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Mantle cell lymphoma (MCL)
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PROBLEMS WITH SUPPLEMENTS
Hi all, I'm having problems with my supplements - I bought TDN Nutrition D3+K2 vitamin complex (3000iu Vit D3 + 100 ug Vit K2-MK7). I took these for a few days but noticed my varicose vein running from my inner calf right up to my groin, which is usually innocuous unless I've done a lot of walking/standing
Hi all, I'm having problems with my supplements - I bought TDN Nutrition D3+K2 vitamin complex (3000iu Vit D3 + 100 ug Vit K2-MK7). I took these for a few days but noticed my varicose vein running from my inner calf right up to my groin, which is usually innocuous unless I've done a lot of walking/standing
Gingernut44
in
Thyroid UK
5 years ago
Living Beyond Lymphoma: Mindfulness Teleconference Wednesday, July 31, 2019 1:30 PM -- 2:30 PM ET
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
lankisterguy
Volunteer
in
CLL Support
5 years ago
Webinar: The Path to Personalized Medicine in Lymphoma and CLL Thursday, June 27, 2019 4:00 PM - 5:00 PM EDT by Lymphoma Canada
Webinar: The Path to Personalized Medicine in Lymphoma and CLL https://mailchi.mp/lymphoma/cll-webinar-national-guidelines-for-front-line-treatment-of-cll-in-canada-2556069?e=7b399e8498 REGISTER TODAY https://register.gotowebinar.com/register/592054424846575116 DATE: Thursday, June 27, 2019 TIME:
Webinar: The Path to Personalized Medicine in Lymphoma and CLL https://mailchi.mp/lymphoma/cll-webinar-national-guidelines-for-front-line-treatment-of-cll-in-canada-2556069?e=7b399e8498 REGISTER TODAY https://register.gotowebinar.com/register/592054424846575116 DATE: Thursday, June 27, 2019 TIME:
lankisterguy
Volunteer
in
CLL Support
5 years ago
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Any Hope of Resolving DH Symptoms?
5 years since diagnosed with dermatitis herpetiformis, and have been on Dapsone and various topical ointments without my improvement in the blistering and itching at major joints and my butt. Have been careful about avoiding gluten in all food items. Has anyone had a similar situation where you have
5 years since diagnosed with dermatitis herpetiformis, and have been on Dapsone and various topical ointments without my improvement in the blistering and itching at major joints and my butt. Have been careful about avoiding gluten in all food items. Has anyone had a similar situation where you have
dwaage1
in
Gluten Free Guerrillas
5 years ago
CLL, Bone Marrow Transplant and Hodgkin’s Lymphoma
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
leopardo
in
CLL Support
5 years ago
Bendamustine and Rituximab and Low Lymphocyte Count
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
profrich
in
CLL Support
5 years ago
Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
socrates_8
in
MPN Voice
5 years ago
Stem Cells!
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
christiev
in
MPN Voice
5 years ago
Skin lesion on face. Should he irradiate it
I have friend with skin lesion on his face who has a follicular B-cell lymphoma. On skin histology it is dense infiltrate of small lymphocytes. a mixed population of half T cells and half B cells. On FISH bcl6 is negative and IGH/bcl2 is negative . They want to irradiate the lesion. The lesion is the
I have friend with skin lesion on his face who has a follicular B-cell lymphoma. On skin histology it is dense infiltrate of small lymphocytes. a mixed population of half T cells and half B cells. On FISH bcl6 is negative and IGH/bcl2 is negative . They want to irradiate the lesion. The lesion is the
LovecuresCLL
in
CLL Support
5 years ago
We eat what we are – let’s detoxify the word ‘chemical’
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
AussieNeil
Partner
in
CLL Support
5 years ago
UK CLL Clinical Trial Portfolio updated May 2019
The Portfolio of clinical trials available in the UK has been updated and is available on the main site. Thanks to Garry for helping to prepare this for us https://www.cllsupport.org.uk/article/uk-cll-clinical-trials-portfolio-may-2019
The Portfolio of clinical trials available in the UK has been updated and is available on the main site. Thanks to Garry for helping to prepare this for us https://www.cllsupport.org.uk/article/uk-cll-clinical-trials-portfolio-may-2019
Myrddin
in
CLL Support
5 years ago
Dominant-negative PD1-armored CART cells induce remission in refractory diffuse large B-cell lymphoma (DLBCL) patients
Background: The chimeric antigen receptor (CAR) T cell treatment has been demonstrated as an effective therapy to relapse/refractory B cell malignancy. However, tumor microenvironment influences and affects CAR T treatment. For example, programmed death ligand 1/2 (PDL1/2) may inhibit the CAR T cells
Background: The chimeric antigen receptor (CAR) T cell treatment has been demonstrated as an effective therapy to relapse/refractory B cell malignancy. However, tumor microenvironment influences and affects CAR T treatment. For example, programmed death ligand 1/2 (PDL1/2) may inhibit the CAR T cells
wmay13241
in
CLL Support
5 years ago
Creatinine goes up after bendamustine and rituximab infusion
I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. prednisone, and benadryl. My creatinine went from 0.96 on Thursday to 1.11 before drug infusion on Friday. I wonder if the drugs raised my levels. Has anyone else experienced something like this?
