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Madopar
My husband was asked to take madopar but each morning he feels giddy after taking it and he used the term “top heavy”.Does anybody have this feeling?
My husband was asked to take madopar but each morning he feels giddy after taking it and he used the term “top heavy”.Does anybody have this feeling?
Jumex2017
in
Cure Parkinson's
5 years ago
Shall I buy a car? AKA how long have I got doc?
Slightly tongue in cheek title but basically a genuine question... I’m 58. I first noticed clear symptoms (as opposed to those you realise with hindsight might have been earlier indicators) in 1/2015. Officially dx a year later 1/16 and started on 1mg pd of Rasagiline Then 15 months later (5/17) started
Slightly tongue in cheek title but basically a genuine question... I’m 58. I first noticed clear symptoms (as opposed to those you realise with hindsight might have been earlier indicators) in 1/2015. Officially dx a year later 1/16 and started on 1mg pd of Rasagiline Then 15 months later (5/17) started
Marcomando
in
Cure Parkinson's
5 years ago
WHY IS CARBIDOPA USED IN COMBINATION WITH LEVODOPA IN DRUGS SUCH AS SINEMET?
This is a question that I have heard different answers for in different places on the web, but never was quite sure what the exact reason was, but I have noticed that there is a group who believes that Carbidopa itself can be a problem and would prefer alternatives to Carbidopa while some people use
This is a question that I have heard different answers for in different places on the web, but never was quite sure what the exact reason was, but I have noticed that there is a group who believes that Carbidopa itself can be a problem and would prefer alternatives to Carbidopa while some people use
chartist
in
Cure Parkinson's
5 years ago
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Please help with your experiences
Hi Friends Ill post this in dot point so its easy to read; -DX early last yr at age 35 -Tremor initially was resting but now changes between resting (L&R arms and hands), activity based (L arm & hand) and general muscle twitching thruout my body - Left arm hangs with a bend in the elbow and doesn't
Hi Friends Ill post this in dot point so its easy to read; -DX early last yr at age 35 -Tremor initially was resting but now changes between resting (L&R arms and hands), activity based (L arm & hand) and general muscle twitching thruout my body - Left arm hangs with a bend in the elbow and doesn't
AaronS
in
Cure Parkinson's
5 years ago
Still not convinced it’s PD
Further to my previous post about Madopar not working I’ve decided to wean myself off meds altogether for a while in an attempt to get a definitive idea before my next appointment with the neurologist as to what effect (if any) they’ve been having. I’ve been told that the only way to effectively diagnose
Further to my previous post about Madopar not working I’ve decided to wean myself off meds altogether for a while in an attempt to get a definitive idea before my next appointment with the neurologist as to what effect (if any) they’ve been having. I’ve been told that the only way to effectively diagnose
PWal
in
Cure Parkinson's
5 years ago
Supplements Useless
The latest “Annals of Internal Medicine” has a report on the effects of Supplements for cardiac problems, finding them all but one useless.* The study involved 24 supplements used by a million people, and mirrors another similar study in 2013. I suspect the same is true for supplements taken for Parkinson
The latest “Annals of Internal Medicine” has a report on the effects of Supplements for cardiac problems, finding them all but one useless.* The study involved 24 supplements used by a million people, and mirrors another similar study in 2013. I suspect the same is true for supplements taken for Parkinson
condor39
in
Cure Parkinson's
5 years ago
C/L CR with food?
Many places it is written to avoid taking C/L with food. I think this to avoid the C/L absorption problems when the meal contain protein, and also, I guess if you take the C/L immediately after a large meal, it could be a while before the C/L reaches the small colon (where it can be absorbed)... But
Many places it is written to avoid taking C/L with food. I think this to avoid the C/L absorption problems when the meal contain protein, and also, I guess if you take the C/L immediately after a large meal, it could be a while before the C/L reaches the small colon (where it can be absorbed)... But
Hidden
in
Cure Parkinson's
5 years ago
Wallowing in the Trough of Carbidopa and Benserazide
I hesitate to even start a thread that is heresy to many, many PD sufferers, many self proclaimed pharmacologists/biochemists on this forum and many of their physicians as well. It is all about a couple of PD drugs that can go very deadly if used inappropriately. Please realize, if you can do so, that
I hesitate to even start a thread that is heresy to many, many PD sufferers, many self proclaimed pharmacologists/biochemists on this forum and many of their physicians as well. It is all about a couple of PD drugs that can go very deadly if used inappropriately. Please realize, if you can do so, that
sharoncrayn
in
Cure Parkinson's
5 years ago
Changing Sinemet to Madopar : bad experiences ??
