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Madopar CR
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Dyskinesia
I was diagnosed with PD 3 years ago at the tender age of 57. First year I was on Azilect 1mg which I tolerated well, but it didn't do much for my symptoms. Since 2 years I take Madopar 200/50 half a tablet 4 x per day. I don't have much problems with tremors but stiffness and balance problems and a
I was diagnosed with PD 3 years ago at the tender age of 57. First year I was on Azilect 1mg which I tolerated well, but it didn't do much for my symptoms. Since 2 years I take Madopar 200/50 half a tablet 4 x per day. I don't have much problems with tremors but stiffness and balance problems and a
Mischl
in
Cure Parkinson's
3 years ago
At my wits end
I am from NZ and have been desperate with my RLS also for months, sometimes not getting to sleep till 4.30am!! I finally went back to my Dr saying something had to be done as I couldn’t carry on with no sleep. I’ve been on 1-2 Madopar for years but it just isn’t working now. As well as Madopar, I
I am from NZ and have been desperate with my RLS also for months, sometimes not getting to sleep till 4.30am!! I finally went back to my Dr saying something had to be done as I couldn’t carry on with no sleep. I’ve been on 1-2 Madopar for years but it just isn’t working now. As well as Madopar, I
Dunedinite
in
Restless Legs Syndrome
3 years ago
Hdt and mannitol: got my life back
Hi For what it is worth, I take a table spoon of mannitol and 2000 mg of thiamine per day. I have no idea what brings the improvement. It is spectacular so I have no intention to change the posologie to find out ! Also take little dose of modopar 3 times a day
Hi For what it is worth, I take a table spoon of mannitol and 2000 mg of thiamine per day. I have no idea what brings the improvement. It is spectacular so I have no intention to change the posologie to find out ! Also take little dose of modopar 3 times a day
Sid44elosam
in
Cure Parkinson's
3 years ago
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Madopar
Has anyone had problems with Madopar?
Has anyone had problems with Madopar?
nourilo
in
Cure Parkinson's
3 years ago
My experience
I first started having symptoms which I identified as probably being Parkinson's symptoms in approximately November 2019. ( I am now aged 62) From no recognisable symptoms I had quite a rapid increase in tremor intensity over about four months (in both right leg and arm which was quite disturbing) plus
I first started having symptoms which I identified as probably being Parkinson's symptoms in approximately November 2019. ( I am now aged 62) From no recognisable symptoms I had quite a rapid increase in tremor intensity over about four months (in both right leg and arm which was quite disturbing) plus
MN1066
in
Cure Parkinson's
3 years ago
My husbands face to face visit with his Neuro!
My husband had a face to face visit to his Neuro yesterday, not seen him since before the lockdown, October 2019 although he has had one telephone appointment. The Neuro asked him how he was what dosage of meds he was on, watched him walking, tested his hands said he was fine for driving, as that is
My husband had a face to face visit to his Neuro yesterday, not seen him since before the lockdown, October 2019 although he has had one telephone appointment. The Neuro asked him how he was what dosage of meds he was on, watched him walking, tested his hands said he was fine for driving, as that is
Zella23
in
Cure Parkinson's
3 years ago
Exercising and walking when your muscles are stiff
Is high intensity exercises or long walks advisable if you have sore stiff muscles? I always thought being active as much as possible was suppose to be helpful for people with Parkinson's, but in my case it seems to make the stiffness worse the following day. Maybe it's because I'm doing some of the
Is high intensity exercises or long walks advisable if you have sore stiff muscles? I always thought being active as much as possible was suppose to be helpful for people with Parkinson's, but in my case it seems to make the stiffness worse the following day. Maybe it's because I'm doing some of the
Doohat
in
Cure Parkinson's
3 years ago
Any thoughts here?
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
RCHD
in
Restless Legs Syndrome
3 years ago
GABApentin/ pregabalin? Same ??
So are pregabalin and GABApentin the same drugs with different names? I am a bit worried as my husband just started GABApentin. He used pregabalin years ago but it made him very depressed he had to stop it immediately.. So the neurologist currently prescribed, GABApentin, stilnox and madopar to use
So are pregabalin and GABApentin the same drugs with different names? I am a bit worried as my husband just started GABApentin. He used pregabalin years ago but it made him very depressed he had to stop it immediately.. So the neurologist currently prescribed, GABApentin, stilnox and madopar to use
RCHD
in
Restless Legs Syndrome
3 years ago
Is this progression normal
My husband, diagnosed 2015, is really struggling. He feels rough all the time. Main symptoms are shuffling, stoop (causing back ache), balance, slowness and lack of energy so exercise is very limited. On Sinemet 3 hourly, Rasagiline 1mg and Madopar 62.5 daily + Neupro patch 4mg. Nothing new seems to
My husband, diagnosed 2015, is really struggling. He feels rough all the time. Main symptoms are shuffling, stoop (causing back ache), balance, slowness and lack of energy so exercise is very limited. On Sinemet 3 hourly, Rasagiline 1mg and Madopar 62.5 daily + Neupro patch 4mg. Nothing new seems to
Abinat58
in
Cure Parkinson's
3 years ago
Why do I feel restless during the day?
