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Researchers examine the metabolic effects of an oral blood cancer drug ~ RUXOLITINIB (Jakafi)
Post by MPN-MATE Admin » Wed Nov 13, 2019 11:14 am NOV. 12, 2019
Researchers examine the metabolic effects of an oral blood cancer drug...
by The Mount Sinai Hospital Hi guys... This report from the Mount Sinai Hospital is yet to be properly validated. However, many of us may have already read
Post by MPN-MATE Admin » Wed Nov 13, 2019 11:14 am NOV. 12, 2019
Researchers examine the metabolic effects of an oral blood cancer drug...
by The Mount Sinai Hospital Hi guys... This report from the Mount Sinai Hospital is yet to be properly validated. However, many of us may have already read
socrates_8
in
MPN Voice
5 years ago
CALQUENCE gets FDA approval for treating CLL
The latest approval for Calquence (acalabrutinib), a Bruton tyrosine kinase (BTK) inhibitor, was granted under the FDA’s Real-Time Oncology Review and newly established Project Orbis programs. Calquence binds covalently to BTK, thereby inhibiting its activity. In B-cells, BTK signaling results in activation
The latest approval for Calquence (acalabrutinib), a Bruton tyrosine kinase (BTK) inhibitor, was granted under the FDA’s Real-Time Oncology Review and newly established Project Orbis programs. Calquence binds covalently to BTK, thereby inhibiting its activity. In B-cells, BTK signaling results in activation
Myrddin
in
CLL Support
5 years ago
Bone marrow transplant number 2
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
Seifert_09
in
AMN EASIER
5 years ago
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Help with a mystery needed
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
CW12
in
Pernicious Anaemia Society
5 years ago
A cautionary tale
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
Nitrobunny
in
PMRGCAuk
5 years ago
Headache and GCA
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
LilyBark
in
PMRGCAuk
5 years ago
Clinical Utility of Chromosomal Microarray in Richter's Transformation
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Jm954
Administrator
in
CLL Support
5 years ago
A conundrum for use v. non-use of specific amino acids in muscle atrophy and immune support for CLL patients
CLL and cancer patients, particularly those over 70, are often concerned about muscle wasting or muscle atrophy. Sarcopenia is characterized as the progressive loss of muscle mass that is typically associated with aging. These patients are frequently advised to increase their intake of dietary proteins
CLL and cancer patients, particularly those over 70, are often concerned about muscle wasting or muscle atrophy. Sarcopenia is characterized as the progressive loss of muscle mass that is typically associated with aging. These patients are frequently advised to increase their intake of dietary proteins
Higsby
in
CLL Support
5 years ago
Extensive body heat.
Anyone with Myelofibrosis on Jakafi experiencing occasional internal body heat like if you are burning inside?
Anyone with Myelofibrosis on Jakafi experiencing occasional internal body heat like if you are burning inside?
Boriqua
in
MPN Voice
5 years ago
Molybdenum
Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA and homecysteine. (highest MMA he has on record) The bio-chemist I am working with (lifelong research with B12 and B vitamins in general) insists that I need to get Molybdenum on board before effectively supplementing with
Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA and homecysteine. (highest MMA he has on record) The bio-chemist I am working with (lifelong research with B12 and B vitamins in general) insists that I need to get Molybdenum on board before effectively supplementing with
EiCa
in
Pernicious Anaemia Society
5 years ago
Take both Nplate and Rituximab at the same time
I have ITP and Anticardiolipin Antibody. I took my first injection of Rituximab two days ago. Even my Platelet count fell to 1000 after injection but doctors still want to keep me on treatment with rituximab. And also they want to start the Nplate for me today . I've asked doctors if it's a good idea
I have ITP and Anticardiolipin Antibody. I took my first injection of Rituximab two days ago. Even my Platelet count fell to 1000 after injection but doctors still want to keep me on treatment with rituximab. And also they want to start the Nplate for me today . I've asked doctors if it's a good idea
farasad2001
in
ITP Support Association
5 years ago
Gp review after b12 stopped
Hello 👋 I need some advice please. My gp practice carried out a generic review of b12 patients back in July and they decided I could no longer have b12 injections I was started on them in 2009 as I had neuro symptoms and chronic fatigue and after repeated visits to my gp I was finally advised my b12
Hello 👋 I need some advice please. My gp practice carried out a generic review of b12 patients back in July and they decided I could no longer have b12 injections I was started on them in 2009 as I had neuro symptoms and chronic fatigue and after repeated visits to my gp I was finally advised my b12
Twinklesthecat
in
Pernicious Anaemia Society
5 years ago
Don’t ever give up hope of getting answers to why your so ill, it just needs to be dealt with by the right person.
