I am having a fabulous response to Opicapone (Ongentys)

[Jess123dog]

I just wanted to write about this in case someone else might benefit. I have only been diagnosed a couple of years and my symptoms are still relatively mild apart from restless legs syndrome. I am 61 years old. I was on just Madopar every three hours, but I was only feeling OK for one hour out of three and had very, very little energy.

My Parkinson's nurse (who I saw for the first time a few weeks ago) started me on Opicapone (Ongentys in UK) and I no longer experience the drop off, I can relax about eating protein as it does not seem to affect the Madopar as it did before, I have been able to reduce Madopar and best of all I have lots of energy for the first time in years.

This is a link to info about this drug on the Parkinson's UK website parkinsons.org.uk/informati...

[Farooqji]

This medicine cause dyskinesia in some people, otherwise its best ON TIME extender

[ReRe71 in reply to Farooqji]

Thay's very true for me. Ongentys gave me dyskinesia, that bad, that I had a bad fall and ended up in ER and it took me two other weeks in hospital and some.more in rehab to get myself together and try walk back again.

I am glad that it works for some of us. It shows how alike and different we are at the same time! I wish you health! 🙏

[michelagvolpe]

I take it since 1 year and half and no side effects, I don't know if for me it works, it is like eat a candy 😑, the same about Rasaligine: a candy. 🍬

[Lorraine33]

it’s a great medication if it works without side effects.

My husband took it and it made so much difference in just a few days; however, he started hallucinating and after five days didn’t recognise me!

After 12 hours without opicapone he was ok again.

[Windermere1]

after begging my Parkinson’s nurse for Opicapone for 18 months and being told No with no reason given. I went privately to a neurologist who prescribed it and it has worked wonders with no side effects On time moved from 3 hours to 6/7 hours,

I am in U.K. too so you are so lucky to have a P nurse able to let you have it. I found out why they kept saying No. COST. It’s expensive.