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Mantle cell lymphoma (MCL)
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Lymphoma Canada’s 3rd Annual National Conference for lymphoma patients Saturday, September 21, 2019 8:00am - 5:00pm Hilton Toronto
Register today for Lymphoma Canada’s 3rd Annual National Conference for lymphoma patients, caregivers, and healthcare professionals. https://mailchi.mp/lymphoma/5xojdggiv0-2556149?e=7b399e8498 Saturday, September 21, 2019 8:00am - 5:00pm Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2
Register today for Lymphoma Canada’s 3rd Annual National Conference for lymphoma patients, caregivers, and healthcare professionals. https://mailchi.mp/lymphoma/5xojdggiv0-2556149?e=7b399e8498 Saturday, September 21, 2019 8:00am - 5:00pm Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2
lankisterguy
Volunteer
in
CLL Support
5 years ago
Stem cell transplant for Myelofibrosis
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
Dodders
in
MPN Voice
5 years ago
Done with Lutetium
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
Beauxman
in
Advanced Prostate Cancer
5 years ago
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CT scan results after 3 cycles BR
Hello all, My dad (12 trisomy and unmutated) has finished his 3rd BR cycle. The CT scan shows a reduction of the lymph nodes by 50%-60% (the biggest lymph node was 15 cm in his belly). The hematologist was happy with the results. What do you guys think about the results? We have 3 rounds left, is complete
Hello all, My dad (12 trisomy and unmutated) has finished his 3rd BR cycle. The CT scan shows a reduction of the lymph nodes by 50%-60% (the biggest lymph node was 15 cm in his belly). The hematologist was happy with the results. What do you guys think about the results? We have 3 rounds left, is complete
TOFK
in
CLL Support
5 years ago
Mother has Giant Cell Arteritis - what does the future hold?
Having just been through a week of hospital after my mother has lost most her sight in one eye and is being treated for Giant Cell Arteritis - can anyone who has been through this tell me how the years play out after diagnosis? At the moment she’s terrified. Thank you zxxx
Having just been through a week of hospital after my mother has lost most her sight in one eye and is being treated for Giant Cell Arteritis - can anyone who has been through this tell me how the years play out after diagnosis? At the moment she’s terrified. Thank you zxxx
TheSmartestGiant70
in
PMRGCAuk
5 years ago
Marginal zone lymphoma Facebook support group
https://www.facebook.com/groups/1734968436810226/?ref=share Hi, Hope you don’t mind my sharing a link to the marginal zone lymphoma Facebook site for the members on this site who have been diagnosed with a combo of CLL and mzl or mzl. This is a rarer lymphoma with much less research done so it is
https://www.facebook.com/groups/1734968436810226/?ref=share Hi, Hope you don’t mind my sharing a link to the marginal zone lymphoma Facebook site for the members on this site who have been diagnosed with a combo of CLL and mzl or mzl. This is a rarer lymphoma with much less research done so it is
Judyanne
in
CLL Support
5 years ago
ATTENTION LYMPHOMA PATIENTS, CAREGIVERS, AND HEALTHCARE PROFESSIONALS - NATIONAL LYMPHOMA PATIENT CONFERENCE
Lymphoma Canada is pleased to be hosting its 3rd Annual National Conference for patients, caregivers, family members, friends and healthcare professionals. Saturday, September 21, 2019 Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2 Patient and Caregiver Rate: $35 Breakfast, lunch and
Lymphoma Canada is pleased to be hosting its 3rd Annual National Conference for patients, caregivers, family members, friends and healthcare professionals. Saturday, September 21, 2019 Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2 Patient and Caregiver Rate: $35 Breakfast, lunch and
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
5 years ago
Please watch Video (Giant Cell and PMR and Tocilizumab)
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
lemarie1
in
PMRGCAuk
5 years ago
18 month Follow up results with Ibrutinib/Venetoclax clinical trial
I have been for 18 months in the clinical trial for fixed duration of the phase 2 study of the combination of Ibrutinib plus Venetoclax for treatment naive patients. I became MRD negative after 8 months on the drugs and just got the results of my 3rd bone marrow biopsy: I am still MRD negative!!!
I have been for 18 months in the clinical trial for fixed duration of the phase 2 study of the combination of Ibrutinib plus Venetoclax for treatment naive patients. I became MRD negative after 8 months on the drugs and just got the results of my 3rd bone marrow biopsy: I am still MRD negative!!!
lamboman
in
CLL Support
5 years ago
CT Scan too close to BR Chemo date
So my Oncologist's office dropped the ball where I was to have a CT scan before my 4th BR chemo treatment. 3 weeks after the last treatment and just before the next BR treatment. So as it is the CT is scheduled for 3 days after the BR treatments. My question is whether the contrast material will be affected
So my Oncologist's office dropped the ball where I was to have a CT scan before my 4th BR chemo treatment. 3 weeks after the last treatment and just before the next BR treatment. So as it is the CT is scheduled for 3 days after the BR treatments. My question is whether the contrast material will be affected
DDay2012
in
Non Hodgkin's Lymphoma Friends
5 years ago
Relapsed after 40 months in remission
Several days ago a CT/PET detected lymphoma progression wife (72) who was in remission since her CAR-T infusion in March 2016. Monday she will get a lymph node biopsy to see whether her follicular lymphoma has transformed into something else. Any thoughts on the next treatment?
