
Hi I am new to this forum and grateful that it exists. I have just been diagnosed with PBC (early stage) and was put on Ursodiol. I am 62 and otherwise really healthy and fit. Yet at this point. I am really struggling with fatigue (and occasional dizzy spells) and wondering if anybody else experienced
Knoesel
in
PBCers Organization
3 years ago
Please can you look at my results and advise?
I recently asked my GP for a full Thyroid test, as I am so tired all of the time. I booked a test for 7.30am, and missed my dose of Thyroxine the night before. TSH 2.6 (0.27-4.20) FT4 16.3 (12.0-22.0) FT3 4.2 (3.1-6.8) Peroxidase Antibodies 5kIU/L (<34)
I recently asked my GP for a full Thyroid test, as I am so tired all of the time. I booked a test for 7.30am, and missed my dose of Thyroxine the night before. TSH 2.6 (0.27-4.20) FT4 16.3 (12.0-22.0) FT3 4.2 (3.1-6.8) Peroxidase Antibodies 5kIU/L (<34)
Juliana88
in
Thyroid UK
3 years ago
A small molecule induces readthrough of cystic fibrosis CFTR nonsense mutations
An experimental drug reported in Nature Communications suggests that a “path is clearly achievable” to treat currently untreatable cases of cystic fibrosis disease caused by nonsense mutations. This includes about 11 percent of cystic fibrosis patients, as well as patients with other genetic diseases
An experimental drug reported in Nature Communications suggests that a “path is clearly achievable” to treat currently untreatable cases of cystic fibrosis disease caused by nonsense mutations. This includes about 11 percent of cystic fibrosis patients, as well as patients with other genetic diseases
2greys
in
Lung Conditions Community Forum
3 years ago
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