Hi
For what it is worth, I take a table spoon of mannitol and 2000 mg of thiamine per day. I have no idea what brings the improvement. It is spectacular so I have no intention to change the posologie to find out !
Also take little dose of modopar 3 times a day
Way to go... And what combination do you credit your success to: Placebo (Mannitol, Thiamine), Nocebo (high-dose Madopar), Mannitol+low-dose Madopar, Mannitol+Thiamine, low-dose Madopar+Thiamine?
I would guess modopar + thiamine
But I do not really know. The best would be to stop thiamine and see what happens. But I don’t feel like doing that!!!😃
A combination of two elements considered by Dr. Costantini to be synergistic; my humble advice: make a short video of walking, speaking and trembling if you have it; if you get a pull test in med. put it aside and watch it after each protocol change. It will remain an objective proof of comparison in case of doubt.
Do you take them at the same time? Are you on any meds
No I am trying to scatter them during the dayModopar 100 at 8am ish, 1g B1 at 9 ish, mannitol at 9 also, modopar 50 at 1pm ish, 1G B1 at 3 PM, modopar 50 at 5 pm
How long you had the
SB
in case you ask me:
no, they are two different things. Levodopa is taken at specific times as prescribed by the doctor. Vitamin B1 or thiamine when you want. My protocol is in my profilo.
Mannitol and Miralax (polyethylene glycol powdered mix laxitive) help me keep a little more regular.
What symptoms does mannitol help?Tremors, muscle rigidity, freezing
Gut dysbiosis, muscle cramps, gait, arm swing, smell, among others according to the post-6 months Clinicrowd report.
Did it improve your symptoms?
How much do you take of the mannitol?
Still new but one thing is sure: between one teaspoon and one tablespoon a day keeps that much talked of constipation away.
This is great Sid44elosam. Could you please tell us more about your journey and how Mannitol and B1 have improved your condition? Thanks!
To make it short, my last visit to the neurologist was rated at ‘0’ on a scale from’0’ to ‘4’. Thé one before that was 1 +. So the neurologist said ‘ whatever you do, carry on’. I would say the main improvements are : gait, stone face, voice, walking
Sounds good to me. I wouldn’t change a thing if it’s working for you. Brilliant!
Congratulations on your improvement! If it’s not broken, don’t fix it !
What were your symptoms before you started b1 and mannitol?I'm not on any meds yet. I have been diagnosed with Parkinsonism. I have tremors and muscle weakness on my dominant side. Struggle to get in and out of bed and the car,sometimes on and off the toilet. I have. limited use of my right hand so I do mostly everything with my left hand. I get cramping in my quadriceps when I sit and it then causes my big toe to lift up. That all resolves when I stand. I spend most of my time standing or laying down. MRI scheduled to determine if I have lumbar articular syndrome. I have degenerative arthritis..difficulty getting dressed I take omega3 D,NAC,vitamin d3,lipolic acid, co Q10,dopa plus, dha,vitamin c,multivitamins and minerals, mega Sporebiotic, magnesium, turmeric and b1. I am Afraid of side effects of pd meds. I am not sure what they will start me on. Any suggestions
I can only speak for myself of course. Main symptoms were stooped posture, dragging right foot, loss of my voice, expressionless face, fatigué, lors of sense of humour
Here you go
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