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Mantle cell lymphoma (MCL)
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'Wednesday Word"
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Activating lipid nanoparticles can streamline the production of CAR T-cells for cancer immunotherapy
A bio- engineering breakthrough is reported here https://phys.org/news/2024-03-method-car-cells-lipid-nanoparticles.html and the article includes a link to the open access research paper. Sorry, that's all folks. This is a phone and I'm on holiday. Italy shouldn't be this wet. Ciao.
A bio- engineering breakthrough is reported here https://phys.org/news/2024-03-method-car-cells-lipid-nanoparticles.html and the article includes a link to the open access research paper. Sorry, that's all folks. This is a phone and I'm on holiday. Italy shouldn't be this wet. Ciao.
bennevisplace
in
CLL Support
5 months ago
Palacelover
Hello HealthUnlocked family:Is anyone out there aware of the medication named Brukinsa, which contains the ingredient zanubrutinib; apparently it is a medication that can control the btk protein that is generated by the kind of Lymphoma that I have, which is WM. If anyone can give me any insights, such
Hello HealthUnlocked family:Is anyone out there aware of the medication named Brukinsa, which contains the ingredient zanubrutinib; apparently it is a medication that can control the btk protein that is generated by the kind of Lymphoma that I have, which is WM. If anyone can give me any insights, such
Palacelover
in
Non Hodgkin's Lymphoma Friends
5 months ago
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Richter’s Anxiety
Good morning. I have a friend in his 50s with aggressive unmutated IGHV. I am in my early 50s and am Trisomy 12 unmutated and recently diagnosed. Both of us have been told that we are at increased risk for Richter’s. Figuring out what this means is tough. There are top researchers who say that 5 to
Good morning. I have a friend in his 50s with aggressive unmutated IGHV. I am in my early 50s and am Trisomy 12 unmutated and recently diagnosed. Both of us have been told that we are at increased risk for Richter’s. Figuring out what this means is tough. There are top researchers who say that 5 to
Hidden
in
CLL Support
5 months ago
first line treatment with bendamustin and rithoximab
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
09123836306
in
CLL Support
5 months ago
Palacelover
Diagnosed in July 2022 after a PET Scan and a bone marrow biopsy. Placed on a watch and wait regime. Have been experiencing many colds and chest infections over the last three months. I am now waiting on a decision from the consultant regarding a treatment regime.
Diagnosed in July 2022 after a PET Scan and a bone marrow biopsy. Placed on a watch and wait regime. Have been experiencing many colds and chest infections over the last three months. I am now waiting on a decision from the consultant regarding a treatment regime.
Palacelover
in
Non Hodgkin's Lymphoma Friends
5 months ago
One result from bone marrow aspiration:
Update: After 9 months on MSK trial 20-044, I am uMRD in blood, CT Scans show all nodes are shrunk and my Dr. is "very very please." The first report from yesterday's BMB is below. "Few B cells seen," is this something to be concerned about? The report was just posted and my Dr. is on vacation next week
Update: After 9 months on MSK trial 20-044, I am uMRD in blood, CT Scans show all nodes are shrunk and my Dr. is "very very please." The first report from yesterday's BMB is below. "Few B cells seen," is this something to be concerned about? The report was just posted and my Dr. is on vacation next week
SurfSurf
in
CLL Support
5 months ago
insurance issue
hi guys, My mother was diagnosed with her2+ve braa we ya cancer stage 4. doctor recommended the below medications : Paclitaxel + cyclophosphamide + phesgo+ zolodronic acid . I have corporate insurance in new India insurance with mediassist. These people are not approving phesgo which is targeted
hi guys, My mother was diagnosed with her2+ve braa we ya cancer stage 4. doctor recommended the below medications : Paclitaxel + cyclophosphamide + phesgo+ zolodronic acid . I have corporate insurance in new India insurance with mediassist. These people are not approving phesgo which is targeted
Srikalakm
in
Breast Cancer India
6 months ago
Beaconthecat
Diagnosed last April thru a lymph node biopsy....results SLL...currently on W&W...a few more nodes have emerged but feel good, no symptoms, exercise hard and just living life...