I would really appreciate some advice. I have just been diagnosed with PD and have recently started on Madopar medication. I am still on a very low dosage and the nurse told me that it will take a few more weeks to reach therapeutic levels. Prior to my diagnosis I was experiencing a lot of spasms,
I would really appreciate some advice. I have just been diagnosed with PD and have recently started on Madopar medication. I am still on a very low dosage and the nurse told me that it will take a few more weeks to reach therapeutic levels. Prior to my diagnosis I was experiencing a lot of spasms,
Boomerang83
in
Restless Legs Syndrome
3 years ago
Wearing Off or Dyskinesia
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Hidden
in
Cure Parkinson's
3 years ago
Difference between Carbidopa/levodopa and BENSERAZIDE CHLORHYDRATE / LEVODOPA
My husband's been on Modopar (BC/L) for 18 months now and still waiting for the honeymoon to begin !! He's finding it harder and harder to walk in the afternoon, due to overworking aswell. His doc who we see wvery 6 months to dictate the prescription just wants to up the dose (currently at 4 x 25/100
My husband's been on Modopar (BC/L) for 18 months now and still waiting for the honeymoon to begin !! He's finding it harder and harder to walk in the afternoon, due to overworking aswell. His doc who we see wvery 6 months to dictate the prescription just wants to up the dose (currently at 4 x 25/100
Vik38
in
Cure Parkinson's
3 years ago
Relief Factor
Howdy y'all,,, Has anyone or is anyone taking Relief Factor for pain / aches associated with PD? I've contacted Relief Factor. Their response is below. I left a voice mail message, earlier.. My fundamental questions surround Parkinson's Disease.... 1. Any history with customers with PD? 2. Any history
Howdy y'all,,, Has anyone or is anyone taking Relief Factor for pain / aches associated with PD? I've contacted Relief Factor. Their response is below. I left a voice mail message, earlier.. My fundamental questions surround Parkinson's Disease.... 1. Any history with customers with PD? 2. Any history
TR8Man
in
Cure Parkinson's
3 years ago
Madopar not working without food
Hi everyone long time since I posted.Strange thing has been happening .Third and forth dose of Madopar doesn’t work UNTIL I have a snack after I’ve I’ve taken it! Boy then I’m really on for a 2-21/2 hrs. has anyone else experienced this?Very frustrating but can deal with it!
Hi everyone long time since I posted.Strange thing has been happening .Third and forth dose of Madopar doesn’t work UNTIL I have a snack after I’ve I’ve taken it! Boy then I’m really on for a 2-21/2 hrs. has anyone else experienced this?Very frustrating but can deal with it!
Bazillion
in
Cure Parkinson's
3 years ago
Need Advice
My husband has been dosing with MP Nutravita and zandopa mix with green tea for awhile now and he usually gets 3 hours of relief with each dose, but lately dystonia has been hitting him hard in the afternoon and evenings and his tremor gets worse too later in the day/evenings. We have tried adding extra
My husband has been dosing with MP Nutravita and zandopa mix with green tea for awhile now and he usually gets 3 hours of relief with each dose, but lately dystonia has been hitting him hard in the afternoon and evenings and his tremor gets worse too later in the day/evenings. We have tried adding extra
PDsux_10
in
Cure Parkinson's
3 years ago
Anxiety & Dyskinesia
My wife was first diagnosed about 10 years ago and has been taking Sinemet for about 5 years which has kept her Bradykesia in check and allowed her to live a reasonably normal life. Of late though she has started to experience random short attacks of involuntary and uncontrollable movements of her body
My wife was first diagnosed about 10 years ago and has been taking Sinemet for about 5 years which has kept her Bradykesia in check and allowed her to live a reasonably normal life. Of late though she has started to experience random short attacks of involuntary and uncontrollable movements of her body
thfc1961
in
Cure Parkinson's
3 years ago
Muscle tightening
Hi I have posted here before and got an immense amount of help and knowledge from other PD sufferers. My wife has had PD diagnosed two years ago but because her doctor told her that medication she was on probably caused the onset as it appeared overnight she now refuses all medication. She was on Madopar
Hi I have posted here before and got an immense amount of help and knowledge from other PD sufferers. My wife has had PD diagnosed two years ago but because her doctor told her that medication she was on probably caused the onset as it appeared overnight she now refuses all medication. She was on Madopar
Berrytog
in
Cure Parkinson's
3 years ago
The importance of vitamin B6 against Parkinson's. The end of a meaningless prejudice since 1975.
A restriction or prohibition that has survived almost 50 years (1975-2020) without any scientific reason since levodopa was linked to carbidopa or benserazide. by Jesus Marquez Rivera Project "Parkinsons Here and Now" (2012-2021) "What is Science? Learn from Science that you must doubt of the experts
A restriction or prohibition that has survived almost 50 years (1975-2020) without any scientific reason since levodopa was linked to carbidopa or benserazide. by Jesus Marquez Rivera Project "Parkinsons Here and Now" (2012-2021) "What is Science? Learn from Science that you must doubt of the experts
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Sinemet CR at bed time
I take Sinemet int release 12.5/50 every 2 hours during the day. I have trouble waking with restless leg and anxiety about 1:00 am. Have taken 25/100 Sinemet at bedtime and make it to 3:00am. What has been the experience of taking a Sinemet CR at bedtime to extend the sleep time ? Thanks for your
I take Sinemet int release 12.5/50 every 2 hours during the day. I have trouble waking with restless leg and anxiety about 1:00 am. Have taken 25/100 Sinemet at bedtime and make it to 3:00am. What has been the experience of taking a Sinemet CR at bedtime to extend the sleep time ? Thanks for your
SGlass
in
Cure Parkinson's
3 years ago
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