Having chest pain

[Jadaboo4]

Hello everyone. Still going through the phase of being diagnosed even though I do have a current diagnosis of mctd. But my Ssa Ro52 was positive and Ana 1:640 nucleolar and symptoms lean more toward Sjögren and myositis. I will be going to a rheumatology center soon. But I wanted to know has anyone ever been told that there thymus gland(gland that has a lot to do with immune system) is enlarged? I was having chest pain and they did a Ct and it showed it was enlarged but because it didn’t grow they were unconcerned.

[Foxy619]

Hi JadabooI know you posted 6 months ago but your post resignatex with me I'm positive for RO52 and told its myositis my Nurologist is doing a biopsy this month but he thinks it's polymyositis.

The last few weeks iv had a dry cough this week the cough has been more regular I'm thinking is it the polym as I know the RO52 is connected to ILD nothing I can do but try and be the best I can

Take care

Carolyn

[Jadaboo4 in reply to Foxy619]

Hi!! I hope you feel better soon I still am in the diagnosis phase. I now have been diagnosed with UCTD and Seronegative RA after further testing. I still have chest pain on exertion of course I have to have more testing to pinpoint where it’s coming from. I know one day we will be okay but it’s taking some time

[Foxy619 in reply to Jadaboo4]

Try and take it easy which I know is not always easy and it is all a bit frightening try and keep safe I'm actually thinking of wearing a covid mask when I go to hospital I just cannot afford to get anything

Take care

Carolyn

[Jadaboo4 in reply to Foxy619]

Yes it is not easy at all. I wear a mask everywhere I go because it’s just too risky. You take care too and keep me posted

Gloria

[Doralora]

I just saw your comment and realised there were a lot of similarities to me. I was diagnosed with uctd and I have possible seronegative RA. I test positive for antibodies linked to Myositis and scleroderma luckily in a mild form.

What struck me was the chest pain on exertion. I get it and it’s disabling. I believe it’s all part of the wider issues with associated immune problems. My issue was found to be acid stomach and silent reflux. This was found to be causing gastritis, duodenitis, schatskis ring and inflammation of my vocal chords. The only thing that is helping is a histamine reduced diet, anti histamines and H2 inhibitors. It isn’t fun but the relief from the symptoms was a revelation. I have been through lots of specialists over the years trying to figure it out and you hope each time they can help you but most of it was done under my own research and connecting the dots between the symptoms they diagnosed. I am now pending on whether it adds up to CREST. Which is getting more likely. My advice (if you haven’t already got there) is to ask to see a gastroenterologist or an ENT specialist to rule out any esophageal problems.

I thought this might be of help if you’re struggling as it took me a couple of years after it started to figure this out. Obviously we are all individuals so for you things might be different but I wish you luck on your journey.

Dora