Hi everybody ! Due to the unbelievable fact that Sinemet no longer will be available in Switzerland, I had to change from Dopadura 25/100 (that I already toke as a replacement for Sinemet 25/100) to Madopar 125 (25/100) also three times a day. Since about 5 days the stiffness is getting worse and also
Hi everybody ! Due to the unbelievable fact that Sinemet no longer will be available in Switzerland, I had to change from Dopadura 25/100 (that I already toke as a replacement for Sinemet 25/100) to Madopar 125 (25/100) also three times a day. Since about 5 days the stiffness is getting worse and also
JANVAN
in
Cure Parkinson's
5 years ago
Madopar not working. Have I really got PD?
Hi All I was diagnosed with Idiopathic PD in Feb ‘18 and put on a course of Madopar which, in varying doses, I’ve been on since. The Madopar simply doesn’t seem to have any effect and I can genuinely not make any distinction between how I feel after having taken a dose and (for example) 1st thing in
Hi All I was diagnosed with Idiopathic PD in Feb ‘18 and put on a course of Madopar which, in varying doses, I’ve been on since. The Madopar simply doesn’t seem to have any effect and I can genuinely not make any distinction between how I feel after having taken a dose and (for example) 1st thing in
PWal
in
Cure Parkinson's
5 years ago
Does anyone have any sleeping remedies or meds that work?
I was taking Endep (which gave me a full night's sleep) but my Neurologist changed me from Stalevo (which was giving me Dyskenesia) to Madopar + Xadago. But I had to cease the Endep as he said it could conflict with the Xadago, which is a fairly new drug that is still being trialled. He prescribed Paxam
I was taking Endep (which gave me a full night's sleep) but my Neurologist changed me from Stalevo (which was giving me Dyskenesia) to Madopar + Xadago. But I had to cease the Endep as he said it could conflict with the Xadago, which is a fairly new drug that is still being trialled. He prescribed Paxam
Hidden
in
Cure Parkinson's
5 years ago
Madopar
Hello all My husband has been prescribed Madopar 50 mg which is levodopa and benserazide. He has CBD this is to help jerks. I have not given this to him as the jerks are not too bad. Has anyone had a positive experience with this medication please
Hello all My husband has been prescribed Madopar 50 mg which is levodopa and benserazide. He has CBD this is to help jerks. I have not given this to him as the jerks are not too bad. Has anyone had a positive experience with this medication please
Northstar1
in
PSP Association
5 years ago
Ibogaine HCL + Syrian rue treatment - First feedback
Hello lovely people! I am writing about the first effects of our experimental treatment with Ibogain HCL + Syrian Rue on my father. Prior to treatment, the father was taking nex medications for Parkinson's: 4 x Madopar 100 mg L / 25 C 3 x Requip 4 (dopamine antagonist) 1 x Azilect (rasagaline)
Hello lovely people! I am writing about the first effects of our experimental treatment with Ibogain HCL + Syrian Rue on my father. Prior to treatment, the father was taking nex medications for Parkinson's: 4 x Madopar 100 mg L / 25 C 3 x Requip 4 (dopamine antagonist) 1 x Azilect (rasagaline)
Gypsyzebra
in
Cure Parkinson's
5 years ago
ibogaine HCL
ich bin neu in der Gruppe, 77 Jahre alt wurde 2007 parkinson diagnostiziert,lebe mit hohen Dosen Levo- ünd Carbidopa; möchte mit mikrodosierter Ibogaine HCL meine Gehschwächen und überhaupt, die Bewegungs- und Startschwierigkeiten lindern. Weiß jemand welches Produkt ich kaufen soll, welche Dosis
ich bin neu in der Gruppe, 77 Jahre alt wurde 2007 parkinson diagnostiziert,lebe mit hohen Dosen Levo- ünd Carbidopa; möchte mit mikrodosierter Ibogaine HCL meine Gehschwächen und überhaupt, die Bewegungs- und Startschwierigkeiten lindern. Weiß jemand welches Produkt ich kaufen soll, welche Dosis
Will19parkiscore
in
Cure Parkinson's
5 years ago
Pramipexole brand differences UK
I take a 1.05 dose of pramipexole
CR
as well as
Madopar
. For several years the NHS brand of choice has been Pipexus. There was a supply problem to my dispensary when I picked up my most recent prescription and I have been taking the Teva brand for two weeks now.
