Experiences with

Madopar CR

I have been here on HUL for about 2 years. I am present on several discussion groups in different forums and I usually do not post until after a period of time when I try to realize that the group in question is helping my journey with PD for the rest of my life. So, I was diagnosed with PD in January

Nickosome 's question is useful to me too, because I have been prescribed Opicapone due to severe motor fluctuations after 6 years on Madopar. 2 years ago it was prescribed and I couldn't tolerate it ....too strong for me, but now I have few choices . . I worry that it will worsen my dyskinesia. I also

My husband has been diagnosed with PSP, which has many similar symptoms to Parkinson’s. The Madopar he has been taking, along with Amantadine, for the past 6 months do not appear to have made any difference. Has anyone any experience of taking LionsMane supplements and which ‘may’ make a difference to

So I wanted to try shrooms as much out of interest if anything. I’d heard about new neural pathways being created for starters and fancied a new possibility of experience. Didn’t go great if I’m being honest: took it as a tea. My hands went fuzzy but that was about it. I went to bed and was conscious

I just wanted to write about this in case someone else might benefit. I have only been diagnosed a couple of years and my symptoms are still [i]relatively [/i]mild apart from restless legs syndrome. I am 61 years old. I was on just Madopar every three hours, but I was only feeling OK for one hour out

has anyone tried Madopar quick release under the tongue ie; split the capsule open and poured the contents under the tongue? (Sublingual)….Did it absorb through the tissue under the tongue and provide relief quickly?

My wife Sue was initially diagnosed with Parkinson's in September 2023 and put on madopar. The dosage has been increased over that time but she appears to be getting no relief. Her neurologist said she might have msa but can't be certain. The past couple of weeks she's been exhausted and describes it

was hoping someone could help my husband is very stiff is taking sinemet but didn’t seem to be helping the Parkinson’s nurse is trying him on madopar with sinemet as fast acting for moving him carers think has made him a bit less stiff but he is getting lots of facial movements and eyes are very sore

61 year old, female, currently otherwise pretty healthy, I was DX about 18 months ago, but probably started symptoms up to a year before that, it is hard to tell as I had some kind of illness at the time that meant I was extremely fatigued most of the time and either bed ridden or couch bound. I only

Hi, does anyone have experience of giving Madopar via gastrostomy tube? I'm finding it doesn't dissolve very well and I nearly blocked my husband's tube this morning, any tips would be gratefully received. Has anyone tried crushing and giving Sinemet Plus via a feeding tube? I'm wondering if this

Hiya, My name is Keith I am 66 years old and have been diagnosed with MSA-P in November. I am looking for advice and guidance on my pain management. For the last few years I seem to be hitting a brick wall in regards to pain relief. I am currently prescribed Madopar, and unable to take sinimet

was diagnosed with PD on october2005. Started off with neupro patches but over the years mainly ropinerole, stalevo , madopar and at night rivotril. I’ve recently heard one of the neurologist mentioning Parkin when he was looking through My file….what is the difference THANKYOU KIND REGARDS

In February 2023, my neurologist put me on a high dose of Sinemet CR 50-200 (3 tabs daily). I had a moderate case of RLS. I trusted her and she worked for a prominent neurologist in my town. In June, 2024, I finally learned that this drug was inappropriate (harmful is probably the correct description

Bonjour ,je suis diagnostiquee depuis 2o18 ,je prends 1 modopar 250 à 6 h ,9h ,12h ,15h ,18h .je n en ai pas besoin la nuit .Cela fait 6 mois que ça allait bien ,mais je sens que ça commence à être juste ,toutes les 3 heures je passe 1h ,pas vraiment off mais presque,surtout tres tres sommeil ,le temps

Hello, I have been trying (unsuccessfully) to find the above graphs. In case someone has them, I would be really grateful if they could share the data. A link to a peer-reviewed paper would be best. Thank you in advance. D.

I'm getting on for two years post diagnosis. I exercise daily and have noticed a considerable improvement in my symptoms since starting exercise and meds early this year. However after 9 months of doing pretty well I've developed almost constant nausea (lots of burping, sort of motion sickness and that

it won't go away with increased madopar dose. I am not sure my muscle spasm/ dystonia is caused by levodopa itself or amandatine. anyone has experience?

Six years ago I was diagnosed with Young Onset of Parkinson's disease. I was prescribed Madopar and Pramipexole which later was replaced with Rotigotine transdermal patches. I had a very strong but paradoxical reaction to all three dopaminergic medications and eventually l ended up in A&E where my dose

My husband had been experiencing various problems for some years including limbs on his left side feeling strange, gradual problems with speech, falls, incontinence, slow mental processing and problems with swallowing. Despite many attempts we were unable to get an appointment with a neurologist and

On Madopar for Parkinson's and it helps my RLS. Currently just on a low dose, but without it the RLS would be unbearable. I read about augmentation but what do I do as I have Parkinson's?