Feeling exhausted : My wife Sue was... - Multiple System A...

Multiple System Atrophy Trust

1,879 members1,514 posts

Feeling exhausted

Seasider12 profile image
2 Replies

My wife Sue was initially diagnosed with Parkinson's in September 2023 and put on madopar. The dosage has been increased over that time but she appears to be getting no relief. Her neurologist said she might have msa but can't be certain.

The past couple of weeks she's been exhausted and describes it has though her head doesn't belong to her body. Her freezing as also got worse. Blood tests have come back ok.

Does anyone have any thoughts on this please or is it just this dreadful disease?

Thanks.

Written by
Seasider12 profile image
Seasider12
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Gill-C profile image
Gill-C

I’m not a clinician in any way but, from personal experience and reading the symptoms of others, I’m afraid to say that this sounds much like the progression of MSA. All best wishes to you and your wife

PineEater profile image
PineEater

Seasider12 Hi

..The past couple of weeks she's been exhausted and describes it has though her head doesn't belong to her body...That seems to be "depersonalization-derealization disorder" which highly likely indicates MSA. Please consult the MSA trust and read the literature they have written for MSA people. That should give you the desired relief. Best wishes to you and your wife.

Not what you're looking for?

You may also like...

where to go from here?

hi this is my first time posting. I care for my mum who was diagnosed with MSAp about a year ago....
HelpingMum25 profile image

medication ‘wearing off’ symptoms

Hi Everyone Since my Mum came out of hospital she is noticing that she gets a ‘wearing off’ period...
Purplestar2 profile image

This heat and Moisture Lesion.

Couple of questions:How does everyone cope at night with this heat in the UK? My wife has a fan...
Derek1uk profile image

5 weeks since diagnosis - managing the rollercoaster

Hi - my 72 year old mum was re-diagnosed just 5 weeks ago after 7 years with a PD diagnosis. This...
TK-67 profile image

Are we nearing the end?

I'm new to this community but our family has been battling MSA for a long time. My mother in law...
walkerjen profile image

Moderation team

See all
JamesMSAT profile image
JamesMSATAdministrator
MSAAndy profile image
MSAAndyAdministrator
MSATKirsten profile image
MSATKirstenAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.