Diagnosed last April thru a lymph node biopsy....results SLL...currently on W&W...a few more nodes have emerged but feel good, no symptoms, exercise hard and just living life...
Beaconthecat
in
CLL Support
6 months ago
The 2024 Global Patient Survey invites CLL patients and caregivers to share their experiences
Every two years, the Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to lymphoma patients, including those with CLL, undertakes a
Global Patient Survey
. The 2024 survey gives you
an opportunity to share your experience with CLL
Every two years, the Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to lymphoma patients, including those with CLL, undertakes a
Global Patient Survey
. The 2024 survey gives you
an opportunity to share your experience with CLL
CLLerinOz
Administrator
in
CLL Support
6 months ago
PNH - blood test
I just received this PNH test result and was wondering if anyone knows what it was testing for. I don't see my doctor until next week and I am curious. Thanks, Jack INTERPRETATION Flow Cytometry analysis did not detect RBC and WBC with PNH-associated phenotype. RBC, Granulocytes and Monocytes show
I just received this PNH test result and was wondering if anyone knows what it was testing for. I don't see my doctor until next week and I am curious. Thanks, Jack INTERPRETATION Flow Cytometry analysis did not detect RBC and WBC with PNH-associated phenotype. RBC, Granulocytes and Monocytes show
rcusher
in
CLL Support
6 months ago
Looking for some assistance
Hello, I've recently become very intolerant to gluten which has been a bit of a shock. I read online that it can be triggered by anxiety and it happened at the time of a serious family crisis. Can anyone tell me if this has happened to them and if so, if it's likely to recede or am I am stuck with it
Hello, I've recently become very intolerant to gluten which has been a bit of a shock. I read online that it can be triggered by anxiety and it happened at the time of a serious family crisis. Can anyone tell me if this has happened to them and if so, if it's likely to recede or am I am stuck with it
alliso
in
Gluten Free Guerrillas
7 months ago
Secondary Cancers after CAR-T Cell Therapy
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
Jm954
Administrator
in
CLL Support
7 months ago
Request for experiences with Vitamin D
If anyone of you would be willing to share your personal experience with Vitamin D that would be appreciated. All good with what is thought to be true in the medicial field I am well versed in that angle. I have taken D3 with K2 and the results were not definitive so I discontinued. I have lived
If anyone of you would be willing to share your personal experience with Vitamin D that would be appreciated. All good with what is thought to be true in the medicial field I am well versed in that angle. I have taken D3 with K2 and the results were not definitive so I discontinued. I have lived
WIZARD6787
in
Pernicious Anaemia Society
10 days ago
Update 8 years, since I started the captivate trial, and doing well so far! UMRD. I plus V. Now just on Ibruvica for many years.
Hello, I am pleased to post that it has been 8 years since I started the captivate trial, and it has gone very well so far. This is even more remarkable since I was/ am 17 P deleted with large lymph nodes a complex karyotype to start. Trisomy 12 as well to start. I have to thank CLL Society
Hello, I am pleased to post that it has been 8 years since I started the captivate trial, and it has gone very well so far. This is even more remarkable since I was/ am 17 P deleted with large lymph nodes a complex karyotype to start. Trisomy 12 as well to start. I have to thank CLL Society
Hoffy
in
CLL Support
8 months ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
2 months ago
NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Why has my ferritin risen so quickly!?
So I got my yearly iron panel check, and my ferritin had dropped to 42! even though I eat iron rich foods and take vitamin C with meals! All my vitamin levels are now optimal I take an expensive powder form of probiotic by Biomel and the Rheal gut feel greens powder, all supporting my gut health and
So I got my yearly iron panel check, and my ferritin had dropped to 42! even though I eat iron rich foods and take vitamin C with meals! All my vitamin levels are now optimal I take an expensive powder form of probiotic by Biomel and the Rheal gut feel greens powder, all supporting my gut health and
ThyroidObsessed
in
Thyroid UK
1 month ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
9 months ago
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