Finally saw a Dr who listened to me and put me in the right direction and I was offered an Referal with an immunologist after much I’ll health and many symptoms. Why wasn’t it picked up on sooner and why does it take so long, no wonder people give up all hope of ever being believed and treated. Was very
Finally saw a Dr who listened to me and put me in the right direction and I was offered an Referal with an immunologist after much I’ll health and many symptoms. Why wasn’t it picked up on sooner and why does it take so long, no wonder people give up all hope of ever being believed and treated. Was very
Hidden
in
LUPUS UK
5 years ago
I would like to hear from people needing regular blood transfusions
Following from my recent post - "Fludarabine: rare side effect of destroying ability for red blood cell production in myself".. I am now going to need transfusions of packed red cells probably monthly. This started 5 months ago. I've been having 4 units (that is approx 1 litre total) (I'm in Australia
Following from my recent post - "Fludarabine: rare side effect of destroying ability for red blood cell production in myself".. I am now going to need transfusions of packed red cells probably monthly. This started 5 months ago. I've been having 4 units (that is approx 1 litre total) (I'm in Australia
Jotame
in
CLL Support
5 years ago
Not what it turned out to be
Thank you all for your heartfelt messages and advice. When I joined this group a couple weeks ago, I thought my diagnosis was going to be completely different than it turned out to be on 10/06. It turned out to be CML. I'll probably remain in this group as it remains to be very helpful when dealing with
Thank you all for your heartfelt messages and advice. When I joined this group a couple weeks ago, I thought my diagnosis was going to be completely different than it turned out to be on 10/06. It turned out to be CML. I'll probably remain in this group as it remains to be very helpful when dealing with
mdcupp6201
in
MPN Voice
5 years ago
Cancer Fatigue and Getting Through the Holidays
The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for Patients Families and Caregivers. - Click this link to register: https://pburkhard.wufoo.com/forms/qrfew60160p1a4/ or http://bit.ly/DecLnL. Cancer Fatigue and Getting Through the Holidays When: Wednesday
The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for Patients Families and Caregivers. - Click this link to register: https://pburkhard.wufoo.com/forms/qrfew60160p1a4/ or http://bit.ly/DecLnL. Cancer Fatigue and Getting Through the Holidays When: Wednesday
lankisterguy
Volunteer
in
CLL Support
5 years ago
Fludarabine: rare side effect of destroying ability for red blood cell production in myself. But also unwell with fevers.
I've had a really difficult result from my bone marrow biopsy today. Four months ago I posted the effect of human Parvovirus on myself - in an immune-compromised person this virus can have the effect of inhibiting production of blood cells in bone marrow. Regular packed red cell transfusions have
I've had a really difficult result from my bone marrow biopsy today. Four months ago I posted the effect of human Parvovirus on myself - in an immune-compromised person this virus can have the effect of inhibiting production of blood cells in bone marrow. Regular packed red cell transfusions have
Jotame
in
CLL Support
5 years ago
Polycythemia Vera with myelofibrosis
High risk patient completed 5 years on Hydrea currently on Jackavi. What is the prognosis?
High risk patient completed 5 years on Hydrea currently on Jackavi. What is the prognosis?
IK5555
in
MPN Voice
5 years ago
CLL Specialist
After 4 years treatments. Going from Ofatumumba to imbruvica overnight. With no testing other than CBC ,and whatever goes with it. CT scans every 4 months. Do we need a CLL Specialist? Hubby had imbruvica for short time. Retuxium before that. Is on Itrocanizol for Histoplasmosis of the brain. Therefore
After 4 years treatments. Going from Ofatumumba to imbruvica overnight. With no testing other than CBC ,and whatever goes with it. CT scans every 4 months. Do we need a CLL Specialist? Hubby had imbruvica for short time. Retuxium before that. Is on Itrocanizol for Histoplasmosis of the brain. Therefore
Hidden
in
CLL Support
5 years ago
Putting things in perspective
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
shueswim
in
Advanced Prostate Cancer
5 years ago
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