I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. prednisone, and benadryl. My creatinine went from 0.96 on Thursday to 1.11 before drug infusion on Friday. I wonder if the drugs raised my levels. Has anyone else experienced something like this?
profrich
in
CLL Support
5 years ago
Starting Chemo tomorrow
I have held off for 9 years now and tomorrow is the DDAY for me. NHL CD-20. Had a scan yesterday after the last one 18 months ago. The nodes in the neck have enlarged and my throat is extremely contradicted. I am going the BR and chemo route. Along with issues with my voice I have constant nasal congestion
I have held off for 9 years now and tomorrow is the DDAY for me. NHL CD-20. Had a scan yesterday after the last one 18 months ago. The nodes in the neck have enlarged and my throat is extremely contradicted. I am going the BR and chemo route. Along with issues with my voice I have constant nasal congestion
DDay2012
in
CLL Support
5 years ago
Treatment in 10 days
Howdy I am looking forward to soaking the up information available here from all. They found my CLL on routine check up 8 years ago-have been doing wait and watch until now Hemo 11.1 WBC 310 will begin Ibrutinib in about 10 days as well as Allopurinol daily to flush out kidneys. I am an electrical
Howdy I am looking forward to soaking the up information available here from all. They found my CLL on routine check up 8 years ago-have been doing wait and watch until now Hemo 11.1 WBC 310 will begin Ibrutinib in about 10 days as well as Allopurinol daily to flush out kidneys. I am an electrical
wilhoitaz
in
CLL Support
5 years ago
Now Hodgkin Lymphoma
Been on a ibrutinib now for almost 4 1/2 years because of the CLL. Has done wonders to keep my blood scores in check. Almost normal. About 10 days ago I was diagnosed however with Hodgekin Lymphoma. Stage 3, with lymph node/tumours now on both sides of diaphragm. What is surprise! Stage 3. Doctor says
Been on a ibrutinib now for almost 4 1/2 years because of the CLL. Has done wonders to keep my blood scores in check. Almost normal. About 10 days ago I was diagnosed however with Hodgekin Lymphoma. Stage 3, with lymph node/tumours now on both sides of diaphragm. What is surprise! Stage 3. Doctor says
leopardo
in
CLL Support
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
Newbie here from Oz.
I have a partner I’ve been with for three years and he was diagnosed just after we met, with
mantle
cell
lymphoma
. He’s been in and out of remission about 5 times. Each time they tell him it’s a miracle he’s still alive.
I have a partner I’ve been with for three years and he was diagnosed just after we met, with
mantle
cell
lymphoma
. He’s been in and out of remission about 5 times. Each time they tell him it’s a miracle he’s still alive.
Timtam56
in
SHARE Metastatic Breast Cancer
5 years ago
Solamin - extract for sickle cell anaemia
Clinical Evaluation of SOLAMIN, was headed by Prof. H.A.B Coker, at Natural Medicine and Molecular Pharmaco-Biotechnology Laboratories – College of Medicine, University of Lagos, Nigeria, at the instance of former Minister of Health, Prof. Eyitayo Lambo, and released at Nigerian Institute of Medical
Clinical Evaluation of SOLAMIN, was headed by Prof. H.A.B Coker, at Natural Medicine and Molecular Pharmaco-Biotechnology Laboratories – College of Medicine, University of Lagos, Nigeria, at the instance of former Minister of Health, Prof. Eyitayo Lambo, and released at Nigerian Institute of Medical
Bman1
in
Sickle Cell Society
5 years ago
Newbie ...
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
SomersetJo
in
British Heart Foundation
5 years ago
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