I take a 1.05 dose of pramipexole
CR
as well as
Madopar
. For several years the NHS brand of choice has been Pipexus. There was a supply problem to my dispensary when I picked up my most recent prescription and I have been taking the Teva brand for two weeks now.
Sarahlil
in
Cure Parkinson's
5 years ago
Generic Treatment for Parkinson Disease Receives FDA Approval
Alembic Pharmaceuticals has received FDA approval for its Carbidopa and Levodopa Extended-Release Tablets USP, 2.5 mg/100 mg and 50 mg/200 mg, according to the company. The drug is therapeutically equivalent to Merck’s Sinemet CR Tablets, 25 mg/100 mg and 50 mg/200 mg. https://www.pharmacytimes.com/news
Alembic Pharmaceuticals has received FDA approval for its Carbidopa and Levodopa Extended-Release Tablets USP, 2.5 mg/100 mg and 50 mg/200 mg, according to the company. The drug is therapeutically equivalent to Merck’s Sinemet CR Tablets, 25 mg/100 mg and 50 mg/200 mg. https://www.pharmacytimes.com/news
Farooqji
in
Cure Parkinson's
5 years ago
RLS tips and info
I have been treated for 20 years with Sinemet CR 200/50mgs I was studies by the Canadian Sleep Institute in Calgary Alberta Canada and had severe sleep problems b/c of RLS. They put me on Sinemet CR (controlled release) and it saved my life, literally! I am concerned b/c I only have 3 more doses left
I have been treated for 20 years with Sinemet CR 200/50mgs I was studies by the Canadian Sleep Institute in Calgary Alberta Canada and had severe sleep problems b/c of RLS. They put me on Sinemet CR (controlled release) and it saved my life, literally! I am concerned b/c I only have 3 more doses left
CAW20rlsSINCR
in
Restless Legs Syndrome
5 years ago
Losing hope
Dx 2003 aged 46. until about 6 months ago i refused to be beaten. Now I am utterly beaten. For years I’ve taken madopar every 90 mins . I have always had sudden swings between off and on but was able to make them bearable – with the odd blip - with extra madopar. I worked out years ago that protein interferes
Dx 2003 aged 46. until about 6 months ago i refused to be beaten. Now I am utterly beaten. For years I’ve taken madopar every 90 mins . I have always had sudden swings between off and on but was able to make them bearable – with the odd blip - with extra madopar. I worked out years ago that protein interferes
pen1
in
Cure Parkinson's
5 years ago
Melatonin
I was just wondering about melatonin in Sleep. Does it improve your sleep by sleeping throughout the 7 hrs ? Does it stop the breaking of the sleep? Can a non pd person take it? I will also like to know how long it takes for ones’s stiffness to go away after taking madopar? I understand its different
I was just wondering about melatonin in Sleep. Does it improve your sleep by sleeping throughout the 7 hrs ? Does it stop the breaking of the sleep? Can a non pd person take it? I will also like to know how long it takes for ones’s stiffness to go away after taking madopar? I understand its different
Jumex2017
in
Cure Parkinson's
5 years ago
gawdelpus
I started taking madopar and apparently asked a seventeen year old shop girl to warm my bed. I am 79. I have absolutely no recollection of this. All I remember is talking to a small bunch of youngsters about motor bikes since they had bikes and I have been riding since 1949 and in maturity was an outlaw
I started taking madopar and apparently asked a seventeen year old shop girl to warm my bed. I am 79. I have absolutely no recollection of this. All I remember is talking to a small bunch of youngsters about motor bikes since they had bikes and I have been riding since 1949 and in maturity was an outlaw
Ouldbob
in
Cure Parkinson's
5 years ago
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