Experiences with

Madopar CR

My wife Sue was initially diagnosed with Parkinson's in September 2023 and put on madopar. The dosage has been increased over that time but she appears to be getting no relief. Her neurologist said she might have msa but can't be certain. The past couple of weeks she's been exhausted and describes it

was hoping someone could help my husband is very stiff is taking sinemet but didn’t seem to be helping the Parkinson’s nurse is trying him on madopar with sinemet as fast acting for moving him carers think has made him a bit less stiff but he is getting lots of facial movements and eyes are very sore

61 year old, female, currently otherwise pretty healthy, I was DX about 18 months ago, but probably started symptoms up to a year before that, it is hard to tell as I had some kind of illness at the time that meant I was extremely fatigued most of the time and either bed ridden or couch bound. I only

Hi, does anyone have experience of giving Madopar via gastrostomy tube? I'm finding it doesn't dissolve very well and I nearly blocked my husband's tube this morning, any tips would be gratefully received. Has anyone tried crushing and giving Sinemet Plus via a feeding tube? I'm wondering if this

Hiya, My name is Keith I am 66 years old and have been diagnosed with MSA-P in November. I am looking for advice and guidance on my pain management. For the last few years I seem to be hitting a brick wall in regards to pain relief. I am currently prescribed Madopar, and unable to take sinimet

Hello, I have been trying (unsuccessfully) to find the above graphs. In case someone has them, I would be really grateful if they could share the data. A link to a peer-reviewed paper would be best. Thank you in advance. D.

was diagnosed with PD on october2005. Started off with neupro patches but over the years mainly ropinerole, stalevo , madopar and at night rivotril. I’ve recently heard one of the neurologist mentioning Parkin when he was looking through My file….what is the difference THANKYOU KIND REGARDS

In February 2023, my neurologist put me on a high dose of Sinemet CR 50-200 (3 tabs daily). I had a moderate case of RLS. I trusted her and she worked for a prominent neurologist in my town. In June, 2024, I finally learned that this drug was inappropriate (harmful is probably the correct description

I'm getting on for two years post diagnosis. I exercise daily and have noticed a considerable improvement in my symptoms since starting exercise and meds early this year. However after 9 months of doing pretty well I've developed almost constant nausea (lots of burping, sort of motion sickness and that

it won't go away with increased madopar dose. I am not sure my muscle spasm/ dystonia is caused by levodopa itself or amandatine. anyone has experience?

Six years ago I was diagnosed with Young Onset of Parkinson's disease. I was prescribed Madopar and Pramipexole which later was replaced with Rotigotine transdermal patches. I had a very strong but paradoxical reaction to all three dopaminergic medications and eventually l ended up in A&E where my dose

My husband had been experiencing various problems for some years including limbs on his left side feeling strange, gradual problems with speech, falls, incontinence, slow mental processing and problems with swallowing. Despite many attempts we were unable to get an appointment with a neurologist and

On Madopar for Parkinson's and it helps my RLS. Currently just on a low dose, but without it the RLS would be unbearable. I read about augmentation but what do I do as I have Parkinson's?

I currently take 8 capsules of 50mg/12.5mg madopar. I have previously been told by my old Parkinson’s nurse that this was a low dose leaving room to increase it when required but have now been told that this is a high dose by a different Parkinson’s nurse. And they don’t want to increase it. Is it considered

Hi all at HU! Its been a while...PD and dystonia of the foot still causing lots of trouble. In addition to this at the end of june i had a very bad fall ( bramble attack my ankle). I fell on my face hitting also my upper lip with the gate( will need dental work too) and breaking my two humerous bones

About a month ago I was prescribed Opicapone 50 mg which I took under medical supervision. Roughly an hour after taking the 50 mg capsule I experienced very strong adverse reaction characterised with high pulse rate and blood pressure, extreme stiffness (rigidity), fragmented breathing, inability to

My moms taking these now. She says the only thing that helps is madopar and she takes that at night. But sometimes she takes one earlier and one later at night. It knocks her out just enough to sleep 2 to 4 hours. She says she has been bad for days.

hello everyone, What ‘s the best time to take opicapone, early morning or late pm ? I actually take madopar 125 mg at 08am /11am / 2pm / 5pm / 8pm / 11pm / 3am Thanks Marc

Hello everyone, I was wondering if anyone has taken Opicapone 50 mg and if they have experienced any side effects. I have tried both 50 mg and 25 mg but overdosed with both and ended up in A&E, where I had a terrible stay but that is a separate story. When it was prescribed to me I was not made aware

Does anyone have experience with clonazepam for 'off' period anxiety? Or positive results with other medications? My PWP suffers at times with severe anxiety and fear that seems to interfere with the efficacy of her madopar doses (175mg 5 times a day). She's off more than on at present.