Several days ago a CT/PET detected lymphoma progression wife (72) who was in remission since her CAR-T infusion in March 2016. Monday she will get a lymph node biopsy to see whether her follicular lymphoma has transformed into something else. Any thoughts on the next treatment?
wmay13241
in
CLL Support
5 years ago
Colonoscopy Whilst on Steroids
Hello Again! I am wondering if you could let me have your opinions before I speak to the endoscopy unit. I am having a colonoscopy later this month. I know how to live! 😊 My question is, on the day prior to the procedure, I am allowed a light breakfast - which is when I would normally take my 3mg
Hello Again! I am wondering if you could let me have your opinions before I speak to the endoscopy unit. I am having a colonoscopy later this month. I know how to live! 😊 My question is, on the day prior to the procedure, I am allowed a light breakfast - which is when I would normally take my 3mg
Songbird69
in
PMRGCAuk
5 years ago
Cord blood for leukemia/ lymphoma?
Not sure yet what my b lymphoma diagnosis is. But a timely question has arisen in my family. Both of my daughters are pregnant and due late November. One asked if I wanted her to harvest and store her cord blood for possible use for my illness. Apparently she needs to decide by early October. Does anyone
Not sure yet what my b lymphoma diagnosis is. But a timely question has arisen in my family. Both of my daughters are pregnant and due late November. One asked if I wanted her to harvest and store her cord blood for possible use for my illness. Apparently she needs to decide by early October. Does anyone
Sunfishjoy
in
CLL Support
5 years ago
Thank you all!!!
Hello, a short summary.. After FCR in 2015 and BR in 2017, our doctor suggested my husband to start Ibrutinib since his lymph nodes in abdomen are almost 7-8cm, wbc above 25, platelets under 100 and he has lost 5-6kg in the last month. I want to thank you all because I've read so many posts about Ibrutinib
Hello, a short summary.. After FCR in 2015 and BR in 2017, our doctor suggested my husband to start Ibrutinib since his lymph nodes in abdomen are almost 7-8cm, wbc above 25, platelets under 100 and he has lost 5-6kg in the last month. I want to thank you all because I've read so many posts about Ibrutinib
aylinozel
in
CLL Support
5 years ago
What is CAR-T therapy? An expert explains in simple terms
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Jm954
Administrator
in
CLL Support
5 years ago
Puzzled
Just back from b12 injection and got my blood results printed off. Ferritin Oct. 2018 61 ng/ml Jan. 2019 39 April 2019 31. I've been taking g iron since the first drop in January. Alternatively ferrous sulfate 200mcg solgar gentle iron and spartone. Also my multivitamin has 14mg I'm not taking multivit
Just back from b12 injection and got my blood results printed off. Ferritin Oct. 2018 61 ng/ml Jan. 2019 39 April 2019 31. I've been taking g iron since the first drop in January. Alternatively ferrous sulfate 200mcg solgar gentle iron and spartone. Also my multivitamin has 14mg I'm not taking multivit
Nackapan
in
Pernicious Anaemia Society
5 years ago
Reducing tocilizumab injections
I was told to try to take my tocilizumab injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections. I am feeling increasingly ill, sweating, extreme tiredness - signs the GCA is back
I was told to try to take my tocilizumab injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections. I am feeling increasingly ill, sweating, extreme tiredness - signs the GCA is back
christine2715
in
PMRGCAuk
5 years ago
cll/sll or MZL? & Rituxan
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
Sunfishjoy
in
CLL Support
5 years ago
Stem cell webinar by MJF and 1 unanswered question
Just finished listening to the MJF stem cell seminar. It was not particularly educational neither it gave any reason for optimism. Well, judge for yourself: slides are available on MJF site. I asked the panel a question but didn't get an answer. The question was: " It was reported that people who
Just finished listening to the MJF stem cell seminar. It was not particularly educational neither it gave any reason for optimism. Well, judge for yourself: slides are available on MJF site. I asked the panel a question but didn't get an answer. The question was: " It was reported that people who
felixned
in
Cure Parkinson's
5 years ago
Stem Cell Transplant That didn’t put cancer in remission
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
seaturtle2
in
Myeloma America Support
5 years ago
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